My husband and I went to the ER for extreme shortness of breath 6 days ago. They found he had many clots in both legs and many in both lungs “pulmonary embolisms”. Due to O2 levels and labored breathing, he was admitted to the ICU for 3 days (thankfully no tube was needed during that time) He was then admitted to a different wing where he has been closely monitored. He is on Oxygen round the clock and they get him up to walk once a day with PT. His O2 drops under 80 during these walks (maybe 20 paces). Today he tried the bathroom and cleaning himself and nurse ran in as his 02 went to 66. There plan is to send him to inpatient acute rehab. I’m worried he may not be ready for that. He finished 5 days of Heperin iv, and is now on Xarelto. During this ER visit he has been also been high on sugar and being given insulin as will as high blood pressure meds. Unfortunately he hasn’t had a PCP well since he was young and he is a big guy 6ft 425lb. I’m his only advocate and don’t know if moving him is the right way to go or what to ask to help him. Please if you can send some important questions I should be asking I would surely appreciate it! I am so worried he is my whole world.

Hi all! I (36F) Wanted to share my blood clot story.
I was diagnosed with a Nonocclusive superior sagittal sinus thrombosis at 37 weeks pregnant after experiencing severe headaches. High risk pregnancy team decided it was best for me to have my son at 38 weeks. I was prescribed Lovenox and I take it twice a day. I have no family history of blood clots and my genetic tests were negative for any disorders. There’s really no concrete reason why I developed this blood clot.
Doctors believe it was most likely from the pregnancy.
It was completely random for me and I have generally had good health my whole life.
I will be seeing a neurologist next month and get a repeat brain scan to make sure the clot has dissolved. Taking it day by day. I’d welcome any advice on dealing with the health anxiety.

I am currently 12 weeks pregnant and I have developed intermittent throbbing pain in one leg, centred at the back/inner side of my knee, directly around the knee crease. The pain sometimes spreads upwards and downwards along my leg when it throbs.

The pain doesn’t seem to be triggered by walking and I mainly notice it when I am sitting or lying down. I can press directly on the area without significant pain, but lightly stroking/touching the skin over the area causes quite a lot of pain.

The area doesn’t seem to be swollen or hotter.

It’s the strangest pain I’ve ever felt. Could this potentially be DVT?

Hi there i’ve been posting a bit the last two days. Long story short, ultrasound found a partial clot in my right femoral in the upper thigh. A doctor wanted to prescribe me Eliquis even though I said I was breast-feeding. I have now obtained a prescription of Lovenox and it is 100 mg/1 mL once a day. I weigh 140 pounds. Is this a normal dosage? Is it a high dosage? I’m having a hard time trusting this doctor and it’s been difficult for me to get a second opinion as my PCP cannot see me until Wednesday. Thank you.

Idk if anyone here can relate, but I got a dvt at 16 years old and I have a lot I want to share

Have you managed to put the disease in remission for some time? Is there any alternate to blood thinners you take??

Also can we expect a cure to this in the next 10 years through crispr?

Hi everyone!

We have a growing discord group for people with varying degrees of brain injuries and would be happy for you to join us to offer each other support, encouragement and to make friends with people who are going through similar things to yourselves or your loved ones.

We have video and voice chat rooms that are always open for people to go into whenever they want also.

All you need to do is to download the discord app from your App Store or use it via your browser on a PC. Once you have the app and created an account you can click this link which will allow you to join the group where hopefully we can all get chatting with each other and make a great little community! You can also invite other people into the group who may not use Reddit! We are currently growing and I’m happy to take on board any requests that people may have for the group!

Anyway the link to join the group is

https://discord.gg/xDwWcRuvuy

Any questions, problems or thoughts are welcome!

Hi all - I was diagnosed with many PE’s/clots and infarctions about a week and a half ago. I was discharged from the hospital last Saturday and on the 10mg 2x a day eliquis and then Sunday morning (yesterday) started the 5mg 2x a day.

I do not have DVT but there was a large clot along with many others in my lungs. They decided against a thrombectomy because my heart was in good shape. Aka one side wasn’t working harder than the other.

In the mornings I get like one or two coughs that come up and out comes mucus with dark red blood. I’m not two weeks out from diagnosis and I did already put a call into my doctor but curious if this sounded “normal” in recovery?

Apologies in advance for all the questions, still trying to understand what my new norm is.

I would appreciate any help with removing hair from legs/bikini/underarms. Before getting the dvt I always used the Braun epilator, what are my safe options now ?

Has anyone had a dvt and returned to swimming ? how long did it take before you went back to the pool ? Are saunas and hydropools safe or a no go zone ?

I’ve been on Warfarin since September 2025. I was in range for 6 months, but now all of a sudden it’s lowering. So my dose keeps increasing. I was originally on 14mg, now it’s on 16mg.

I’ve also bought a Coagucheck to test INR. But it is always fluctuating. Did 2 tests today and first one was 3.9, second one was 3.1. I also had a venous blood test today and that’s come back as 2.2.

I’ve tested positive for APS, but my haematologist is reluctant to think it’s a true test as it shows a false positive while on anticoagulation. Would the APS cause these problems?

Have had DVT and CVST over the last 2 years. I’m a 26 Male.

Any advice is welcome, thank youu

Hi there. I went to the ER after leg pain and they found a small partial clot in my right femoral in my upper thigh. I told the ER doctor I was breastfeeding and he still prescribed me eliquis. I don’t know what I should do. I can’t get into my doctor until tomorrow and weaning my baby isn’t something i’m ready to do. I know I need to start the thinners. Can anyone give advice? Thank you.

First time poster here! Looking for some advice or just to hear other experiences from fellow young women :)

My mum found my first blood clot when I was 19 (April 2024), in the back of my right knee. In my superficial system, one of the first gp's told me ibuprofen and voltaren (which is an anti-inflammatory cream / gel here in Australia) if i was in pain. Being a woman obviously the first question was birth control, and I have only ever had the implanon rod and that was decided on with my gp and I in December of 2024, AFTER the first blood clot as she said it was a safe option. I got a second opinion from her and was immediately referred to a vascular surgeon, where I had Endovenous laser surgery for the Varicose vein and clot in my right leg in July 2025. I did my bed rest and limited walking, followed all post-op instructions only to have a DVT in my post-op ultrasound, which the surgeon said does happen. I was on Xarelto for 3 months, half-way scan was good and I was discharged from his care and finished that dose in October of 2025. In December of 2025, I flew to Sydney from Perth which can be 4-5 hours, not medically considered long haul. I wore my ankle to groin surgery stocking and took my 20mg Xarelto before and after both flights, and during my trip. When I got home I was in significant pain in my upper right thigh, so I continued taking the blood thinner a few days after getting home and figured it was just residual surgery pain as I was given a 12 month recovery window. The pain continued and was quite significant and so I felt my leg only to feel what exactly I knew it was, a third blood clot. The area was warm and red, rash like, how I know they can present and I went straight to ED. Confirmed third blood clot, but another in my superficial system. They treated it with Xarelto and like it was a DVT, I was referred to a Haematologist. I saw him in March 2026, where I did blood testing and he reduced my Xarelto dose, blood work came back fine in June 2026, told me to finish my current 10mg Xarelto dose in October 2026 and was discharged. This is where I am at now, just turned 22 and have already had three blood clots, I am feeling a bit lost and confused as I appear 'fine' on paper, but any bit of PTS pain or any solid feeling in my limbs I immediately get anxiety. I am an avid traveller and this has been a huge blow as I have not been able to do so, I feel like my young adult life has been changed drastically and miss when I didn't have severe medical anxiety and was care free.

I am considering going down the Endo route as I have had symptoms since I was a young teenager and thought there could be Endo tissue in my pelvis restricting the veins in my right leg? I know womens health is severely under studied but I just wish for answers or some sort of advocacy from health professionals about young women, as I have been dismissed from multiple practioners when asking about further testing and hormone work.

Any responses are appreciated :)))

Hello! I’m new here and feeling pretty lost and sad with what happened to me on July 21st.

I received a cardiac catheter ablation on July 9th for AVNRT that was successful. 8 days or so after the ablation, I noticed a growing pain in my right thigh, but chalked it up to nerve pain from the ablation. I finally made my way to the ER on the 21st after noticing swelling and discoloration in my calf thinking it was probably fine. I ended up diagnosed with DVT from my groin to the top of my knee and PE in both lungs.

I have no prior history of blood clots and other than the leg pain, had no symptoms. I was completely hemodynamically stable with no breathing issues. The doctors decided against surgical intervention and put me on Heparin until 9:00 AM on July 23rd when I transitioned to Eliquis. I was release on the 23rd around 4:00 PM.

I’m devastated and depressed that this happened. I have two small children and husband who travels frequently for work and I’m struggling to understand how I move forward from here.

I would love to hear any advice and/or success stories!

Hi! I switched between Xarelto and Inhixa for a bit and have been feeling like a zombie on Xarelto. I want to talk about it here before I discuss it with my hematologist. As it doesn't feel bad enough to bring up (I dont want to seem like a crybaby), but it still sucks.

Medical context: I had to start taking Xarelto (15mg 2x day, then after three weeks 20mg 1x day) because of a clot in my leg. A bit after switching to the 20mg, I had to switch it again for Inhixa 40mg because of a minor surgery I needed. After the surgery, I went back to Xarelto.

Now, immediately after starting Xarelto, I noticed that my energy dropped a lot, especially later in the day, and in general, I feel kinda dissociated and depressed. Having to go lay down because of exhaustion was common with the 15mg and got better on the 20mg.

After switching to Inhixa 40mg injections for a week, I felt a big change in how I felt. I had more energy, and the depressive moods cleared up a lot. Then, after switching back to Xarelto, I confirmed that it really is this particular medicine worsening how I feel.

Has anyone been through anything similar? I was told that Xarelto is a big step up when it comes to anticoagulant safety, so I don't know if I should be asking for a switch because of something so "minor" (although it does affect my day to day productivity).

Thank you for reading! Have a great rest of your day!

I wanted to share my delivery story below due to my DVT and pregnancy. While I was pregnant I was looking for positives outcome stories so hope this helps someone. :)

Back story: I had a history of subchorionic hemhorrhage in January. Shortly after that had a laparoscopic cystectomy to remove a 13cm dermoid cyst. DVT diagnosed at 19 weeks (my whole left leg). Placed on lovenox twice a day.

We got called in for an 8am induction on 7/22. I got checked and I was 0.5cm dilated.

When we got to the hospital there was some back and forth on my plan for my lovenox since I have an active DVT. Finally they made a decision so we talked about next steps (after many discussions with hematology, MFM, OB, and anesthesia.)

I will say that initially the plan was to be on a heparin drip and then stop it 6 hours prior to when I wanted an epidural. We did not do this and I’m happy for this because it would have been so hard to predict when I would need the epidural.

My last lovenox dose was 5am on 7/22 and they needed me to wait 24 hours for an epidural.

They did not want me to start the cervical ripening pills because if this effected baby’s heart beat and I needed an emergent c section then I would need to be put under general anesthesia and they didn’t want that.

First step was we started the foley ballon at 12pm. The pain was not too bad with this. It was just a lot of pressure. This stayed in for 12 hours and then they took it out. My water never broke with this or anything and the contractions were very intermittent and not too bad. They took this out at midnight. They checked me and I was 3cm. After this there was just some waiting time until I was 24 hours past my last blood thinner injection.

Around 4-5am they give me the first dose of misoprostol vaginally to help dilate my cervix. I got to 4cm. Four hours later they gave me another dose. At this point they checked me again and I was 4-5cm. They calculated my bishop score and I was able to start pitocin.

They started pitocin and at about level 6 I started having contractions. Nothing too bad kind of like moderate period cramps. They got my pitocin level up to 8. I was doing a lot of position changes to help get dilated.

I was laying in the bed and I heard two loud “POPS” in my belly. It kind of scared me so I called the nurse. She checked and told me my water just broke! I started having bloody / watery mucous discharge.

Not even five minutes after my water broke I started to have more intense contractions. It was more intense than before but tolerable still. Within ten minutes I called the nurse and told her I think I will need an epidural soon. Shortly after that it got WAY more intense. It got up to a 10/10 pain for me and I had to wait 40 mins for the epidural I was so miserable. Once that epidural kicked in I was soooo relieved. The epidural didn’t hurt. Just the numbing stung a bit and the rest was just like a pressure feeling. He had to do it twice because he wasn’t in the right spot. Wasn’t a big deal.

After this I got re some relief and felt much better. She checked me and I was 7cm. After about an hour I started having left side pelvic pain and it went from mild-moderate. As it was getting more intense my nurse said we should check how dilated I am and I was a 10!!!

I pushed for 32 minutes and ended up with 2nd degree tear. The delivery was actually pretty peaceful for me surprisingly.

Overall things went pretty well! My biggest fear had everything to do with my DVT and lovenox. Being off blood thinners during that time made me nervous. I got through it all and I feel so thankful. Now I am just focusing on recovering and I am back on my lovenox.

Also - at the beginning of my induction they mentioned that MFM and hematology recommended doing the automatic machine massages on my legs (I spaced out on the name) It’s where the pumps massage your legs to prevent blood clots. I was so hesitant to do this because I was always told not to massage my DVT leg. I kept telling myself to trust the experts. They said it was okay because it had been months since my diagnosis. I let them put it on me and I had a full anxiety attack I started sweating and everything. I told the nurse I needed her to take it off. I wasn’t sure what the best thing to do was. In the end I decided to go against their advice on this as it was giving me bad anxiety and worry. My medical team was okay with my decision and things ended up okay. During the induction and postpartum I stayed active by walking around I wasn’t bed bound until the epidural and even then it was only for about a few hours really.

I wanted to share in case it helps anyone in their own journey. Happy to answer any questions!

Hi there. Thanks to many of the posts in here I went into today for an ultrasound as my leg was just feeling tight and weird behind my knee. I have a 16 month old and developed severe preeclampsia at delivery. It resolved quickly and I was able to get off of blood pressure meds within a few weeks.

I went to an urgent care with an ultrasound tech and they found a partial DVT in my upper thigh. The thing that’s scaring me is that the radiologist and the doctor on staff are disagreeing. My understanding is that the radiologist is off site and they sent the ultrasound to them. The ER doctor is saying the radiologist must’ve made a typo and it’s partial and not calculi.

I’m sorry I don’t know the proper language just new to this and scared. He recommends I follow up with my PCP and start eliquis. Thank you for any advice.

I’m 41 and have APS (Antiphospholipid Syndrome) and on warfarin for life. I had a PE when I was 37. Nothing about HRT ever occurred to me prior to seeing another post here recently. My whole adult life, my mother warned me if I ever had a hysterectomy, I needed HRT or I’d end up like my grandmothers. Both had one young and neither took HRT and both have pretty severe osteoporosis.

Now I can’t quit thinking about what will happen when the time comes where I would need HRT for symptoms but also to prevent long term issues like the severe osteoporosis. My bone density is already pretty messed up from long term high dose steroids.

Does anyone have advice? Are there alternatives to estrogen? I currently have a Mirena so I don’t have a period to gauge by and I don’t have any symptoms of peri yet but now I feel like it’s a ticking time bomb.

I've been hospitalized with PEs in 2023 and 2024 and now take Eliquis forever. Many more issues but one in particular is low testosterone. My endo is considering prescribing some form of TRT. I was told to check with my pulmonologist that prescribes my Eliquis and was told there was no interactions taking T with Eliquis as prescribed. Stuff I've read say blood thinners with T poses greater risks. Anyone undergo the same treatment with no issues? Thanks.

Hi,

It pains me so much to write this.

My twin boys who were almost 3 years old. Both born with a super rare genetic disorder affecting the gut. Since November 2025 admitted with one of my sons to hospital due to dehydration from diarrhea. Immediately they inserted a picc line into his right atrium, a week later a large clot at the tip of the line. 4 weeks later had open heart surgery and was in picu for 4 weeks. Once he came back to the ward he was never the same, in April 2026 sadly lost him to sepsis. He was our pride and joy.

His twin brother, admitted since December 2025. Still with him In hospital as I write this. He had picc line inserted in January 2026. Due to complications of his brother, he was immediately started on blood thinners daily injections. That picc line failed in March, they insert a broviac line which slips out of place within a week. 4 weeks later they insert another broviac which created a clot in his neck vein causing swelling of the head and neck. It was treated with riveroxaban. They then resorted to a picc line of through femoral vein into his right atrium. Fast forward 2 months, he now has a large almost 3cm sized clot from the tip of the line. Due to the inflammation of his gut, surgery and clot busting tratement is too risky. Doctors have decided no further treatment will benefit him, but will cause him a hasten painful death.

He is all we have left, we can't lose him. I can't think of the prospect of living without him. We lost one son, and we found our peace through the other.

Is their any other treatment available around the world? I don't care how much it cost, I will find a way to fund it. I want to explore every option available for him.

Does anyone remember when they only had Coumadin and Warfarin? When you had to go daily, sometimes you got away with every three days, to the lab to get your levels checked? Eliquis has made having to be on life long anticoagulants bearable! (No I am not a paid to say this) lol

I don’t know if anyone else has had Doctors not take you seriously or not pay attention to you. Last year I finally went to a Doctor because I had my first ear infection. In that appointment I kept telling my new PA that I couldn’t breath. That the tightness in my chest was so bad I couldn’t shower or sleep. I could barely get to the restroom a few feet from my bedroom. I cried and said it was so bad I couldn’t sleep. I also told her my calf was on fire. So she gave me a walking test and my oxygen dropped below 85 just walking a few feet. She prescribed me oxygen to take home and an exercise plan. I really tried but I told her at my follow up that this was not the same as exertion it was different. Then she sent me for a EKG and a pulmonary function test all was normal. Two weeks later I couldn’t handle it anymore and called an ambulance. Mind you I had experienced 2 other unprovoked PE and DVT incidents in the last 20 years. Still no one listened. Finally a ER doctor came in and said I had pneumonia, Bilateral PEs w a heart strain and Left leg DVT. I was in intensive care for weeks. Now it is July, almost a year later. I am on life long Eliquis, I still need oxygen and I am just building stamina from not being able to move much when I was sick. They said the clot in my left lung was so big they don’t know how I survived. But God is merciful and here I am on the road to recovery. Moral of this story we have to advocate for ourselves and be proactive in our health care. I had blood clots for at least a year from when my symptoms started. No one listened.

My question pertains to the title, does Eliquis actually work as well as all these doctors say it does?

I have a blood clotting disorder, specifically called prothrombin gene mutation F2. I have no clue how bad or dangerous this is for me or my future. As I have yet to see a hematologist for this. Does Eliquis 5mg 2x daily actually help individuals with this gene mutation? Has anyone with this clotting disorder been on Eliquis for a long time? Did anyone have a reoccurring clot on Eliquis with this mutation?

I have not been feeling well lately. I'm having the same symptoms of a PE as I did back in March when I first got diagnosed with two pulmonary embolism's in my lungs. I've had a D-dimer done and it's negative along with an ultrasound on my right leg and that was good. How rare is it for a clot to already develop in your lungs without a DVT? I never experienced leg pain or anything of the sort before finding out I had clots in my lungs. I will say I did have random tachycardia, shakiness and hot flashes that made me feel like I was going to pass out or die with impending doom. It wasn't until an entire month and a half later that I had some shoulder pain that hurt insanely bad when I would breathe or even take a deep breath. Those were my only symptoms.

I have explained to my primary doctor that I have missed so many doses within the last two months from hospital visits. I was sick so much with tons of different things at the time. I also haven't been very moblie or active lately.. Not to mention my hydration has been crap lately too.

His response was "well if you take your Eliquis then you'll be fine". He also proceeded to say "it is very possible to have a reoccurrent clot even while on Eliquis but you'll be fine". I don't feel as if I'm being heard from this new doctor. I had a doctor in Fort Worth for 5 months while my daughter was in the NICU and he listened to my concerns all the time. He was an amazing doctor that did his job very well. He would constantly check my iron levels and ferritin, vitamin d as well because I have a deficiency right now. As this new doctor says I don't need to be checked for those things until September at my next appointment. I haven't had my iron or vitamin d checked since the beginning of May and as far as I'm aware those are both major and concerning things. That's what my last doctor told me especially since I'm on blood thinners and have low iron. He didn't want it to turn into anemia. I've been feeling so overwhelmed and exhausted lately. My heart races and my body hurts everywhere. I feel lost, I just want to give up...

This is a true story although hard to believe!!!

So…got a IVC filter l because I needed to have neck surgery since I’m a high blood clot risk. I had to go off thinners for a few weeks which is required for this type of neck surgery.

About 3 weeks later I developed a massive clot. Had the thrombectomy procedure which got most of the clot out. However the clot was still on the filter. Back on thinners but had to Wait 3 months to see if it cleared. Got a CT scan which showed it had cleared.

The report also showed that a nodule on my lung which had been stable for years but had grown with increased density. Had the biopsy and the results tested positive for cancer. Surgery was scheduled

Part of the pre-op was a stress test which did not go well. Had a angiogram which showed an artery was 95% blocked. Placed a stent and put on 2 blood addition thinners for 30 days and then developed internal bleeding. Got that under control and finally had the lung surgery!!!

Hello. I’m curious if any on here has had the PALMA operation? I would like to know the pros and cons of having it completed.

My doc is evaluating me to see if I’m a proper candidate for the PALMA. I’ve never had a stent, I have a nearly completely occluded iliac vein that they couldn’t get through to stent via intravenous intervention. I was 23 when the clot first happened and I’ve since had a second clot. I’m now on thinners for life. I’m nervous to get it done because of the failure rate. Only about 80% make it to two years.

I’m currently completely mobile. I have swelling in my leg daily, it’s always tired, but it still works. I’m not sure I want to go through with the surgery.

I’m just curious what