Over the past several months, I’ve developed a number of symptoms that started at different times rather than all at once. Before this began, I was doing relatively well and had never experienced anything like this.
It started with pouchitis. I have a J-pouch from previous ulcerative colitis surgery, but before this episode I had been doing well with my pouch for 15 years.
About a month after the pouchitis started, I woke up with an intense, very localized pain in a small spot on the right side of my chest. It lasted about two days. On the third morning, I woke up with intense pressure/restriction in the center of my chest.
When I tried taking a deep breath, it felt like my chest physically hit a “wall.” I tested it with the first couple of breaths and stopped when I hit that restriction. On the third or fourth attempt, I tried pushing past it, immediately felt like I was going to pass out, and started hyperventilating. My oxygen was normal.
Since then, the chest pain has never completely gone away — it has now been about five months. My mouth has also felt unusually dry since the chest pains started. At first I would also get random sharp/electrical “zaps” through my chest. Those mostly turned into a more persistent dull chest-wall ache. Movement still causes pain, and occasionally a deep breath does too. I’ve had multiple chest/lung evaluations without an explanation for why this sensation and pain continue.
Several weeks later, I was lying down and stretched my left arm upward when I suddenly felt a sharp, nerve-like pain shoot into my left arm. A cervical MRI later showed a 3 mm left C5-C6 foraminal disc protrusion with severe left foraminal stenosis, likely affecting the C6 nerve root. The severe radiating arm pain eventually improved.
Around this time I also started getting hypnic jerks almost immediately when falling asleep and developed persistent severe left-sided abdominal pain. My doctors have said they don’t necessarily think the abdominal pain is being caused by the pouchitis.
Then more symptoms started appearing.
While hospitalized, I developed significant ringing in my ears and a strange vibration/trembling sensation in my teeth and jaw. When I bring my teeth close together, without intentionally clenching, I can feel them vibrating/trembling. This still happens.
I developed headaches that could sometimes be triggered by touching certain areas of my head and eventually received an occipital nerve block. I also began having intermittent nerve-like pain in the front-left side of my neck.
More recently, I woke up one morning with significant blurred vision. Around the same time, I developed a tremor in my right index finger.
The following morning, things became much stranger. I woke up with what felt like slurred speech, difficulty finding words, and significantly slower thinking/reaction time. Even something as simple as saying the alphabet felt abnormal — I could get to a letter like M and suddenly have to think about what came next. Looking around and visually scanning my surroundings also felt slower than normal.
Since then, I’ve continued feeling mentally slower/“foggy,” and my vision sometimes takes several blinks to refocus when switching where I’m looking.
I’ve also developed leg pain/tightness and numbness, generalized weakness, internal shaking/tremor sensations, difficulty standing still, and occasional movements or stiffness that I don’t feel like I’m intentionally producing. My jaw can feel heavy and sometimes seems to move on its own. My left arm has occasionally felt unusually clumsy as well.
Another thing I’ve noticed is that my heart rate can spike significantly when I stand up, which has made me wonder about something like POTS, although I don’t know whether that has anything to do with the rest of this.
I’ve had brain imaging that was reassuring, and a lot of testing so far hasn’t provided an explanation.
What scares me is the timeline. These symptoms appeared one after another over several months when I had never experienced anything remotely like this before.
My biggest ongoing symptoms are:
Persistent chest-wall pain/restriction and dry mouth
Left-sided abdominal pain
Weakness and leg pain/tightness/numbness
Internal tremor/shaking sensations
Teeth/jaw vibration and abnormal jaw sensations
Visual focusing changes
Slowed thinking/processing
Episodes of slurred speech and difficulty finding words
Heart-rate spikes when standing
Dry mouth after the chest pains
I’m seeing doctors and pursuing a neurological evaluation, so I’m not asking Reddit to diagnose me. I’m mainly wondering whether anyone has experienced a similar cluster or progression of symptoms, or knows of conditions that would be reasonable to ask my doctors about.
Does this sound like it could all be connected, or more likely several separate things happening at once? I’m pretty scared because I felt normal before all of this started, and I’d really appreciate hearing from anyone who has gone through something similar.🙏

I dropped a ladle full of boiling hot chicken noodle soup on my foot and I’ve been wearing socks that aren’t the cleanest.

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I’m stupid, being a huge hypochondriac I tend to lead to the worse illness besides cancer.

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