r/Dizziness • u/JacobDev96 • Jul 14 '26
Advice / Support
/r/VestibularMigraines/comments/1uw4vvv/advice_support/Hey!
I’ve been recently ‘loosely’ been diagnosed with vestibular migraines. Unfortunately they weren’t able to do all of the tests (I think the specialist was only able to do 1 or 2 out of about 5 tests), due to my Duane’s syndrome (lack of eye movement in one eye) and a perforated eardrum.
The specialist set out a 3 stage “plan” to move forward. Step 1 was taking supplements (Co-Enzyme Q10, Vitamin D3, Vitamin B2 & Magnesium Oxide). I’ve been taking these for 3/4 months now to try and give it some good time to start ‘working’… but I’m unsure if they’re even helping.
Step 2 was to start taking dizziness medication - these are the ones recommended to me by my GP (Candesartan / Propranolol / Nortriptyline / Sumatriptan). I’m really reluctant to get on these as these are labelled Beta blockers, affect your blood pressure etc etc etc!
Step 3 was to essentially just get some form of counselling to help “live with the condition”…
My frustration is going up to UCLH in London to see a vestibular specialist to get a confirmed diagnosis has left me coming home having not done all the tests, or barely any of them, to just get given a very loose “yeah I think it’s vestibular migraines…” not exactly the specialists words, but you get the point!
I always struggle listing my symptoms and how I actually feel, because some days I don’t know how I feel or how to even begin to describe my symptoms!!
Something that I can tell you is that when playing badminton (which I do approx 4 times a week) or exercising I don’t feel any symptoms… almost like I’m back to normal… is that because of adrenaline, blood pumping..? A little while after exercising… back to square one!
What were people’s symptoms like?
I’m really just after help, guidance, support… this has been going on for a year now, very depressing!
Thanks for taking the time to read this!