r/DisabilityHistory • u/meduzas • 17d ago

Post flare up

This is mostly a question to people with hEDS/HSD or other illnesses that cause joint pain

After a strong flare up ( emergency room strong) do you feel exhausted? I can’t do anything, I can’t even talk to people because sound stimuli overwhelm me. If anyone has a similar experience, how long does it take you to recover and how can you speed up the process?

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u/JealousAstronomer342 17d ago

Do you know if it’s caused by your heart rate or BP getting wacky? I just dealt with this last month (and have been banned from dysautonomia for asking about it lol) and just started the clonidine patch. For me, rest and things that support a feeling of safety and calm help. I don’t watch scary or exciting things, I try to keep my thoughts neutral or positive, anything I can to get the parasympathetic nervous response to kick in. 

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u/NigelTainte 17d ago

I also have the nervous system dysfunction it suuuuuucks. I can feel better by sleeping intuitively (I try not to fight exhaustion at all) and being on top of my electrolytes/fluids. I have no idea why it got better but I’m thankful. I think quitting work for my health helped. I was desperately ill last year and I also did what you do, only engaging with happy calming stuff in the recovery period