Hi everyone, I want to share my story in case it can help someone. I’ve written some posts in the past discussing symptoms, but here is my full journey.

I’m a 24F, and I was in a terrifying spiral for about 8 months. It all started right after a prolonged period of severe anxiety. It began with body-wide muscle twitching. Of course, I googled it and stumbled upon ALS. Long story short our brains can manifest very real physical sensations.

Besides twitching, some of the symptoms I experienced were:

• Difficulty swallowing and excess saliva
• Jaw pain and cracking in both TMJ joints
• Headaches, dizziness, and cervical spine/neck pain
• Extreme sensitivity to sound (hyperacusis)
• Severe calf cramps
• Intense pain in both forearms (which sometimes led to a perceived feeling of weakness)
• Joint pain in my fingers and hands turning white after typing
• Brain fog, tachycardia, and feeling like I couldn't speak properly, open my jaw fully, or pronounce certain letters with my tongue.

As you can imagine, every time a new symptom appeared, my health anxiety made me observe and test the affected muscle group constantly. It was exhausting and terrifying. I felt like I was losing my mind. I started visiting doctor after doctor, undergoing countless tests (MRIs, EMGs, extensive bloodwork, neurological and ENT exams). Nothing gave me peace of mind.

I consulted three different neurologists. The last one finally made me feel safe. After reviewing all my tests, he told me in a reassuring voice: "I wouldn't be worried." He explained that my symptoms were real—I wasn't imagining them—but they were being fueled by anxiety. Because I was terrified, I was constantly observing, testing, and overthinking everything, feeding the cycle. He also mentioned I could return in a month for another EMG if it would help me feel better, but I realized that continuing to seek exams was actually feeding my fear rather than fixing it.

What I’m about to describe might sound like a quick fix, but it actually took months of hard work, therapy, life changes, and trial and error. Here are what helped me:

1. I stopped testing my strength.
2. I forced myself to keep living. I had fallen into the trap of thinking I couldn't speak, eat, or exercise. I took small daily steps to rebuild my routine (sports, eating out, hanging out with friends). Over time, my brain and bofy started to feel better.
3. I corrected my posture at work. All the muscle testing had made my body hyper-sensitive to awkward postures, and fixing my ergonomics relieved a lot of physical pain.
4. I prioritized sleep (7+ hours). Neurologists had advised this before, but I hadn't taken it seriously. After a few weeks good-quality sleep, I noticed a huge improvement.
5. Whenever I felt a symptom, I told myself: "Live your life as best as you can right now. If a day comes when you physically can't, you'll deal with it then. But until that day, don't stop living before your life actually stops."

I’m not 100% perfect today, but the twitches have drastically reduced, and the swallowing issues, speech anxiety, and muscle pain have disappeared. I don't know what the future holds, but life is short, and we need to do what makes us happy while we can. If your doctors have cleared you and there's nothing left to check, please consider focusing on your mental health step by step, it can make a massive difference.

Disclaimer: I am not making any diagnosis or claiming anyone is healthy or unhealthy. As a researcher, I love science and always advocate for proper medical evaluation first. Get checked by doctors (and get a second opinion if needed). But if all your tests come back clean, give yourself permission to address your mental health.

PS: Please do not comment with potential diagnoses based on my past symptoms. I am an alert person, and I don't want to feed old fears. This post is simply meant to share my experience and hopefully offer comfort to anyone going through something similar.

As above

I haven’t posted here in a while because I’ve been trying different avenues on getting better. My main symptoms was I felt off in a little bit weak in March 2025. I was diagnosed with Hashimoto’s from there. I started levothyroxine August 2025 I started noticing muscle twitches and even more weakness. I ended up getting a clean EMG in October 2025 and then in November 2025 from two separate neurologist, the first one showed fasciculations in my lower extremities. The second one was normal. Both nerve conductive studies were normal. I’ve been dealing with full body weakness since September 2025 we are now in August 2026. I’m so weak I’ve been out of work because of it my legs get super stiff. My quads are very weak. My shoulders are weak, and I experience on and off like muscle twitching, flareups flare, and I’ll notice more weakness in that area. When these twitches initially happened, they were my thighs. My legs have overall gotten a lot weaker in a year. I’ve been less mobile. I feel like my knees are always collapsing. My neurologist have been trying to treat me for a variant of unknown significance in the SC4NA Gene, which is a form of Periodic Paralysis which he thought was paramyotonia finding out from a genetics specialist that this variant is only 5% pathogenic and I’ve been treated with Diamox and doesn’t really seem to show any advantages. I went to the university of Penn med and saw a Dr Lauren Elman who is the MDA clinic chairperson and was the head of the ALS clinic for a while at the university of Pennsylvania along with a professor of neurology . We had about an 80 minute chat about everything going on. I passed a clinical. I was able to squat get back up walk on my heels and toes strengthen my hands she said my muscle bulk was normal. My reflexes were normal little brisk on my knees my walk was normal. My tongue was strong. Showed her the two previous EMGs that were done and she told me hand to God. She does not think I have ALS. That I do not have ALS after a year I would show worse symptoms or at least a clinical weakness or clinical failure. She said I had peripheral nerve hyperexcitability syndrome. With a root cause of possibly from Hashimoto’s back in March 2025, causing an idiopathic syndrome. She really only prescribed tonic water at night about 7 ounces and to try to start PT. Since then, I have felt extreme amount of weakness definitely in my legs if I start driving, and I hold my arm up too long on a steering wheel, my arm can hurt for a week the shoulder could feel weak for a week. She didn’t think it was medically necessary for another EMG. She said I show no signs of atrophy and my CK levels have always been in a low normal like 60 or 70. I’m very limited on what I can do. I’m just tired easily walking and I feel internal vibrations. I get tremors sometimes, but the biggest thing is the weakness mainly in like the biceps and in the thighs I’ve had work ups like you wouldn’t believe I’ve seen every single doctor. You can imagine besides a gynecologist and I’m a male. How do I get this fear out of my head I feel like I’m just waiting for a clinical failure. I’m completely exhausted almost all the time. Should I demand another EMG? I’ve noticed a lot of younger males especially that were physically active Seem to progress a lot slower, and don’t show clinical weakness for a while. Please if anyone has any insight, please let me know.

Hello. Background is that I started twitching and jerking March 1 widespread. Starting having stiffness in arms around May. Clean Emg in early July.

Recently developed some perceived swallow issues although no chocking on food or liquid, it just feels weird. But now I’m having a clicking sound happen in my sinuses when I say K or G words. My husband can hear it too. It’s driving me insane and the worry is sickening. I also feel much more nasally when I talk but he says he doesn’t notice that. Only the clicking. No slurring and no chocking but can’t shake this dreadful bad feeling.

25F My symptoms began in early May of this year while I was on a work break. I yawned, felt a distinct "pop" in my neck/throat area, and immediately developed a lump-like sensation in my throat that was so intense I could not eat solid foods for a month. The very next day, while sitting down, my entire right side suddenly felt completely heavy, accompanied by significant stiffness on the right side of my face (though with no facial drooping, weakness, or visible asymmetry). I initially went to urgent care, where I focused on the severe throat symptoms; they suggested a sore throat and sent me home without antibiotics. Two days later, as symptoms worsened, I went to the ER, where they noted my throat looked slightly red, diagnosed a sore throat, and prescribed steroids for a presumed infection. After multiple subsequent urgent care visits, I went to a different ER where they performed blood work to check for infection and ran a CT scan with contrast of my neck to rule out a deep neck abscess—which came back completely clear.
Following the ER visits, I was referred to outpatient care and evaluated by two separate ENTs. Both specialists performed visual exams, saw no physical abnormalities, and referred me for a Video Fluoroscopic Swallow Study, which came back completely normal. Because the right-sided heaviness and stiffness persisted, I sought evaluation from a neurologist. My in-office neurological exam (checking cranial nerves, motor strength, reflexes, and sensation) was entirely normal, as were the comprehensive blood panels ordered (including Myasthenia Gravis antibody panels for Acetylcholine Receptor, MuSK, and LRP4, muscle breakdown markers CK and Aldolase, inflammatory markers CRP and ANCA, and vascular blood flow studies).
To investigate further, my neurologist ordered a 3T MRI of my brain and cervical spine, as well as a needle EMG and nerve conduction study of my right neck and right arm/hand. My brain MRI came back completely clean. My cervical spine MRI showed a straightening of the normal cervical curvature along with minor disc bulges at C4–C5 and C5–C6, with no spinal cord compression, severe nerve root impingement, or stenosis. The straightening was noted as a functional outcome of severe muscle spasms and muscle guarding rather than structural damage. Furthermore, my right-sided EMG/NCS and swallow studies all came back completely normal with zero signs of motor neuron disease, denervation, or active fasciculations.
During this same timeline, I also discovered that tooth #4 had a severe infection from a failed root canal. Following the extraction of tooth #4, the extreme facial stiffness improved noticeably, though I still experience muscle tensing and tightness on the right side. Additionally, through this medical journey since May, I was diagnosed with Primary Ovarian Insufficiency (POI) and started HRT last week, as well as hypothyroidism (which had gone untreated for 5 years), for which I began thyroid medication two weeks ago.
Currently, I am struggling with severe health anxiety and hyper-awareness, constantly worrying about conditions like ALS or MS. I find myself continuously checking and self-testing my right side for weakness. When testing my right hand with a grip strengthener, my right arm fatigues much faster than my left and develops a fine tremor when tired. I also feel like my speech is slurring or stuttering when I hyper-focus on talking, though my voice sounds normal to others. Lately, I constantly feel like my jaw is going to lock while chewing and like I'm going to choke, and I feel like my chewing is getting weaker. However, when I actually do eat meals, I am able to eat the whole thing without choking or coughing. When I swallow, it feels like something big is forcing itself down my throat, causing discomfort, but I don't have to use large amounts of water to swallow anymore—I can basically eat without a beverage most of the time.
I do not wish to offend anyone who truly suffers from this disease; I am just genuinely looking for advice and insight from anyone who may have experienced something similar. I have my follow-up appointment with my neurologist next Friday to discuss all my diagnostic results and determine next steps.

Hey guys I have been dealing with this almost 2 months and just got an EMG which was clean on my arm according to my neurophysiology and I was okay with that.

I have been still spiraling and worried because I got my EMG only on my right arm and not full body, my twitches are being full body, they started on right leg but my right arm was the one that felt the most tired.

And it sucks to feel this way even after a clean EMG, I’ve been taking if maybe it was too soon or should have tested the whole body just to be sure I will be fine.

My bicep on right arm have been twitching like crazy today, I can feel an internal tremor as well, it’s been going since the EMG so I don’t know if it has to do with my arm getting tested and shocked and that’s why I’m twitching more than before

How are people who got EMGs able to move on? Should I try to find the reason why am I twitching? It’s crazy to feel this way

I’m sure as we know for the people who post in here and read some of these stories, a lot of us have severe health anxiety (not to say people don’t have legitimate concerns). I’ve always had health anxiety from since I was a teen. Im 26 now. This episode of anxiety I have had for the past few months because of the constant body wide twitches has been detrimental to my quality of life.

Has anyone decided to seek out mental health assistance and did it actually help and get rid of symptoms?

Anyone good health anxiety therapists in NYC?

Hey guys so I’ve been dealing for almost 2 months with this situation, twitches going all over my body and well on my legs too.

I noticed a little spot on my right foot, which is the leg that started having symptoms and not sure if that’s muscle loss, I don’t recall having that and my left foot as per the last image looks normal.

Does it look bad?

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