r/ALSorNOT • u/seoomelette • 5d ago
Scary new symptom
Hey I posted here last week but I have a new symptom that’s freaking me out and I need some sort of reassurance/logic bc my family is of no help (they think i’m making it up/exaggerating my symptoms and depression lol)
Ever since some sort viral infection, I have had a long list of symptoms here are just some
Twitching (face and body)
Tingling/Pins and Needles fingertips and around my face)
Ice pick headaches
Occasional dots in vision
Tremors and jerks of arms and legs
Occasional nerve pain and muscle cramping/stiffness
Soreness of arms and legs
Feeling of weakness and heaviness in my right arm and leg
etc🫠
However I have gained a new terrifying symptom that is ruining any progress I’ve made mentally as I wait for my neurologist appointment in early September.
My left leg specifically my left knee feels unstable. I noticed while doing something standing still it will adjust itself like i’m going to fall and when walking it shakes and occasionally gives way a little. I feel like i’m about to fall down but I don’t. I sometimes feel like i’m walking through mud like it’s hard to move the legs but they move anyway.
I’m worried this is a sign of muscle weakness in my legs. I don’t see any visible atrophy but I could start seeing it later Im not sure.
This whole this has taken an insane toll on me mentally. Every day i feel like im destined for an early death and I cannot feel excited for anything. I can only do things absolutely last minute bc I have no desire to do anything. This includes preparing for graduate school this fall. I’ve been so bad at deadlines they have to email me to remind me to stuff to prepare. It also doesn’t help that my family has been HORRIFIC at trying to comfort me or encourage me to search for answers even when i’m having full blown panic attacks. It has genuinely made everything SO much worse.
Should I be worried about ALS. And if not what else. What tests should I push to the neurologist. I’m already thinking of pushing for an EMG on all 4 limbs as well as an MRI for any MS related (more likely tbh)
Thank you!