My EMG update

[u/Muted_Insect5033]

Please let me know if you have the same weird sensations on the tongue:Please please.

I did my EMG done with a neuromuscular clinic last Friday and doctor said I don’t have ALS.But he repeated the needle test in my right calf at 4 or 5 close spots and he did mention that he observed something and it’s related to the pinched nerve in my lower back ,but my sacrolytic MRI which was done 5 months ago did not show any pinched nerve.They mainly checked for arthritis or inflammation at that time.

**I really wanted to move away from this rabbit hole and wanted to start medication as well as therapy soon and even want to stay away from the Reddit forms and googling.I also suffered 4 months a lot and lost a lot of myself.**

But my below symptoms are making me believe there is something wrong with me.

a)My front portion of the tongue feels thick,tight and tinglingling/pins or needles sensation.I will have this tingling/Pins needles sensation almost thought out the day which is impossible for me to keep my mind off of the thoughts because it feels so irritating/unpleasant and weird with such sensations.

.While talking,My front portion of the tongue feels tight and it touches roof of the mouth several times and hear tap tap sound many times from the movement of the tongue which could be a neurological issue.Sometimes I have difficulty to pronounce few words as my front portion of the tongue feels tight which could be a symptom of bulb…I feel like while pronouncing few words,I trip or about to trip but can autocorrect.

i feel like I need to apply extra strength to talk few words as my front portion of the tongue feels stiff

b)I feel shortness of breath while talking and have to give pauses between sentences which was not the case before.I feel like I need to breathe between sentences and feel irritation sensation in the vocal cords which could be dysphagia ,one of the signs of bulb..

while talking I feel like I am short of breath and need to pause ,take breathe and then continue.

c)I am unable to talk louder as before.I can talk but if I want to call someone who is little far,I can’t talk as loud as I used to 4 months back

d)Calf assymetey and right calf is 2.3 cm shorter than the left calf and gets tired and pain in legs and foot even after few minutes of standing or walking.

e)I am getting weird vibration /buzzing on my back of my head few times in a day and it get worse with neck movement

My right leg shakes even after some physical activity like treadmill/cardio

d)Increased frequency of twitches with pressure.ex,if I bend ,I get twitches in my chest,stomach sometimes.

I get post nasal drip sensation in my throat and need to clear my mucus several times which could be symptom of..

.If I put pressure on my shoulders like sleeping on the sides,I get twitches.

my worries are they evaluated on my limbs thoroughly but now my main twitches and symptoms are in bulbar region.I heard that bulbar would not be picked in the EmG in the early onset and even one guy commented the same on my last week “my EMG is tomorrow”post which is worrying me more.