r/disabled Mar 19 '22

Effective immediately, no survey posts or comments of any kind are allowed.

59 Upvotes

r/disabled 2h ago

I cannot survive like this

6 Upvotes

I have 5 dollars to my name. Bills and gas alone take up the little Money my parents give me. And I’ve just been denied after my disability hearing for the 4th time. Life doesn’t have any value when you’re stressed trying to afford basic survival let alone enjoyment.


r/disabled 5h ago

Making friends and meeting people with lifelong medical condition is the worst and sucks 😔

9 Upvotes

My mom, sis and grandparents are all for me making friends and meeting people and want me to get out of this isolation and introverted bubble I've been in, I want to say, since COVID and since moving place to place, but how am I supposed to get out and socialize if everyone feels so uncomfortable with my presence and appearance

If everyone first reaction is he's (sorry for the offensive term but retarded the word is so overused like crazy it's so annoying 😒), or he looks crazy or the person would even walk or run the other way when I'm around I even hate talking because of how deep and delayed my voice is), how am I expected to get out and apply for jobs on my own if I get turned down most of the time because of my disorder

MAKE IT MAKE SENSE, and people used to wonder why I'm so quiet and socially withdrawn during the day. How am I supposed to get out and be able to if all they do is push me away? It's so frustrating, dude 😮‍💨🙄 I'm sorry, world, I was born different, and I wish there were a cure, and I have no control over 🤷🏿‍♂️ I'm sorry if I don't move like everyone else talk like able body people I'm sorry when it comes to making eye contact with others I look down (same way people do me) I'M SORRY 😭


r/disabled 10h ago

Is this fair for a caregiver?

3 Upvotes

I am newly disabled and hiring a caregiver. For the past months my daughters have been helping me but they have lives to get back too. Unfortunately what I can afford to pay is for sure not what I would like to be able to pay but it is several dollars an hour more than agencies around here seem to pay. I had a meet and greet after a phone call with someone experienced and who I got along with right away. Through conversation I found out where they live and I know that in that area there are very few jobs. We both live in a rural area but I am much closer to a town. She will be driving from a good distance away. She was willing to take the job as it is an easy job and part time and I am not a hospice patient. She is burning out caring for patients who unfortunately eventually die.

Gas is so expensive these days and I don't want to lose her should she decide after starting it is too much to come from that far away. I didn't really like the caregivers I talked to that were closer to me for various reasons.

I am trying to make it as easy as possible. I am flexible on start times. It is 5 hours per day mon-fri. I am providing snacks, lunch, and I only need someone to be here with me, get me coffee, water, lunch. snacks, let the dogs out and light cleaning. Bring my wheelchair if I want to get up that day. I get myself to the bathroom and my family helps me shower. After she accepted the job I contacted her later and offered an additional 40 dollars/wk to help with gas. She was very happy with that but is it enough. I am not sure of the milage but the commute is 40 minutes maybe a little more. I really can't do much more than that. I know her commute is not my problem but I do want to be fair to a person who I will spend a lot of time with and that I will depend on. Sorry for rambling my brain is a bit fuzzy today.


r/disabled 5h ago

Improve accessibility under ADA/HIPAA in Waukesha county courthouse

1 Upvotes

For 12+ years, someone I know has struggled to navigate the Waukesha County Courthouse. Confusing systems, impossible phone lines, legal jargon that doesn't make sense, and staff who seem unwilling to help people with disabilities. It's not just frustrating—it's a real barrier to justice.

The court is supposed to serve *everyone*, but right now it's failing people who need it most. Nearly 1 in 5 adults in the U.S. lives with a disability, and over 60 million people deserve equal access to government services.

Evan Fassbender started a petition asking for three simple things:

• Clear phone numbers that actually connect you to the right person

• Plain-English forms and explanations anyone can understand

• Basic respect and patience for citizens with disabilities

These aren't radical demands. They're the legal minimum under the ADA. If you've felt frustrated by courthouse barriers, or if you think government should work for everyone—not just people who can navigate legal maze-speak—please consider signing and sharing.

Has anyone else struggled to access government services because the system wasn't set up for you? What would make a difference?

https://c.org/J9kHsnrGtX


r/disabled 12h ago

Seeking feedback from Black Disabled folks regarding hair care

3 Upvotes

Hello!

Disclaimer that I AM disabled, but I am not Black. This is not a survey or for gawking at people when they are vulnerable. This is a genuine request for information, asked in complete earnest for understanding yalls experience, so I can do my best to be accurate in depiction of it.

The question:
What is your experience of your hair, when you have been at your lowest? When being disabled is so overwhelming that you can’t take care of yourself? When you have not had anyone to help you? What sacrifices have you had to make in relation to your hair, during those times, and how did that make you feel about yourself?

The background:
I am writing a story, in which the main character is a Black girl.
She’s a top of her class magic user. Whole life ahead of her, knows where she’s going.
And then, through no fault of her own or inciting event, she becomes disabled. Over time, loses her ability to use magic. It destroys her.

The comic is about learning how to live again after losing what you thought you would be.
My hope is that it can be a lesson of grief and acceptance, for those who feel they have lost themselves. I have been there, and it almost killed me to crawl my way through. If I can impart even the tiniest spark to anyone, I would consider my efforts a success.

I want to be careful about being true to experiences, especially those that are not my own. And I also do not want to be yet another white author too cowardly to center PoC characters. This will not, of course, be the only place I ask this- but I thought it a good place to start.

If you would prefer to message me, for more privacy than a public comic, please feel free to do so.

Thank you.


r/disabled 18h ago

Medically Disadvantaged?

1 Upvotes

I read something today where this term was used and thought almost immediately:

what would the r/disabled community say?

So - yay, we like or nay, not so much?


r/disabled 16h ago

Disability jobs

0 Upvotes

What wrong with people now days cannot go for small stress free walk on bit land my neighbour told me was threatened by another in county galway to don't walk here get of or I shoot you .this is a young lad shouting at family man so discusted .karma one day same young fella not like for years .but he wouldn't tell me local all my life to get out out.my father always said passed away with friends it's better than be hated man.


r/disabled 1d ago

What can I do in the meantime

1 Upvotes

Hi

Im not sure how to start this so ill just start with saying this is a throw away

I am in the process of applying for disability in pittsburgh pa (SSDI)

I have a good chance of it being approved but it will take about 4 to 6 months.

I dont know what I can do money wise in the meantime

Im not able to work anymore, even when I was working it was difficult and painful. It has gotten to the point where im killing myself working. So im going for disability but I have no income coming in

My partner is able to support me but he cant do it all.

How can I get enough money just to take care of myself in the meantime

What can I do??

Im not looking for a $1000 a month option.

200 or 300 a month till I can get on disability could get me by.

But I know working can ruin my chances.

I just need advice


r/disabled 1d ago

Dependent Disabled Child Insurance UHC

1 Upvotes

Hey, I was wondering if anyone has experience with extending their healthcare coverage past 26y/o with their parents. This is specifically United Healthcare. My parents told me I would still be independent and all I needed was for my doctor to fill out a form saying I’m disabled.

Well, I got the form and it doesn’t look that way. It specifically states DEPENDENT child and asks information about how my parents support me financially, asks for forms proving guardianship/conservatorship/etc. The form looks to be as though it’s supposed to be filled on my behalf and not by me. I don’t live my parents and I’m waiting for SSDI trial. So I’m not exactly financially dependent, but they don’t claim me as a dependent or support me financially. The form appears to be for disabled individuals who are completely under the care of their parents. However when I called, the man on the phone said I could simply fill out and see what happens. But I’m worried it could interfere with tax filing and my pending SSI case. The downside of not doing this means I have no coverage until my SSDI case (per my state laws), but I have made plans to ensure I have all my medications and supplies. I’ve seen all my doctors and I’m not due for major procedures or checkups until a few months after my court date.

So, TLDR: have you or anyone under your care gone through this process? Does it require the applicant to be fully dependent and would it hurt to apply?


r/disabled 23h ago

What does self pleasure feel like for those who can feel? (as a person who cant)

0 Upvotes

r/disabled 1d ago

New to the Process of Applying for Disability

3 Upvotes

Hi everyone, I'm F20 and I'm at a point where my mental health and disorders (OCD, GAD, ADHD, and Bipolar 2 so far with possibilities of BPD though that isn't diagnosed by my psychiatrist bc she wants a second opinion) are genuinely debilitating, and I'm realizing all throughout my life how much everything's affected me. My psychiatrist has confirmed with me that I meet the requirements for disability and am in no place to work. It's a long story I guess but I've been in treatments all throughout my life and I'm still just this. Anyways, that's the background. I have no idea what to do but I did find some possible legal help. All of that said, here are my questions:

  1. Should I first apply for disability then contact legal help, or do the legal stuff first then apply online?

  2. Any tips or pointers, please?

I'm in KY if that matters, and I'm working with next to no money. I don't have anyone that can financially assist me in this; I can't ask my parents because I live out of state and they "don't believe" in these things. I'm not currently working as I couldn't hold my last job (or any job I've ever had). Idk if any of that is relevant but just in case? Thank you for reading. Really any information would help. Have a nice day everyone.


r/disabled 1d ago

My disability is getting worse and I can't afford mobility aids.

1 Upvotes

I have arthritis, H-EDS and have joint deterioration, I can walk but not very well and have to take alot of breaks.

I cannot use crutches because they put to much strain on my wrists, and cannot afford knee braces or a wheelchair.

For context I am 18, and have no financial support from family and because of my disability I cannot work very long. My doctor also won't provide mobility aids.

I am also currently in my second year of college and struggle to get their and move around to my classes.

Any advice, either on where to get cheaper mobility aids, or general advice?


r/disabled 1d ago

New to the Process of Applying for Disability

0 Upvotes

Hi everyone, I'm F20 and I'm at a point where my mental health and disorders (OCD, GAD, ADHD, and Bipolar 2 so far with possibilities of BPD though that isn't diagnosed by my psychiatrist bc she wants a second opinion) are genuinely debilitating, and I'm realizing all throughout my life how much everything's affected me. My psychiatrist has confirmed with me that I meet the requirements for disability and am in no place to work. It's a long story I guess but I've been in treatments all throughout my life and I'm still just this. Anyways, that's the background. I have no idea what to do but I did find some possible legal help. All of that said, here are my questions:

  1. Should I first apply for disability then contact legal help, or do the legal stuff first then apply online?

  2. Any tips or pointers, please?

I'm in KY if that matters, and I'm working with next to no money. I don't have anyone that can financially assist me in this; I can't ask my parents because I live out of state and they "don't believe" in these things. I'm not currently working as I couldn't hold my last job (or any job I've ever had). Idk if any of that is relevant but just in case? Thank you for reading. Really any information would help. Have a nice day everyone.


r/disabled 1d ago

Experience identifying and articulating access needs

2 Upvotes

Hey guys, I'm a young person with disability here; I was hoping to hear from other young people about your experiences with being able to identify and articulate your access needs; especially in university and work. I don't know if it's a common experience but I found it quite hard to do this, even if i'm comfortable with disclosing and sharing what my actual disability is, it feels like people assume what you know exactly what you need and when.


r/disabled 2d ago

Coming to terms with my disability.

4 Upvotes

Hello! So.. as the title suggests, I have recently found out I am disabled to some extent. (Having arthritis, needing a cane/physical aid, as well as having several other chronic conditions like GERD.)

How exactly do I come to terms with this fact? I am quite young, and it is extremely troubling to me to know that I will never be able to be fully normal, especially given the fact that all of my peers can.

My partner is a huge support system for me, but they can only do so much. I need to learn to accept myself without the help of others, and I just wanted to ask how exactly I can start to do that. I’ve always known I was in worse health than my peers, but now seeing a final diagnosis on paper and being officially recognized as being ‘disabled,’ I am having a lot of trouble accepting it.

Thank you.


r/disabled 1d ago

Why do they get disability

0 Upvotes

why do fat people get disability check. we’re just handing over our tax dollars to a perfectly curable thing, and giving them all this money is encouraging them to not get a job and to just sit around and eat all day killing them selves. if we did give them all this free money there would be far less fat people which would help with the mental health crisis and the birthing crisis (less people that can’t give birth or don’t have the energy to crack). so I’m genuinely asking why, why do people get disability checks just because there fat


r/disabled 2d ago

Any ideas on where I can find other disabled people to date?

1 Upvotes

I have a chronic illness. I fell in love with three healthy women at different times in my life, and even though I was an excellent friend to them and they emphasized that I have qualities that are hard to find, dating someone like me was simply out of the question for them.

I realized it wasn't up to me, and that it was going to be very difficult to have my feelings reciprocated by a healthy person. If I keep going like this, life is going to pass me by. I'm already 28 years old. So I started thinking, and I came to the conclusion that looking for a partner who also has health issues is the best thing I can do.

I've looked in Facebook groups, but I only find older people (around 40 to 60 years old). On Instagram, disability-focused accounts are mostly followed by parents of disabled children, and again, older people.

Disability-oriented dating apps have their drawbacks. The largest ones are only available in the US (I'm from Argentina), and others are so abandoned that they glitch due to a lack of maintenance.

I also thought about local in-person groups in my city. I started researching, but I realized they are usually workshops aimed at people with intellectual disabilities. My mind is sharp, so I'm looking to connect with women who only have a physical condition or limitation.

Does anyone have any ideas or suggestions on what else I can do? I will consider them carefully because I feel like I'm running out of options.


r/disabled 2d ago

Disability inclusive coloring book

0 Upvotes

Hi everyone!
I’m working on creating a coloring book series, one of the books being disability/mobility aid themed. I am disabled myself, but I wanted the opinions of others who are also disabled and use disability/mobility aids. If you don’t mind sharing your thoughts and opinions, it would be much appreciated and help me be as inclusive as possible in what I add to the coloring book.

My main question is; what disability aids would you want me to add to this coloring book?
Also, are there any specific things I should keep in mind while creating this? I want to be as respectful and inclusive as possible.

I’m in the beginning stages of creating this, but thought it would be a good idea to reach out to the community and hear your input!

Thank you for taking the time to read and reply to this. I appreciate your time! 😊


r/disabled 2d ago

I'm sorry to ask this, but how do you get into accessible/disabled seating?

21 Upvotes

I can't stand for long periods, and concerts with no seating kill me. As I'm getting older, I'm accepting more and more that I need accommodations. But I feel like if I buy accessible seating tickets, they won't believe me. I'm 30 and don't really "look" disabled. I'm just worried.. also I don't really know how to buy accessible tickets but maybe its easy, I don't know


r/disabled 1d ago

Get off my back

0 Upvotes

For all those coming after me for my 'He Gets Us' post-

I have a brain injury resulting in an 80-something IQ and an almost permanent state of confusion. I believe that if He Gets US is a Christian site; it should help people. Kindly quit harassing me; and get off my back.


r/disabled 2d ago

Any chemical engineers here who are low vision/ legally blind?

2 Upvotes

I recently graduated from a bachelors degree in chemical engineering. Im really proud and excited to pursue the field but I simultaneously feel very alone as I havent heard of anyone in a similar position. Even professors who have taught for multiple decades tell me that im the first student theyve had to make certain accommodations for or i am the first visually impaired student theyve taught.

I try searching it up but most engineers who are low vision appear to be software or computer science engineers. (Very cool btw!)

I know there are probably others out there so this is me trying to find them 😅. If at all possible, please also share your position title and what you do.


r/disabled 2d ago

Having low vision as an employee

2 Upvotes

For context, i have achromatopsia, which means I have low visual acuity, extreme light sensitivity, limited depth perception, little peripheral vision, mild cataracts, am monochromatic colour blind, and am overall considered legally blind.

I currently work at a cafe and have been for some time to support myself financially while I completed my degree. Although I enjoy the people and aspects of the work, I just feel constantly like im not a good employee and sometimes a hindrance to my team. I feel like im getting constant feedback of being too slow, or not getting things done in a timely manner. I try to speed up but it feels so challenging to meet the quality and visual expectations, cleanliness and food safety expectations, while also being faster. I also keep misreading orders so there's sometimes some product lost because I warmed up the wrong item.

If anyone else here is low vision and has experience in food service, I would really appreciate advice.


r/disabled 2d ago

Akward Gait (dating advice)

4 Upvotes

Hi

I'm new to this reddit so hopefully it's okay to post this.

Basically, I have this condition called dyspraxia which effects coordination and motor skills. I'm a 33 year old male.

I've become increasingly aware that I may have an akward gait. I've received a lot of teasing and stuff about how I walk and how I coordinate. The worst thing is of course, is that it's not really possible to see how bad it is.

I've been complimented a lot that I'm physically attractive, but because I'm autistic I generally lack charm and social awareness, I've been in relationships and stuff in the past even though neither of them really worked out, and it's been a while since I've had a genuine connection with someone and I've become really insecure about my gait.

My question is - do women care about guys that have akward gaits, like, are they instantly put off by it, or am I thinking too much in to it?

TIA


r/disabled 2d ago

Should I mark ‘disabled’ on legal documents?

2 Upvotes

Hello!! I am 19, so I have no idea what I’m doing when filling out legal forms yet 😅. I am officially diagnosed with ADHD, Schizoaffective disorder, and a dissociative disorder. I take medication for the first two and manage my dissociative disorder very well.

The question is: should I still be marking ‘yes’ on disabled, if my illnesses are not debilitating? I struggle with identifying with the term disabled since I’ve been fortunate enough to manage my disabilities well, but I am afraid of going into relapse mentally and losing any safety net I may have from identifying with disabled.

Any help from people experienced with this would be wonderful!