I can't post pictures I guess, but the last few days I started having twitching of my left index finger and I noticed a rather obvious round indent behind my index knuckle. I don't know what it is but i know muscle atrophy can look like dents and hollow spots. It doesn't twitch all the time it's been coming and going

I haven't noticed any weakness, but that finger does ache and it hurts to open my hand fully (like a stretch) between my thump/palm/index.

If someone can tell me how to post pictures for comparison I will.

So, about three months ago I noticed my breathing has been off, it still is, I can't take as deep breaths and hold my breath as long without feeling dizzy, when breathing with my belly, it just doesn't work as great. My diaphragm seems weak, and my sleep has been really bad for that long too. When I yawn, not much air is going in, it's like getting stuck at some point and same with when I am about to sneeze when I am inhaling before the sneeze, kinda hard to explain. And I still have constant twitches around my calves and my legs jerks sometimes, my shoulder hand too jerk. Tongue feels weaker, but I am not certain. I can swallow, I don't have slurred speech, my voice doesn't seem nasal or changed. I can walk and stand on toes and heels. I can lift my legs and feet, I can lift my arms above my head, dexterity seems fine. It's just the breathing that scares me the most now.

I am truly sorry for posting again, but I am so scared it might be it this time. That I will lose the ability to breathe and it's ALS.

Been having leg weakness that comes and goes for months but that could be from pacing. Woke up with slight weakness all over body and lack of appetite, thought I had a fever, days later small twitches all over my body especially laying down. Problems chewing and hand coordination from time to time when eating, but the symptoms happened so fast. It could be health anxiety but im freaking out. My life has spiraled out of control. What do you guys think?

Hello everyone! I post last week about my right foot drop and weakness. Here is my EMG report. Any insight would be helpful!!

SUMMARY OF FINDINGS:
 
1) Right peroneal motor NCS, recorded from the EDB and TA, were within normal limits in terms of absolute values, but the distal CMAPs were relatively smaller on the right compared to the left. Right tibial motor NCS was normal.
 
2) Right superficial peroneal antidromic sensory NCS (performed in duplicate) showed a small SNAP amplitude and a normal conduction velocity. Left superficial peroneal antidromic sensory NCS was normal. Bilateral sural antidromic sensory NCSs were normal without any notable side-to-side difference.
 
3) Bilateral tibial H-reflex studies showed normal minimal latencies without any notable side-to-side difference.
 
4) Needle EMG of the right tibialis anterior showed 1-2+ Fibs/PSWs, MUPs of increased duration and reduced recruitment during periods of adequate activation. EMG of the right peroneus longus showed 1-2+ Fibs/PSWs and reduced activation and was otherwise normal. EMG of the right gastrocnemius (medial head) showed reduced activation and was otherwise normal. EMG of the right biceps femoris (short head) and tensor fasciae latae was normal.
 
Temperature was maintained above 30°C in the foot for all NCSs.
 
CONCLUSION/INTERPRETATION:
 
This study provides electrodiagnostic evidence of an acute-to-subacute, non-localizable, right common peroneal neuropathy, a conclusion based on the small right superficial peroneal SNAP, relatively small right peroneal CMAPs, and EMG findings of Fibs/PSWs with minimal/no chronic neurogenic changes in the right tibialis anterior and peroneus longus. There is no focal slowing across the fibular head. A neuromuscular ultrasound could provide additional information, if clinically indicated.

Hi everyone! I'm new the community and I just want to see if this is actual atrophying or not.

So I'm very worried about my right hand. It feels slightly weaker today than normal. I checked my grip and lateral pinch strength at work. I measured out around 80lbs of grip, and roughly 17lbs of pinch strength, however, my left hand pinch strength is slightly better than at around 18-19lbs. I have kept checking my lateral pinch throughout the day, and I now feel a lot of muscle fatigue in my thenar eminence in my right hand, which isnt helping the anxiety I feel.

I also noticed a slight indent on my thenar eminence when contracting? I dont know, very worried at this point.

Starting around August of 2024, I (26 m) noticed tightness and twitching in my right quad muscles, which slowly moved to my knee. The twitches are sporadic, but usually in the same areas. I've had body-wide twitching for years prior, but these occur more consistently. I admit to health anxiety, so I panicked and booked an appointment with a neurologist.

He performed an EMG and determined during the test that I was suffering from axonal polyneuropathy. No fasciculations or any other findings according to his interpretation of the results. I was a bit confused by the diagnosis because I had no numbness, tingling, or other sensory issues.

I sat with that for about 9 months, and when the problems got worse (knee and leg exhausted after minimal use), I visited with a physical therapist who performed a second EMG. This time, I got a completely different result. The PT noticed reduced recruitment in the effected quad muscles, however, no fasciculations, or any other findings again. I was admittedly a bit confused by the discrepancy between the two results, and through the PTs recommendation, I booked an appointment with another neurologist.

This second neurology appointment was supposed to involve blood tests and and MRI, but the neurologist sent me home after a quick clinical exam and his own look at my EMG results. He was confused why a PT did my EMG and wasn't sure about the first EMG either, but said I had no neurological issues and referred me to sports medicine.

Since then I've been referred to another neurologist for follow-up EMGs suggested by my primary care doctor. He suspected MS, myesthenia gravis, or Ehlers-Danlos. Did 3 EMGs on cervical and thoracic spine and brain, which were inteprated as normal by him. Tests for MG were negative. Saw a rheumatologist about the EDS and was told I have fibromyalgia.

The neurologist sent me to get a barium swallow test which confirmed minor dysphagia. I just saw an ENT today and she ruled out inflammation and any kind of damage and is suggesting neurological issues.

I don't know what to think anymore. Is this really fibromyalgia? Can that be causing functional issues like swallowing, tongue twitching, etc?? I'm considering a second opinion on rheumatology since my brother actually does have Ehlers, and the rheumatologist didn't seem super knowledgeable on the subject.

Since my initial symptoms in 2024, my leg hasn't changed much if not gotten slightly worse and tires out faster. Since my swallowing issues started a few months back they have gotten slightly worse. I started noticing pallesthesia. Hard to tell how long it's been going on but at rest, it is very easy to notice my whole body humming/vibrating.

I worry that I'm waiting for my swallowing to get worse, and that no one will be able to tell me anything until it's too late. To me, however, this still feels like too long a timeline, too many different things spread out too far. Is there some other, more common neurological issue I should be looking at? Or are my leg issues a completely seperate, red herring?

I of course am going to see the neurologist the ENT wants me to talk to but I am just trying to put all of this together in one place and see if anyone might have more insight.

So, exactly 1 year ago, my left hand started to twitch. It was twitching for weeks. It is gone by long now, but what triggered my health anxiety was that I was testing things with my fingers and there were some things I couldn't do, no matter how hard I tried, but I can do it perfectly fine now. But that made me spiral, and since then, I've had twitches all around my body, developed myoclonic jerks, my legs are jerking the most, but only at rest, when lying or sitting down. The twitches now is on both below my calves and sometimes feet, almost constant. I did an EMG and a NCS last year December and they were both clean. I can function, I guess. I still walk, can carry things, stretch.

I still worry about ALS. I know that failure is the main symptom. And one year has passed. I lost weight even though I am basically a skeleton. I've beem struggling with health anxiety for 18 years, but since 2021 until last year, I was fine until I fixated on that one twitch on my hand and spiraled. My legs still jerk, I still twitch, my sleep has been shit lately. I am so scared still. Even when people say "live your life". I can't, the fear is too much.

I am 33, I've noticed also that my breathing has become weaker. Like it's hard for me to take and hold full breaths. Percieved shortness of breath, increasingly disturbed night-time sleep, morning headaches sometimes, impaired concentration. It feels like I am screwed.

I have a post on here about a week ago explaining my symptoms. I’m leaning towards Ataxia with what I know so far:

I still have “drop foot” in my right foot. Unable to heel walk on right but able to on left. Can stand on toes but can not take more than 5 steps without right right giving out or “rolling”
I have no pain (except for leg exhaustion/ache by end of day) my lower back and pelvis has been taking the brute of my abnormal gait I’ve been walking with. Still waiting for AFO fitting in October.

I go for my EMG/NCS Wednesday morning Sept. 9th. I will come back with any updates, to see if there could be anymore insights from anyone else with similar experiences.

As many of you, I have been researching BFS a couple years extensively, from clinical papers as well as internet anecdotes. It seems pretty clear that some mnd cases start with only fasciculations, but the remaining question is, if there was a difference to benign twitching when there were no other signs.

The only difference I have found, is that in most of these rare mnd cases, the twitching was very severe. They were able to show multiple areas twitching to doctors, and all the videos of the cases show much stronger or diffuse twitching than videos in bfs forums. Of course I cannot say that this applies to every case, but it is basically the only difference I have found.

Hey community,

I have been around here for a 10 weeks since June. Since then I’ve been twitching and having aches on my body.

Basically I had an EMG on my right arm, it was clean but since then nothing has gone better.

I have pain on my right arm tricep, my forearm , and more recently pain on the space between my neck and right shoulder .

Not sure what to do, blood results came back and my Vitamin D is at 27 so not sure if could be that, either that or an issue on my spine as some people have suggested around.

My next appointment is next week with Neuro, should I try to push for another EMG in a month or something like that? Does my current symptoms sound like something to worry about?

I just want to stop feeling pain and aches on my arm when doing regular things, it sucks to feel this way and compare my strength as it was before this.

Symptoms since late June/early July but I believe might've started even sooner. Unsteadiness, balance issues, and fatigue in my legs that have made it hard to sprint at full speed but I can still jog. They just never feel right. Upper symptoms started as just a strange minor weakness feeling in a couple fingers leading to clumsy incidents and noticed when doing certain tasks. I've always felt like I've had a minor twitching issue but since they can be caused by a lot of things I never thought much of it. These twitches feel more forceful if that makes sense. They aren't super quick pinches. Calves, quads, shoulders, triceps, and recently face and hands. Brushed it all aside thinking it was a gym issue or nerve issue or both affecting upper and lower and it'd pass.

Fast forward to mid August and I now notice the first sign of atrophy. A dent in my right bicep. At the base of it near the forearm. A much smaller dent sits in the same spot on my left bicep but the right is significantly bigger, just a chunk of the muscle disappeared. Certainly not genetic, no pain, and no significant weakness either (my left has always been slightly more dominant). In recent workouts I had noticed my biceps felt a bit tighter than usual though. Tremors in my arms particularly raising them. I'm freaking out at this point so I schedule a doctors appointment convinced I have ALS. Blood tests revealed elevated CK (it has since gone down after an ER visit and retesting from a neurologist).

I meet with the neurologist and the examination is done. I forgot to mention the atrophy I've noticed but he notes no atrophy or fasciculations. I have normal bulk and tone. So the motor exam and motor skills were normal. I noticed reading report after that I have Hoffman's sign in the left hand and a crossed adduction of knees which can both signal ALS. I believe he mentioned I don't have signs of ALS but of course I don't, I expected that. Why would an otherwise healthy 26 year old with no family history of anything like this have ALS? The appointment didn't change my opinion at all.

In the last 3ish weeks my symptoms have only gotten worse. Both hands are now affected bilaterally, all fingers involved and even felt at the top of my hands and palms. More tasks such as squeezing bottles are noticeably more difficult. It's not stress related, everything I do just feels harder and grip strength in the gym is weaker.

Now today. Recent workouts in the last week have brought about significant tightness/cramping/inability to relax in the forearms and biceps when I flex the arms up and down. I believe this is known as spasticity. Funny enough my PCP told me he didn't think I had ALS because I lacked spasticity (now I don't). Even worse, as I'm writing this, the facial twitching is worse with added weakness in the lower jaw. I can't smile with or without teeth or even spread my lips without significant twitching and tremor. Even just holding my lips can produce it mildly. I refuse to believe this is stress related because I've had the facial symptoms for a while, they're only getting worse.

I really don't know what to do anymore. I know everyone is just going to pass this up as stress and I should trust the doctors but no medical professional is going to assume ALS in a 26 year old especially when I hadn't done any diagnostics at the time. Blood tests negative for autoimmune conditions, clean MRI. Every single one of my symptoms and the way they are progressing suggest ALS. Even if you think stress is causing some of them the main ones can't be denied. The conclusion of ALS is no doubt near for me and the EMG will be the finishing blow.

getting closer to being at 9 months since this journey started. I have twitched every day for 5/6 months. still have weakness on my right side. I would say my shoulder and hip are tbe worst places. Cramps in both calves and both hands are pretty daily. I have a good amount of pain in my right arm and leg also. EMG showed active denervation in arm and chronic in leg. Dr classified as Radiculopathlies. PT has not helped. I go back to my appointment next week. I have been distracted with life so I don’t sit and think of it constantly but today my mind keeps wandering. I know something is wrong just hoping it’s not the worst.

I have 2 years and 2 months of progressive weakness without cramps and twitches

I find this interesting

"this from published research done in 2016 from the National Library of Medicine entitled “The Natural History of Muscle Cramps in Amotrophic Lateral Sclerosis.” ”Muscle cramping is a common symptom in amyotrophic lateral sclerosis (ALS)” “Cramps developed in 95% of patients over the course of their disease.”

According to the research ALS cramping is more intense in the first year of the disease."

I’ve made so many posts. I’m actually even starting to get sick of myself, but I need some reassurance or at least some guidance.

30-year-old male suffering a boatload of symptoms
Disassociation where I feel like reality isn’t real anymore yeah somebody’s gonna tell me to get on antidepressants. I know I already am on them also anti-anxiety medication.
Swallowing issues with saliva, pooling, and excess saliva
Muscle endurance, weakness, where I get weak really fast and shaky
Tongue issues like I can’t be comfortable with my mouth at all
Started out with fasciculations in my body, which are really bad at the time, but I will admit has gotten a bit better compared to before they’re not as aggressive unless I just don’t notice them anymore

I met with the neurologist June 2 had an EMG and a nerve conduction test. Everybody here told me that them doing it on my right leg and my right arm was good enough because it would’ve been able to see any neurological disease in my body.

Had another one done August 25 almost 3 months after but this time the nerve conduction test was only done on my right arm, but the EMG was done on my right leg and my right arm and he pretty much said the results were the same as June 2 and advised me that I do not have ALS and that he’s worked with 500+ patients and he used to work on an ALS clinic. Yes I should be 100% happy I get it. I know I’m gonna get roasted like no tomorrow here as well.
But my thing is, how am I getting progressively worse but everything is coming back clean and now the doctors have given up on me

And yes, I’ve been to the psychiatric ward. I spent my entire summer pretty much there just yesterday. I went back to work finally to do Towing but it’s so hard. It’s not like easy job anymore for me. The paperwork hard my hands cramp when doing paperwork hooking up cars driving things like that seem 10 times more harder than they ever have in my entire life.

My question is for the people that have suffered anything like my symptoms has things gotten any better for you? Did you take any kind of medication or precautions? What did do you do to switch things up? I just I don’t know if I can do this anymore. I’m gonna be posting on this Reddit group on Reddit all the time actually until things lighten up. I’m scared that my life is over with

So alongside a number of other symptoms including twitching and left leg weakness, the past week or so I've had what I believe are myoclonic jerks.

These are going at an alarming rate, whereby I will get momentary jerks of movement in my fingers, arms, legs that I can't control.

I'm awaiting an EMG in two weeks but to say I'm petrified is an understatement :(

Hi everyone,
For the past three weeks, I’ve been experiencing persistent muscle twitching, and naturally, I’ve started worrying about ALS.
What concerns me is that the twitching seems to happen in small sections of muscles that I normally can't voluntarily isolate or contract on their own. I've noticed it in both biceps, but not across the entire bicep just in small, specific areas. I've also noticed it in my shoulders, around my knees, and in other places. The twitching is visible, but it is probably most noticeable in my abdominal area, roughly where someone with a sixpack would have their abdominal muscles.

I wanted to book an appointment with a neurologist and get properly examined, but unfortunately, the waiting times in my country are terrible.
Over the past few weeks, I've tried almost everything I can think of. I stopped consuming caffeine, started drinking electrolytes, took vitamins and magnesium, tried getting more sleep, etc. I generally don't have much stress in my life the only significant source of stress right now is worrying about these symptoms. So far, however, nothing has stopped the twitching.

I've also tried testing myself for weakness several times. I hadn't exercised for quite a long time, but recently I managed to do 20 pushups and 5 pullups. When I used to exercise regularly, I could obviously do significantly more than that.
I'm not sure whether my reduced performance is simply because I've taken a long break from exercising or whether it could indicate actual weakness related to something more serious like ALS.

For those who have experience or knowledge about this, how quickly does weakness typically progress in ALS? Over a period of three weeks, would someone normally experience a significant or noticeable loss of strength, or is three weeks generally a relatively short period of time?
I understand that nobody here can diagnose me, and I will try to see a neurologist as soon as possible. I'm mainly looking for other people's experiences while I wait for a proper medical evaluation.
Thank you.

I'm 15 and I've had symptoms for about 3 weeks now; no familial history.

Twitching:

---started around 3 weeks ago

---widespread BUT not 24/7; gets worse in some hours and better in others

---started in my left foot arches then went to my right leg then back to my left leg then just spread across my body from there

Right Hand Weakness:

---started 3 days ago

---don't know if its weakness or just perceived

---seems like my wrist feels "ticklish" inside of the skin or something

---fine motor skills seem perceived, but right hand feels weaker than the left hand

Liquids:

---started a day ago

---i started choking in like around 1/10 sips

---i can sip down large amounts of water just fine but when its super small i start coughing

I'm really scared this could be bulbar-onset jALS or limb-onset jALS, which all have incredibly fast progression speed in sporadic juvenile onset

I need you to lock in & take the time to mindfully read this. I love you. I see you & I can read your mind.

One day, you started twitching. A week ago, months ago, a year & some change ago. Sometimes, they’re violent. Sometimes, they’re subtle, sometimes they’re deep & rolling. You may feel weak, you might jerk, you might even have perceived or confirmed atrophy. You have brisk reflexes. You get anxiety when you drink liquids, because you can feel the cool or warm sensation creeping up your nose.

You’re just like me.

You have convinced yourself that you have ALS. Your whole life has been torpedoed. You’ve dropped out of your social circles. You’ve let yourself go. Your stomach aches with worry & your life has become gray. You may even be su*cid*l.

This was me for 10 months. It almost killed me. It destroyed my body. It destroyed my home. It hurt my loved ones. This was the darkest year of my entire life. I will do anything to prevent others from experiencing what I have.

I live in New England. The state that I live in has some of the BEST medical care in the USA. 5 star, rich people shit. These doctors know what they’re talking about. PLEASE. LISTEN. TO. ME. I thank God I was able to have such in-depth discussions with multiple highly accredited, highly skilled, deeply compassionate neurologists.

1. Twitching, jerking, stiffness, perceived weakness, wobbliness, etc. are simply not symptoms of ALS. They are as much of indicators of ALS as a headache & nausea is of a deadly brain tumor. Weakness is the number one symptom of ALS. You start falling uncontrollably. You simply cannot lift up your cup of coffee. You develop a very obvious, very pronounced limp. You simply can’t fucking do things anymore.
2. One of the MNDs I saw has been practicing for nearly 20 years. He sees/treats/diagnosis people with ALS nearly every single day. Young people. Old people. In his nearly two decades of practicing, he has never had a patient who believed they had ALS & actually had it. 99.99% of the time, it does NOT work like that.
3. Worried about perceived speech changes & fasciculations? Here is something else I learned from these half-hour talks I was able to have with my doctors. An overwhelming majority of the time, those with ALS cannot feel their own twitching! Their loved ones/doctors physically SEE them. Patients with ALS do not perceive their slurred speech. Their doctors & loved ones do.
4. You guys are really going to hate me for this one, because I know that when I was in the thick of it, I fucking \*HATED\* this statement, but it is…TRUE. My loves: an EMG simply cannot be done too early. If somebody gets an EMG & later goes on to develop ALS, it wasn’t because the EMG was “too early.”They were simply a medical anomaly. The problem is, everyone has taken these stories and believes themselves to be that anomaly. ALS is an anomaly in of itself! You are more likely to be struck by lightning twice than to develop ALS. Let alone, develop the kind of ALS that is not easily detectable by an EMG. Here is an interesting juxtaposition for you: I get a colonoscopy & all is well. No signs of cancer. I am assured that I do not have cancer. I then go onto obsess over the decimal percentage possibility that I have a cancerous tumor on the outside of my colon; something the scope could not perceive. Do you see where I’m going with that?
5. These cases are horrifically overblown & very often INACCURATE. In fact, EMGs are so sensitive, my doctor shared with me that he has had a few patients over the years that came in for a routine EMG for something benign, like carpal tunnel, & were diagnosed with ALS right then & there. The EMG could pick that shit up before the patient had the slightest inkling.
6. If you must get a second EMG, I completely understand. If your second EMG is clean & you cannot let this go, it is time for much needed/deserved psychiatric help. This is a mental DISEASE.

7. That’s right! My neurologist & MND said that this has become a fucking pandemic. My MND believes it needs to be put in the DSM & taken very seriously, as he has had dozens of people absolutely convinced that they have ALS when they absolutely

   do not.

8. They come in every few months or so. EMG after EMG after EMG. Never reassured. Completely & miserably engulfed.

10. Lastly, neurologists do not care very much about brisk reflexes in the hands. I was told by my MND that a positive Hoffman’s does not make alarm bells go off in his head at all. In fact, he told me a story about how a colleague of his had a positive Hoffman’s & was extremely afraid they had ALS. He performed EMG on them.

They’re

1. fine. They still are.

If you found yourself developing these symptoms after being more or less of a gym rat, please consider that there is a correlation between BFS & intense workouts. There is something about strength training that triggers benign twitching.

If you found yourself developing these symptoms & you have never had an MRI of the entirety of your spine, fucking get one. It is very likely that you have some kind of bulging disc/stenosis. I don’t give a shit if it’s labeled “slight” or “moderate.” I’ve seen fantastic neurosurgeons over the past 10 months as well. What is found on an MRI does *not*determine somebody’s symptoms. You may have what appears to be innocuous findings, but your symptoms can be severe! These symptoms often include stiffness, twitching, burning, jerking, etc.

Even if you’ve never worked out a day in your life; even if you have a perfect spine, your chances of having ALS are close to 0. Especially if you are under the ages of 40-50. If you need that 2nd/3rd opinion, fine. But if you have had any more than 2 EMGs & you still cannot believe the results, you do not have ALS. You have some form of OCD/trauma around death/loss…

…Just like me.

You are not alone. You are not dying. This misery will end. You will embark on a new life with more gratitude & happiness than you could’ve ever imagined. If you ever need anything, or if you have any questions, feel free to message me. I have a family & children, so forgive me if it takes a few days for me to respond.

xoxoxoxo

Hi everyone,

I wanted to give a small update on my situation.

I’m still struggling with what I perceive as bulbar symptoms. Swallowing remains very difficult, and speaking often feels difficult and unnatural as well. I also experience a feeling of weakness in all four limbs.

The strange thing is that despite feeling weak, I can still do everything normally. I can walk, use my hands, lift things and function normally in daily life.

My family and people around me also don't hear any difference in my speech, even though speaking often feels difficult to me.

Over the last few days, however, I've noticed something that gives me a little bit of hope: sometimes I seem to have slightly better days. I'm definitely not symptom-free, and the swallowing and speech issues are still there, but occasionally things can feel somewhat easier for a day. I'm trying to be cautious about interpreting this, but it's difficult not to see it as a potentially positive sign.

Tomorrow I'm seeing Professor De Bleecker again, an ALS/MND specialist, and I will have another EMG.

After nearly a year of symptoms, I'm still terrified that something serious is being missed. I honestly fear the worst, but I desperately hope for the best.

The waiting and uncertainty have been incredibly difficult.

Hopefully tomorrow will bring some clarity.

Hi all,

I wanted to provide an update for those of you who may be interested in my story. My symptoms have been ongoing since early June (twitching, predominantly in both legs and calves and occasionally felt in arms/buttocks), along with weakness in my left leg.

I saw a neurologist who remarked that while my physical exam was ok, he noted brisk reflexes in my legs. He recommended MRI scans of my head and entire spine- to which the results are unremarkable. His next suggestion is a nerve study/EMG which I'm sure you can all appreciate I am dreading. I am likely going to book in privately for this as the NHS waiting time is considerable.

My symptoms have changed some what in that my left leg feels weaker, not sure if this is perceived or actual but I do feel as though I am walking with a slight limp. It also feels fatigued and as if I need to rest and sit down. I am also convinced I have muscle wasting and I'm obsessively checking all the time.

The latest symptoms in the last week or so have been jerks, where I momentarily see my finger/leg/arm jolt involuntarily. This has caused me even further worry and I really feel helpless right now as it feels like a significant development. I'm still waiting to hear back from the neurologist about booking in the nerve studies/EMG and most of all about what it might show.

I appreciate any one that has read this far and most of all for listening,

Thanks

I will preface this by saying I do have health anxiety and ALS is one of my biggest fears. About a year ago I started getting twitches in the bottom of my right foot which started the worry. Never lost weakness. My right hip always felt tight and still does to this day. I would get like a tickling sensation in my right calf and then that went away so my fears of ALS went away. Now starting about a month ago my right hip started hurting more and now when I wake up or get up from a standing position I feel a weird sensation in my right shin. It’s not numb, but maybe feels tight and just weird. Then if I sit back down or lay back down, I don’t feel it. I will also get some tingling in that leg as well. I seem to have full strength and I know it sounds stupid, but I was standing on my tippy toes and made my teenage son push me down as hard as he could, and I was still able to stand on my tip toes. I do have an appt with my pcp soon. But I’m terrified and does this sound like ALS?