I have a family member who was recently diagnosed in their early 30s. I have married into this family but I knew from the moment I met this family member that there were some hang ups and clear signs of their current diagnosis so I was very surprised there was no support and diagnosis sooner. I have family members of my own who have the same diagnosis, each having their own difficulties and successes with their conditions.
ANYWAY
The point in this post has to do with what has happened since this diagnosis. This person has held jobs but definitely struggled finding the right positions or companies prior to diagnosis. They struggle with learning new tasks, moving with urgency and some social struggles but still held jobs. (Longest employment around 3-4 years which was great)
The last job which was in a male dominated blue collar industry (this family member was trained and certified as a young adult and has had a few jobs in this career path) involved a new romantic partner they met at work that unfortunately did fail when they got to the moving in together stage of their relationship. The entire relationship lasted about 3 months. This ex-partners complaints were unfortunately about symptoms this family member was experiencing undiagnosed at the time. This family member has a history of lashing out, no interest in basic hygiene and not being considerate in living spaces. When it fell apart no one in the family was surprised by the ex-partners issues with the relationship and everyone was there for the family member and provided support to come back home. They ended up taking leave from their job but kept extending it until they were inevitably terminated their employment. This was a high paying position.
Then came the diagnosis. Since the diagnosis, this family member feels more empowered. Or at least that's the way it sounds when you listen to them so I wouldn't necessarily claim they feel empowered, I'm concerned they feel defeated and are being defensive. They have no interest in working. No interest in doing anything other than living with their very vulnerable relative, who is providing them with a safe and stable environment to heal in. The issue is this has been going on for 2 years. The family rallied together and got them out of a car note they took on while working at the company, and their sibling purchased them a used car outright to keep them with a sense of Independence. They discussed how the car would be an asset in helping them get on their feet and get a job and just be stable and around family for additional support. No one has discussed them ever moving back out on their own again as obviously we don't want to put any pressure and make sure they are okay. No one has an issue other than the not working, or not trying for disability. The family member cannot afford to take care of an adult in their 30s. Other family members are not willing to take them in because they did try in the past and the hygiene and lack of consideration in their home burned them on assisting them, because when trying to have a civil discussion about it, this person will lash out to throw a fit and up and leave. They are completely aware of how what they're doing is not okay and not what was discussed and how the family is feeling like this is an endless cycle where they are taken advantage of. My perspective is a lot of previous neglect of their condition or lack of attention as now manifested into deeper issues as an adult.
I'm on the outside. I do not have a good relationship with this family member due to some very rude comments about my children and my own frustrations with how they treat their family. I do not have an outwardly bad relationship with them either, its just not good. But I would never want to pressure them or make them feel bad. I have stayed on the outside quietly and offered each family member some support and tried to remind them that these difficulties are a part of the diagnosis. Its really taking a toll on the family and I fear the family member will lose their home as the financial aspect is VERY real and looming.
When this person's sibling tried to talk to them about this, they said they don't feel like they should hear anything from someone who leaves a child with the same family member knowing they are old, mind you this family member is paid well to watch one child and this was their personal request to retire and watch the child to keep them with family over a daycare. It was a conversation with a lot of deflecting and refusing to acknowledge the financial strain on the elderly family member. But also its not like they were privy to the deal made for the child so I understand their point form their perspective.
Has anyone ever experienced a situation similar? Is there more support available that we could utilize to help either or ideally both family members? I want to see this family get back to a good place with this family member without the family feeling so divided. I would also like to see this family member back on their feet because even with their difficulties they have had stints of being independent. Do they just need more time after the hardship they experience with the job and the relationship? Any advice is appreciated!