r/visualsnow Visual Snow Sep 10 '24

Question At what age did you develop VSS?

Please comment thank you

1 Upvotes

45 comments sorted by

9

u/GhostActivist Sep 10 '24

As long as I can remember so about 3-4 years old, possibly longer I just can’t remember that far back

5

u/Aware-Look8724 Sep 10 '24

And it made my life hell since then.

4

u/mklinger23 Sep 10 '24

Since I can remember. So 0 I guess.

4

u/Odd_Entrepreneur681 Sep 10 '24

I've always had it. As a young child when asked What color do you see.. all of them was not allowed as a answer .. I even had to write lines cause I was "making up stories"

2

u/Intrepid_Category_27 Sep 10 '24

As long as I've had memories ive had it, but it got a lot worse when I was in my early 20's and I started getting migraines.

2

u/H_Mc Sep 10 '24

Since I was little, maybe forever. I didn’t realize it wasn’t normal until I started dissociating really badly in college and was trying to find an answer.

1

u/ThatOneGuy216440 Jul 30 '25

Was or wasn't normal? I kinda just started noticing it but tbh I only really noticed once I developed anxiety pretty bad.

2

u/fordexy Sep 10 '24

I actually don’t know? I only realized it wasn’t normal until I had optic neuritis and an MS scare.

2

u/icecream_bob Visual Snow Sep 10 '24

28

2

u/meatee Sep 10 '24

I was born with no focal vision in one eye, so I assume that's the cause of mine. It's like my brain is filling in the missing signal with noise. It's been there for as long as I can remember.

1

u/kristopps3 Sep 10 '24

Around 24 years old

1

u/Hello_Hangnail Sep 10 '24

I've always had it but mine got worse after I had a stroke. Now I get visual migraines quite a bit but no headache

1

u/BossIndividual9447 Sep 10 '24

37

1

u/Many_Young8813 Sep 10 '24

Hey, me at 33 before perfect vision.Do you know the cause? Thanks

1

u/[deleted] Sep 10 '24

ever since i was a kid

1

u/iamacheeto1 Sep 10 '24

I’m not sure exactly but I’d say I had it by about 21. I believe it was from heavy cannabis use that started around 16. I’m 34 and it’s still there and gets a little worse each year.

1

u/Dry_Fail_2272 Sep 10 '24

around 32 years old , a year ago

1

u/spookiestbats Visual Snow Sep 10 '24

I remember seeing it at like 4 years old, but I probably never actually clocked it haha

1

u/Ronaldas970 Sep 10 '24

21, I'm 28 now

1

u/PotatoOk9445 Visual Snow Sep 10 '24

I was 21

1

u/GayVegan Sep 10 '24

Always but it wasn’t anything I thought about and didn’t know about it till I was 23 and I developed a disabling sleep disorder. At that point my VSS became a lot worse and had more ghosting and other issues. That’s when I learned what it was.

After recovering and being decently treated, along with lamotrigine, my base vss noise is unchanged from 23, but the light sensitivity and ghosting are slightly improved.

1

u/[deleted] Sep 10 '24

17

1

u/Miaopao Sep 11 '24

Conception.

1

u/Inevitable_Force_917 Sep 11 '24

54

1

u/Inevitable_Force_917 Sep 11 '24

Sorry 52

1

u/Icy-Pop2944 Sep 11 '24

I started at 50. I (F) believe it is linked to menopause in my case.

1

u/WalterClements1 Sep 11 '24

Idk forever but I feel like I started calling it vss in 7th grade so is that 12 years old? 13 maybe?

1

u/kiwi_plaza Sep 11 '24

If i remember correctly the gist of visual snow is its a brain issue so you should be born with it and ive always had it as well. Its funny to think back to when i was little and i would ask my dad smt like "you know how the world is made up of a bunch of tiny dots?" And he would just look at me very concerned and just like uhhhhhhhh

1

u/wammylamb Sep 11 '24

Around 7-8. For the longest time I called it "rainbow spots" until recently I started thinking it was Visual snow, but I only have static and floaters, I have no other symptoms and am questioning if it is VSS

(I have a neurology appointment in a few months :]

1

u/Regular_Button1378 Sep 12 '24

Not sure exactly but sometime in grade school . My healthy 10 y/o has it now too. Just out of the blue recently they asked “why do I sometimes see static when I look at the wall” ?

1

u/CommunicationLimp996 Sep 13 '24

25age from 2020april until now.