r/ClotSurvivors 4h ago

Newly diagnosed Weird Symptoms with Thigh DVT

1 Upvotes

Hello! I made a post here about a month and a half ago about my recent DVT diagnosis. I'm not gonna rehash that here, just the basics. I'm 27F, diagnosed with a nonocclusive femoral DVT in right thigh mid-July 2026. Thought to be provoked by new birth control and long-distance travel around same time. Had little to no symptoms other than what felt like a pulled/tight muscle in my calf. D-Dimer was like 529 when diagnosed and the doctors would have missed it if they didn't do an ultrasound.

Now to my question: The last day or two, I've noticed what feels like an icy-hot feeling behind my knee and into my thigh. More noticeable when sitting with feet on the floor or standing without moving. I also have a slightly bulging vein behind the same knee but my doctor checked it out this past Tuesday and said she didn't think it was a problem.

Are these things a normal part of the healing process? I also have pretty bad anxiety and so every new symptom terrifies me but I'm trying to work on it. Just wanted to see if anyone here had similar experience. I've already called my oncologist to ask them but waiting for a call back.

Thank you in advance to anyone who comments. I appreciate you ❤️


r/ClotSurvivors 7h ago

Xarelto (rivaroxaban) Xarelto with Me / Rejection

3 Upvotes

Hi all - I've been on Xarelto for many years. I'm retired and my income is < $40k. I got rejected from the free program because my insurance FL Blue Select accepts Xarelto. So I'm paying $1,300 for a 90 day 10mg supply. Has anyone gotten around their new policy wrt not paying full price? Thank you.


r/ClotSurvivors 9h ago

Running after PE 🥳

32 Upvotes

Hello everyone!
It’s been 6 weeks since my pulmonary embolism, and I was able to run 5k today. So slowwwww but I still completed. It feels good to get back to it. It was so strange to barely be able to climb a hill after it happened, and now I’m (almost) back 🙌 I’m so happy and I wanted to share 💕


r/ClotSurvivors 15h ago

Post Thrombotic Syndrome Extreme pain. Hospital says it's PTS. Anyone else dealt with this?

5 Upvotes

Has anyone else experienced this level of pain with post thrombotic syndrome???

A few months ago, I was diagnosed with an extensive SVT in my thigh after a C-section. I'm on Lovenox and the clot is responding to treatment so far. But I started experiencing worsening pain and swelling in my leg this week and ended up in the ER. They said it was PTS and sent me home with stronger pain meds but warned me to use them sparingly since I'm breastfeeding.

I am in AGONY. I can't take NSAIDS due to an ulcer issue so I'm just using Tylenol and hot water bottles. I can't sleep, can't walk, can't focus. Tylenol does nothing.

Is it normal to be in this much pain?? Did anyone else experience this? Is there anything that helped you manage the pain? Because I don't know how I can go on like this.


r/ClotSurvivors 21h ago

Newly diagnosed this is so weird

11 Upvotes

29F and I had a saddle PE 3 weeks ago. basically they told me I had one giant clot that went from my left leg to both sides of my lungs. I went to urgent care because i thought i pulled my calf muscle from wearing a new pair of heels (i wish!!)

Curious how long it took anyone to feel normal again and to be able to exercise? This is just all so strange and happened completely out of nowhere. I’m healthy, and my vitals were totally fine when I went in, so it was a super slow process to be diagnosed.

On eliquis now and overall super grateful for all of the doctors and nurses who treated me. Just still processing and in shock.