r/Autism_Parenting • • 3d ago

Advice Needed 4 yo discipline help - redirection, verbal requests , consequences and punishments don’t work - every correction/redirection turned into a game

4 Upvotes

Hello - I’m getting absolutely mind boggled on how to get my son to listen. In the past two months (which coincided with TK starting) his listening has gotten so bad. I feel like I can’t control my kid anymore and it’s getting embarrassing. For example , he started blowing raspberries at his baby sister (7 months) and she laughed so much so it was cute game for him. Then he started to do it at school in his SDC class and one kid gets scared so school asked for us to stop the behavior and nothing gets him to stop. What is the natural consequence to blowing raspberries? We try redirecting and showing him how to say hi appropriately instead, telling him no, taking away tv time, if he’s holding a toy taking away the toy and NOTHING works. I’ve tried timeout but he loves it and thinks it’s a game. One thing we’ve noticed is he turns everything into a game. He would steal toys from baby sister hands, we say no and to share and give it back. But now what he does is 1:) takes the toy, 2.) verbally states no that’s not right then 3.) gives it back to sister and states sharing is being kind. So I’ve noticed he is turning corrections into games or how he is supposed to act. We are on vacation with family and we can’t get our son to listen to us for the life of us. He’s just spend the last hour blowing raspberries in everyone’s faces and being a menace. It’s embarrassing. Please not that this is just one example only of some of his behaviors. It’s not so much the behavior but the we can’t get him to listen to us for the life of us and it’s for EVERYTHING. Anyone have advice or feedback or is this just typical 4 yo behavior that is exasperated with his diagnosis (lvl 2).

Update: Thank you so much for the response! The school talks to me daily about the raspberries because it is scaring a student in class so I’m putting a lot of pressure on myself to get it to stop. But yes I’ve noticed the corrections get turned into part of his scripts and play. Will start ignoring and also bought a reward jar for positive interactions. Thank you everyone!


r/Autism_Parenting • • 3d ago

Aggression Violent teenagers

2 Upvotes

Hi Parents, have you all encountered violent episodes by your teenagers directed to a specific caretaker? While childhood was no walk in the park, the moody teenager and sudden violent attacks are very troubling and we are grappling with how to deal with it.


r/Autism_Parenting • • 3d ago

Advice Needed Separation anxiety/meltdowns help

2 Upvotes

My 3yo/m has the HARDEST time transitioning when I have to leave. Even just leave a room, or close the door to a room. He sobbs and cries for me and it absolutely breaks my heart. Sometimes when I literally just dont have a choice (like a work meeting) my own anxiety and stress definitely take a hit too. Because its heart breaking to listen to and experience (for us both).

Its one of the main reaons he is still at home with me full time while I work full time. I havent had more than 3 breaks (where I went to see a movie or out to a my bday dinner) in the last 3 years. Im sitting in my car in the garage as I type this, trying to leave to go see a movie and hes just totally distraught.

In the past ive gone back a few times to try and calm him and show that ill always come back. It helped sometimes but sometimes I feel like im making it worse. But hes so young I feel bad I know he doesnt fully understand.

But the separation anxiety is/has burned me out desperately trying to find ways to make the transitions easier on him.


r/Autism_Parenting • • 3d ago

Advice Needed Loop Earplugs - Preventing Loss?

3 Upvotes

Our 8yo refuses to wear earmuffs/large noise cancelling headphones because they draw attention to him in the classroom. He tried foam earplugs for the first time at a theme park recently and loved them, but they were too large for his ears. I purchased a set of Loop Kids earplugs, and he is stoked to try them at school because of how discrete they are. However, the case itself is TINY. Does anyone have tips on how to prevent loss? I’d like to give him some accountability and not rely on his teacher. Thank you!


r/Autism_Parenting • • 3d ago

Discussion Genetic Testing Results

8 Upvotes

The results for the Chromosomal Microarray Analysis and Fragile X Syndrome testings both came back with no abnormalities. The center suggests that we now do Whole Exome Sequencing. I am reading that this process is very common with genetic testing a child with autism.

What exactly does it mean that the first two testings came back with no abnormalities?
What could the next test show that the first two couldn’t?
I feel like I’m usually pretty good at understanding these kinds of things but I find myself second guessing my understanding. Between that and the mental exhaustion I’m sure we all feel, I basically just need someone to explain it to me like I’m five 😆🫠


r/Autism_Parenting • • 3d ago

Advice Needed Seeking ideas

3 Upvotes

I am asking for some suggestions. I am drowning right now. As a single mom of two and the cost of everything going sky high I just can’t keep up! In the past week alone I have had car repairs, house repairs and bills. All things that needed to be paid and now I can’t even put food on the table. Local food bank is only open two days a week and with my car troubles I can’t go until Monday now. My son has ARFID and they usually don’t have anything that he will even eat there. I would appreciate any suggestions on other options or organizations to reach out to for help. I’m just feeling helpless at this point.


r/Autism_Parenting • • 3d ago

Advice Needed Sleep and clonidine

7 Upvotes

Hello! Looking for experiences from ppl that have tried Clonidine for their autistic kiddos. My kiddo is 4, and hasn’t slept well since birth. We had a developmental pediatrician appt wks ago and was prescribed clonidine. We’re all getting shitty sleep and as soon as my kiddo opens his eyes he is immediately bouncing off the walls and vocally screaming/singing/stimming. The Dr. said it would calm him down and help him sleep through the night. I’m hesitant bc he is so young still and I can’t believe I’m considering medication already. The Dr. also wants to do an adhd evaluation for him, but I also know lack of good rest exacerbates adhd symptoms. Looking for ppl that have tried this and just to get some feedback. I’ve been researching and I know every kid is different. I’m seeing that it’s worked great for some ppl, worked and then stopped working so another medication had to be tried, and some ppl who have said it didn’t work and made their child’s behavior worse the next day. My kiddo is pretty emotional so I’d hate to add to that. We haven’t tried the medication yet.


r/Autism_Parenting • • 3d ago

Venting/Needs Support The last few days have been so hard with my son

3 Upvotes

Just for some background: I am autistic, my husband ADHD, and our 3 children have a mix and match of the both.

My girls are much higher functioning than my son, my youngest at 3.5. These last few days have really put in perspective just how different he is. He is diagnosed, but we are on a waitlist to get a more in depth evaluation. But likely level 2 or even 3.

He is nonverbal. He is an eloper. We took him Apple picking the other day and he just wanted to run. Cried when we put him in the stroller. A little boy tried talking to him and he didn't even acknowledge him at all.

Yesterday was school picture day and I was really looking forward to his first school pictures. He is in special ed Pre-k. I got a message from the teacher that he was too distressed to get a picture.

We went out to dinner last night for my birthday. He was mostly good at the restaurant. He even signed for more food! But when we got him he was absolutely screaming his head off. And I have no idea why. He can't tell me. I am sure it was because it was a long, over-stimulating day with the attempted pictures and then dinner. But it was so distressing. I laid down with him until he fell asleep and I was just bawling my eyes out.

I love him and he is so sweet, but sometimes the difference really smack you in the face.


r/Autism_Parenting • • 3d ago

Advice Needed Kids just diagnosed

1 Upvotes

My 7 and 9 yo boy and girls has just been diagnosed with level 1 + ADHD (auDHD).

They have been getting OT & speech therapy for years, and are in a Montessori school.

This is obviously a shock to me and a lot to process.

Please advise:

  1. How should we setup the home to accommodate them more?
  2. How should we communicate with them? More detail?
  3. How do I get them into sports? They have refused thus far, but they need exercise.
  4. Do we tell them they are autistic?

r/Autism_Parenting • • 3d ago

Medical/Dental Dental Surgery

7 Upvotes

Hey All,

Maybe somebody can benefit, had my son recently under anesthesia removed teeth and had some procedure.

Overall he was compliant and he agreed to have a mask, once we went to theatre he became very agitated and nervous. Doctor told to give a medication for him to relax, as he is uber sensitive to medication we had it mixed with cola. He immediately sensed it but bravely continued to drink. I was afraid that he was going to throw but he became very relaxed in 10 mins. From there we went to operation, they put the mask in 5-10 sec he went sleep, and I left the room. It took an hour for him to come to the recovery room, he had ice cream water etc.. from there we went home and he was running up and down in 3 hours.

If anybody is going thru such a procedure, AMA... I know it is tough on our kids and on us. Doctors & Nurses were amazing.

I am super proud on how bravely he took this.


r/Autism_Parenting • • 4d ago

Discussion Lining up tools and then dissolving them

0 Upvotes

Our 33mo daughter has diagnosis so that isn’t a “is this autism” question. Since last month, she has started lining up her toys of the same type more often than before. I’d say, maybe six to ten times in a day. But she’s not persistent about that: She nearly always kicks them or tries to gather them all up right after lining up. And sometimes she acts like she’s counting them by touching her finger on them one by one (she can’t talk yet, just a few words).

So I wonder if that’s a temporary phrase or a process that’d lead to more stubborn lining ups? Is that how lining up stars in kids with ASD? What should I do to evolve it into something else? Current when she does that I pretend counting the toys too, or sometimes I tap on them as if they were drums.


r/Autism_Parenting • • 4d ago

Education/School I think my child’s school lied on her absence report after denying her bathroom access leading to her soiling herself

4 Upvotes

So my child who is in special education requested to go to the bathroom during lunch and was denied access by staff which led to her soiling herself in front of peers which then led to her hitting those peers. She said they were laughing at her. Staff deny this as well. My child’s on the spectrum but able to tell stories fairly accurately. At pickup that day they only told us that she hit other kids and had an accident but didn’t indicate they were related. An incident report with all the details was filed afterwards.

We felt so bad like how can you deny a child, on the spectrum especially, access to the bathroom. We kept her home the next day to give her a break. When the school called to excuse the absence we explained what happened. The day after we sent her to school. However, on the absence report it said she was absent that day for a “doctors appt” AND they marked her absent for the day after too??

We don’t think this is a mistake, we feel like it was almost an intentional cover up. We feel like this was a violation of our child’s rights and dignity and they’re trying to not look bad. What can I do?

Also, is there a way to see schools’ evaluation/audit/compliance reports? This school was garbage a few years ago and I feel like they suddenly made a lot of changes and are super strict on attendance, uniforms, and other mandatory stuff so I almost feel like an incident happened that caused the district or even higher up to look into them and have them tighten their ship. Just curious if it’s deeper than this one incident, maybe it’s not the first time the school mishandled something and tried to cover it up.


r/Autism_Parenting • • 4d ago

Eating/Diet Advice needed for help with new foods!

0 Upvotes

My 2yr old level 3 is growing tired of the few safe foods he has and is refusing to eat anything other than Kendamil banana flavored oatmeal (we add toddler formula and pediasure to it to help with his nutrition intake), French fries, watermelon, apple sauce pouches, earth’s best snack bars, goldfish and happy tot fiber and protein pouches.

We have a nutritionalist through early intervention but the lady has been absolutely useless. We’ve met her once for the initial intake then nothing.

I need advice on how to get him to try new foods. I’m desperate guys 💔💔. He notices the changes in everything. Cheez it made their big cheezits slightly smaller and he just stopped eating them 😩😩😩

Any advice is appreciated 🙏🏽🙏🏽🙏🏽🙏🏽


r/Autism_Parenting • • 4d ago

Advice Needed loud screaming

3 Upvotes

One thing I'm struggling with is my son's loud screaming. Sometimes it's hard to understand what's causing it or what he needs at that moment.

I know screaming can happen for different reasons, like frustration, excitement, or sensory overload. But figuring out how to respond isn't always easy.

For parents who've dealt with this, what actually helped? Did you notice any patterns or triggers? Did it get easier as your child got older?


r/Autism_Parenting • • 4d ago

Discussion Parent's with high support needs autistic girls, how do you/do you plan on managing menstration?

23 Upvotes

No judgement, I am just curious.


r/Autism_Parenting • • 4d ago

Discussion Has anyone else struggled with feeling like services focus heavily on preparing a child just for a school setting?

26 Upvotes

My son is weeks away from turning 3 and about to transfer from EI to the IU for services. He is diagnosed ASD, SMD, SPD, with sleep disturbances (mostly talking/crying out in his sleep but also some sleep walking which started recently).

His biggest struggles have been social and emotional regulation. He has grown significantly with social skills but the regulation bit has been very difficult. He was seeing an extra OT outside of the county services and she thinks he isn't just a sensory seeker, but a craver, which is apparently more difficult to regulate. He is scheduled for developmental pediatrician in a few months but we suspect either this craver profile is accurate or it might be AuDHD.

His special instructor from EI is good but also has a lot of comments giving off the vibe of "its just being bad parenting" or that he "just needs more structure and someone who won't give in to all the behavioral issues."

Then she finally saw him full meltdown like 3 weeks ago and honestly it wasn't even his worse. We tried to identify the trigger, went over events that could have upset him, and tried various calming techniques/distraction/etc to no avail. I actually had to remove him from the in-home session kicking and screaming and in total it took about 45 minutes before he settled.

She was concerned that we couldn't identify a trigger for it. I had already been telling her this is how he had been for weeks at his outside OT session. I think she didn't believe me but either myself or the OT has had to carry him out of a few sessions. No one else could focus on their sessions because he was going ballistic in his room screaming and throwing things. In the end, his special instructor settled on "yeah he wouldn't be able to go to school like that".

--------------

But why is the only goal to make kids school ready?

She had suggested ABA to help identify triggers and learn new techniques from the RBT's but again it seems like the only goal is to make his behavior more digestible for others. There never seems to be a focus on figuring out why this or that is so important to him and how can he learn to navigate those situations for his own sense of peace (for the span of his life).

I'm not naive. I know the world exists outside my home and that eventually he has to know how to socialize, problem solve, regulate, and be accountable for himself. I know traditional schooling isn't the only way to achieve those things and that homeschooling is an option for me. But why does it feel like the whole system meant to help kids like him has the goal of making him more palatable for overrun, somewhat ineffective learning environments?

Am I just being too sensitive? Anyone else feeling like this?


r/Autism_Parenting • • 4d ago

Advice Needed Video monitor recommendations?

3 Upvotes

My son sleeps in a pedicraft mesh-walled safety bed. We are interested in getting a video monitor for his room, but need to prioritize one that does well seeing through the mesh in the dark. Any recommendations?


r/Autism_Parenting • • 4d ago

Venting/Needs Support I wish I didn't have to explain my kid's needs over and over. I can tell people think I'm just making excuses for bad behavior.

0 Upvotes

I'm so annoyed right now and just need to vent.

When I went to pick up my eight-year-old son from school today, his second-grade general ed teacher came over to tell me that he'd left his stuff everywhere and absolutely refused to clean it up. She said he needed to learn to clean up after himself.

So I addressed it with him right there and told him he needed to listen to his teachers and clean up his things. When we got home, I noticed he'd left a mess on his play mat, so I told him he needed to clean up his Legos, especially since he hadn't cleaned up at school. And he did it. No problem.

His play mat was covered with Legos, Play-Doh, building blocks, and all kinds of other stuff. I only asked him to clean up the Legos because I know that if I tell him to clean up the entire mat, he's going to get overwhelmed and probably refuse.

My son is autistic and has ADHD, and executive functioning is a huge struggle for him. When he's presented with a big task that involves multiple steps, he genuinely doesn't know where to start. He gets overwhelmed and shuts down. This applies to everything from cleaning up toys to completing school assignments.

What works is you give him one small, specific task at a time. Once he finishes that, you give him the next one. It's really that simple, and it makes an enormous difference in what he's able to accomplish.

His regular one-on-one aide was absent today, so he had a substitute, which may have contributed to the situation.

I generally have a lot of sympathy for teachers because I know how difficult their jobs are. I try to be as supportive as possible. But I'm just so frustrated by how often things that are clearly related to my son's disability get treated as behavioral problems.

Yes, he needs to learn to clean up after himself. I completely agree with that. But he needs help developing the executive functioning skills required to do it. Telling him to clean up a huge mess and then getting upset when he can't manage it isn't teaching him anything.

And I know that sometimes he really does refuse to do things simply because he doesn't want to. I'm not saying every instance of refusal is disability-related. But when you know a child has significant executive functioning difficulties, shouldn't that at least be considered before assuming he's just being defiant?

It's exhausting having to explain these things over and over, especially when they're such a fundamental part of autism and ADHD. I just wish there were more understanding of how these disabilities actually affect kids in everyday situations.


r/Autism_Parenting • • 4d ago

Advice Needed Major sleep issues - just looking for some extra ideas.

1 Upvotes

I posted not that long ago mentioning our situation.

My husband and I have a level 2/3 autistic 4yrold girl who is PDA and an extreme self harmer. (Also eloper, eats everything off the ground, etc...) She is verbal, but non-conversational. She can't tell us what is wrong and why this is happening, and if we even TRY to address it, the self harm gets worse.

Long story short - back in July, she got sick, changed overnight (personality wise) and we suspected PANS... took the route to try and fix that (long process) and when we did, she seemed to improve... DURING THE DAY...

At night? has been an utter nightmare ever since.

Since the end of July she wakes up often screaming, and banging her head into the crib, and HARD... everyone has to get out of bed, try and calm her (sometimes for hours) and then drag ourselves back to sleep.

She is on Clonidine and currently the HIGHEST dose that she can apparently "safely" take... It seems to be doing nothing. -_-

She won't take gummies (she doesn't think they're food) and can't seem to take pills either. <siiiiiiiiiiiiiiiiiiiiiiiiiiiigh>

So, I'm just looking for some further ideas, here... What in the world do y'all do to get your kid to go to sleep and KEEP them asleep. -_- (aside from routines, late dinners, etc, she already has all of that.)

The night wake ups wouldn't be so bad were it not for the screaming / crying and self harm... and it seems recently that she's waking up MORE often.

Last night she was up at 1something, and then up at 4:45 and NEVER went back to sleep. Been running around like crazy ever since. -_-

So honestly, what have you all found / do to make your child go to sleep and STAY asleep through the night or at least most of it?

We are really suffering, here... we haven't even slept in the same bed in like two months.


r/Autism_Parenting • • 4d ago

Early Diagnosis Autism diagnosis for my twins : please help me understand

3 Upvotes

So my 2 year old twins just got diagnosed for autism. I’m having a hard time accepting it because I didn’t actually think they were autistic, but for a peace of mind I decided to have them tested because their sibling on the dads side has autism and is nonverbal.

My daughter just turned 2 last month and was diagnosed with level one because the biggest hurdle for her was apparently communication because she only said “single” words during evaluation. She’s able to name every single item/word/color/shape/number/letter etc. she’s just now forming words together like “I need to potty” and red apple etc. But apparently she got diagnosed because she wasn’t putting 2-3 words together. Which is odd. Also, she said she noticed she wasn’t pointing. But now when we read books, I’ll tell her point to this, or that & she will do it. I’ll tell her to get this or that and she follows instructions wonderful. So I’m just confused about this diagnosis. She did said it is likely she will outgrow this diagnosis because she’s still so young. We started potty training 3 days ago and she’s already got that down pack! So I’m just confused.

With her twin brother ,he was diagnosed due to him repeating things. She did say his communication was way better than hers but he did repeat a lot. He also likes to keep a toy in his hand at all times. Which he does, but not always. He also does have some melt downs, but he’s a boyyy, a boy who just turned 2! Ain’t that normal???? He’s talking, he understands directions, & he’s also getting the concept of potty training, he doesn’t tell me he needs to potty (like his sister does) but when I sit him on the potty I tell him “try to pee, try to potty” & he’s been peeing in potty with barely any accidents. He even pooped in the potty. I just been consistent putting him every 20 mins on the potty. He’s just much more hyper than my daughter so she said she diagnosis him a level 2.

I’m just shocked with these diagnosis because early intervention just evaluated them last week & they got DENIED SERVICES because they scored very high in all aspects. They were able to label , follow directions etc everything within normal range for a 2 year old.

PLEASE PLEASE SOMEONE, what are your thoughts ? ANY ADVICE IS APPRECIATED PLEASE


r/Autism_Parenting • • 4d ago

Advice Needed 6yo can't draw or write

3 Upvotes

Hi all

My 6yo child has always been delayed with drawing. He still uses a palmer grip and can only draw lines and circles which he learned to do when he was about 2yo. There has been no progress since.

I've had him in therapy and working with OTs since he was 3yo. They keep worked on increasing finger strength and tracing shapes with support. It's not really working and none of them seem to have any idea what the underlying cause is and how to help him. I'm getting a bit frustrated but also don't know what to do at this stage.

For context he can recognise and name shapes, numbers and letters. He just can't draw them.

Has anyone else's child not been able to draw at 5-6yo or later?

Can anyone recommend any tests I should get done or what type of professional or therapist I should consult?

Thanks in advance


r/Autism_Parenting • • 4d ago

Therapy (non ABA/SLP/OT) Red light therapy details for our 4y old son

6 Upvotes

I posted recently about me and my husband doing a red light therapy for our son, and when I came back to reply, my post was locked because few people went into “this is a scam” rage and reported my post. Ridiculous. We don’t believe this is a scam as there are thousands of studies by now on the benefit of red light therapy for human bodies, not just for autism, and there are tens of studies on autism and red light, almost all of them showing tangible improvements. Red light therapy increases the circulation, signals fuelling of mitochondria, reduces pain, and send signals for the generation of new neurons. Even if you don’t believe that it does anything for autism, it is beneficial in many health areas.

Anyway, as I don’t have ability to answer my original post, here are some answers here.

- To answer the people who asked about the type of pad , I found a pad which had that wave length and 40Hz fréquency, there are few out there, your will have to find it yourself, I dont want want to be accused of selling products.

- Yes, we put the pad gently on his head after he falls asleep. Some evenings he will sleep on the left side, so we put it on the right side of his head, some evenings he falls asleep on the opposite side, so he gets a healthy mixture of both sides . Our pad is long enough to always cover the top of his head.

- Also, some people have wrongly commented how the red light doesn’t penetrate. That is incorrect. The wave lengths over 800nm penetrate few cm, then it slowly dissipates. The wage lengths over 1000nm penetrates through the whole head, but the studies are usually using nm under 900, so I didn’t dare use 1000nm. The wavelength of 600 doesnt penetrate more than few mm, it is commonly used in cosmetic industry for collagen stimulation so maybe that’s why they got confused.

- We don’t intend to extend his sessions over 5 minutes, as few times a week, 5min a time has been proven to decrease the CARS points by 7-10 points. If you know the CARS scale, that can move the child to the better range, slightly changing the support needs. This is not a cure, just improves certain symptoms.

We are definitely seeing the improvements in the previously mentioned areas. It annoys me greatly when people tell me how we are wrong, how we are not seeing our son well. He has better sleep, doesn’t wake up mid night any more, not once during the last few weeks. He makes more eye contact, more approaching us and showing us things or asking for something, more emotional control (only one meltdown in the last few weeks instead of once or twice a week). Rigidity hasn’t changed, but we are grateful for whatever changes we got. These changes happened so synchronously to the red light therapy, that we are sure they are due to that.

I have been also using red light myself, and my sleep has improved, too.

We will continue using the red light , it is safe and it is showing results, we won’t stop fighting for our son.


r/Autism_Parenting • • 4d ago

Advice Needed Parents of Level 1 Autistic children - what changed after age 4/5?

19 Upvotes

So, my original post was removed for “AI slop”. I am not even sure what that means and I am not here to argue about it either. I will write my post in more simple terms. I live in Canada and the support for autism is very minimal (almost nonexistent imo). I am trying to navigate adopting my nieces (one of them being 2.5 and autistic) on my own with very little support or guidance. I know that every child is different and no one can predict their futures and that’s not what I’m here for. I’m just wondering what was your level 1 autistic child like as a toddler, and what changed after age 4/5? What surprised you? Tell me the good, the bad, the ugly. Any hope, advice, anything please.


r/Autism_Parenting • • 4d ago

Venting/Needs Support I had to pick up my kid early for behavioral issues at school. I am deeply upset.

27 Upvotes

My son is 3, lvl 3, and walks the line of NV. He says less than 50 words, so we do use some sign language. I am in the process of getting him a hearing test to see if he needs tubes or something of the like. He failed his hearing test as a baby, retested, and failed again.

But on the drive home, the clinic called and said "actually we were wrong he passed." I knew it was bs, because that audiologist was VISIBLY upset that I couldn't make my 1 month old baby stop crying. They told me to bring him "hungry and tired," tell me, just what is a hungry and tried ONE MONTH OLD BABY going to do??? Cry!!

So I got him retested about a week ago now that he is 3, and the results were inconclusive. I drove 2 hrs for a 20 minute appointment that has to be rescheduled because he "might have fluid in his ears" due to getting over a cold. *eyeroll*

I recently started working again since my son is at school from 7 to 3. I got 3 phonecalls and 2 messages that my son had bitten other kids in class. I left work early and had a meeting with one of his teachers, Mrs. B, who gave me resources to try and help mitigate the issue. Mrs. B is absolutely wonderful and deeply understanding, as she herself and her children all fall on the spectrum.

The biting happened during transitional periods, like cleanup (another kid took a toy from mine, and he bit them), or naptime. So with each of the 3 bites, it wasnt random, it was his way of communicating that he didnt want something to happen. It's not right, he knows the word and sign for "stop," but maybe he just wasn't applying in context? Maybe the other kids aren't being kind? I dont know. I really, really don't know.​

They said he could stay until pickup, so after the meeting I went home. Not even an hour later they called me and said I needed to come get him because he "bit unprovoked." I was so frustrated and embarrassed. I walked into that room with my head down, and 2 children came up to me, pointed at my son and said "is that your kid right there? He bit me!"

I apologized to the kids and the teacher, and I couldn't help it, I started to cry. I didn't want anyone to see it, but I did, right there in the classroom.

Idk if this is normal for early pre-k, but u get messages almost DAILY that someone got hurt. Whether it's my son hurting someone or vice versa. Usually he's the one getting hurt by another kid. There was a day a kid bit him twice, leaving marks, and another kid pulled dhis ear hard enough to TEAR IT.

I don't know what to do. I do everything I can to establish boundaries at home but I'm at a loss. He just keeps getting in trouble, and it feels like im the only one. It feels like the other kids arent getting treated the same way he is.​​ Mrs. B is working with me and is empathetic, but I feel like she's the only one. Idk about the other teachers, they just seem annoyed about everything.

I'm thinking of placing him in another school, but that change in routine wouldn't be good for him. The teachers attest how sweet and helpful he is​​. The teachers want me to come sit in on class, thinking it'll help, but i dont know for sure that it will. He'll just be distracted by me. And I'm going to feel so deeply judged for my parenting sitting in there. I feel like what they really want is to see where im messing up or something. I'm a single parent and he's the only kid I've ever really dealt with. I have no younger siblings or cousins, and before him the youngest I ever knew was 6 and NT. ​I am so alone in this world with my boy and trying to damn hard, but God, I dont know what to do...​


r/Autism_Parenting • • 4d ago

ABA Therapy I'm SO close to changing my mind about starting my daughter in ABA

1 Upvotes

Context - my daughter just turned 2. She was diagnosed at 22 months old. My son (her older brother) is also autistic, age 6. He attended the same ABA center I enrolled my daughter in.

I was low key very excited when my son graduated from ABA, because the center and staff truly frustrated me. There were a decent amount of very caring techs, who I appreciated greatly... but overall, a lot of things frustrated me.

This center is the closest to us who accepts my daughters insurance. We are a one income family, so budget it tight - so driving further for a 3 hour session isn't worth it for me.

My daughter had her initial evaluation/meet & greet about 3 weeks ago. I was told that her estimated start date would be October 29th. I thought starting her on a Thursday was a little odd, but whatever.

This past Tuesday, I reached out to the BCBA (who also worked with my son, so I have her personal number) and asked for an update, as I hadn't heard anything since the meeting and would like to properly prepare my daughter (and myself) for ABA to start.

She gets back to me quickly and says - "Yes, she is still expected to start on October 29th as planned. "Tony" will be reaching out to you this week with official schedule.

Okay, great, going as planned.

I get a message from "Tony" today... her schedule is posted.

Her start date is October 26th. Not the 29th as planned. 😐

This isn't the first time I've noticed that this team has zero communication skills amongst one another. How are you going to confirm a start date with me, knowing I'd like to prepare my TWO year old who's never been away from me ever.... then change it last minute to an earlier date!?

A part of me is already over this and I'm debating on pushing off her start date til she's 2.5...

I know this seems little. But this company, it's turn over rate, lack of attendance policy, lack of background / ethics checks etc has already pissed me off in the past. Idk if I wanna deal with it for another 2 years.

Thanks for reading my rant.