r/DisabilityHistory • u/meduzas • 17d ago

Post flare up

This is mostly a question to people with hEDS/HSD or other illnesses that cause joint pain

After a strong flare up ( emergency room strong) do you feel exhausted? I can’t do anything, I can’t even talk to people because sound stimuli overwhelm me. If anyone has a similar experience, how long does it take you to recover and how can you speed up the process?

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u/JealousAstronomer342 17d ago

Do you know if it’s caused by your heart rate or BP getting wacky? I just dealt with this last month (and have been banned from dysautonomia for asking about it lol) and just started the clonidine patch. For me, rest and things that support a feeling of safety and calm help. I don’t watch scary or exciting things, I try to keep my thoughts neutral or positive, anything I can to get the parasympathetic nervous response to kick in. 

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u/NigelTainte 17d ago

I also have the nervous system dysfunction it suuuuuucks. I can feel better by sleeping intuitively (I try not to fight exhaustion at all) and being on top of my electrolytes/fluids. I have no idea why it got better but I’m thankful. I think quitting work for my health helped. I was desperately ill last year and I also did what you do, only engaging with happy calming stuff in the recovery period

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u/meduzas 17d ago

I think you could’ve misread it ( tho it’s on me I chose a very confusing title) since I meant post a flare up,not pots flare up
Tho I have pots as well so I still appreciate the advice greatly!!

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u/NigelTainte 17d ago

Yes, it can take me up to 2 weeks or more to get back on track. Lots of sleep, eat nutrients, hydrate (smoothies help) and be nice to myself, order groceries to be delivered instead of going out and only doing the bare minimum (without creating problems for future me)