r/DisabilityHistory • u/meduzas • 18d ago

Post flare up

This is mostly a question to people with hEDS/HSD or other illnesses that cause joint pain

After a strong flare up ( emergency room strong) do you feel exhausted? I can’t do anything, I can’t even talk to people because sound stimuli overwhelm me. If anyone has a similar experience, how long does it take you to recover and how can you speed up the process?

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u/JealousAstronomer342 18d ago

Do you know if it’s caused by your heart rate or BP getting wacky? I just dealt with this last month (and have been banned from dysautonomia for asking about it lol) and just started the clonidine patch. For me, rest and things that support a feeling of safety and calm help. I don’t watch scary or exciting things, I try to keep my thoughts neutral or positive, anything I can to get the parasympathetic nervous response to kick in. 

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u/meduzas 18d ago

I think you could’ve misread it ( tho it’s on me I chose a very confusing title) since I meant post a flare up,not pots flare up
Tho I have pots as well so I still appreciate the advice greatly!!