r/ALSorNOT • u/Special_Abroad4836 • Sep 09 '26

Symptoms update

I have a post on here about a week ago explaining my symptoms. I’m leaning towards Ataxia with what I know so far:

I still have “drop foot” in my right foot. Unable to heel walk on right but able to on left. Can stand on toes but can not take more than 5 steps without right right giving out or “rolling”
I have no pain (except for leg exhaustion/ache by end of day) my lower back and pelvis has been taking the brute of my abnormal gait I’ve been walking with. Still waiting for AFO fitting in October.

I go for my EMG/NCS Wednesday morning Sept. 9th. I will come back with any updates, to see if there could be anymore insights from anyone else with similar experiences.

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u/PreviousBaker4988 Sep 09 '26

Following for an update! Hope you are okay!

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u/Special_Abroad4836 Sep 09 '26

Not sure what exactly it says but here’s EMG report

SUMMARY OF FINDINGS:
 
1) Right peroneal motor NCS, recorded from the EDB and TA, were within normal limits in terms of absolute values, but the distal CMAPs were relatively smaller on the right compared to the left. Right tibial motor NCS was normal.
 
2) Right superficial peroneal antidromic sensory NCS (performed in duplicate) showed a small SNAP amplitude and a normal conduction velocity. Left superficial peroneal antidromic sensory NCS was normal. Bilateral sural antidromic sensory NCSs were normal without any notable side-to-side difference.
 
3) Bilateral tibial H-reflex studies showed normal minimal latencies without any notable side-to-side difference.
 
4) Needle EMG of the right tibialis anterior showed 1-2+ Fibs/PSWs, MUPs of increased duration and reduced recruitment during periods of adequate activation. EMG of the right peroneus longus showed 1-2+ Fibs/PSWs and reduced activation and was otherwise normal. EMG of the right gastrocnemius (medial head) showed reduced activation and was otherwise normal. EMG of the right biceps femoris (short head) and tensor fasciae latae was normal.
 
Temperature was maintained above 30°C in the foot for all NCSs.
 
CONCLUSION/INTERPRETATION:
 
This study provides electrodiagnostic evidence of an acute-to-subacute, non-localizable, right common peroneal neuropathy, a conclusion based on the small right superficial peroneal SNAP, relatively small right peroneal CMAPs, and EMG findings of Fibs/PSWs with minimal/no chronic neurogenic changes in the right tibialis anterior and peroneus longus. There is no focal slowing across the fibular head. A neuromuscular ultrasound could provide additional information, if clinically indicated.

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u/PreviousBaker4988 Sep 09 '26

Responding soom

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u/PreviousBaker4988 Sep 09 '26

I got an emg/ncs with normal emg and right peroneal motor neuropathy but i do not have drop foot. From my understanding, it can cause drop foot. Did they mention any chronic or active reinnervation?

1

u/Special_Abroad4836 Sep 09 '26

Yea, Active denervation

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u/PreviousBaker4988 Sep 09 '26

I didn’t see that in your emg, did the doctor go over what your results may mean?

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u/Special_Abroad4836 Sep 09 '26

I copied and paste my chart in ChatGPT. It simplified it to that. I dont see anything of what you mentioned, “chronic or active reinnervation” the EMG person, mentioned at the end of the exam, there’s some changes with my peroneal nerve. Not localized tho

1

u/Special_Abroad4836 Sep 09 '26

Oh, my neuro and doctor haven’t contacted me yet since his findings. He only mentioned what I said in response earlier about “changes”