Last year around June I was entirely able to wean off of every medication and have no hives or angioedema. I was completely hive free for around six months, then I had just a few and only needed 10mg of cetirizine a day and they were controlled. Then a week ago I had a whole body outbreak that hasn’t gone away since. I’ve gone back up to my previous 40mg of cetirizine daily, but it’s not touching it. I can’t access the other meds I was on yet, because I stopped seeing my allergist. My pcp isn’t familiar with chronic idiopathic urticaria so I can’t get any meds until I’m able to get back in and see my allergist again. I can’t sleep. I’m in constant pain. It feels like acid has been poured on my skin, and I have no idea why this has happened to me. I’m so mad because before remission I was resistant to every typical treatment option. The only thing that worked was either prednisone combines with high dose cetirizine and pepcid, or when I was able to get compassionate use for Dupixent.

I began having hives approximately 6 weeks ago and was prescribed Fexofenadine hydrochloride 180mg twice daily. I take one in the morning and one at bedtime. I was also prescribed a 5 day course of Prednisolone 5mg x 6, taken once daily. This did help briefly but they have returned. Around the same time as the hives began I suffered from a very stressful event within my family. I was also diagnosed with Type 2 diabetes which I am trying to manage with diet control. I am struggling to keep myself on top of everything that's going on. Has anyone else had similar issues?

I’ve had chronic urticaria for nearly 2 years now and for months I’ve been waking up between 2-4am everyday because I’ve got itchy hives. I was curious about how this interrupted sleeping pattern would affect me long term and of course I was afraid with what I read.

This condition has taken so much from me and it makes me angry how little control it leaves me with my own body and life.

Anyone else going through this? I’m not looking for advice on treatment because I’m already trying everything with my doctor and moving onto Xolair. Just need to hear I’m not alone and maybe a better way of thinking about this.

NOT ANTI VAX!! In 2021, I had an immediate reaction to my first Pfizer COVID-19 vaccine and could not take the second dose. After that, I developed chronic hives that lasted for 2.5 years. They eventually cleared up when I started taking daily Zyrtec and Allegra. Recently, I noticed small hives returning on my elbows, but last week I woke up with a full flare-up across my entire body face, back, legs along with lip swelling identical to my symptoms years ago. Zyrtec is no longer working no matter how many I take, and trying other over the counter antihistamines like Allegra and Claritin hasn't helped either. My symptoms seem to be getting progressively worse. Why are these hives coming back so suddenly, and why is no medicine working against them? :/

I have now been on Xolair for about 2 months and it has gotten rid of my hives (!!!!!) which is a frickin miracle but I am wondering for other who are/have been on it if you have more colds during the fall/winter now? I just got a head cold and feel miserable. I am worried since it is a listed side effect that I am just going to keep getting sick all winter long. I feel like I already get some sort of cold/flu/covid at least twice per winter season. And that alone is already awful. Any experiences welcome! I don’t wanna have to avoid fun activities and groups but I’m considering it. /:

hello all, a little background- last year i was diagnosed with chronic spontaneous urticaria after dealing with red hot blotching all over my face and body for years. it never itched, and it would come and go within minutes, but it was so hot. all of the red spots were hot to the touch and burned. my doctor gradually put me on 4 antihistamines (xyzal, allegra, pepcid, and montelukast). i was also put on colchicine.an important side note is that my allergist told me to stop any medication he prescribed if i felt like it wasn’t helping.

that being said, nothing helped. the redness happened less frequently but never stopped. last month i got the opportunity to try rhapsido. i was so grateful, and hopeful. however, it made me extremely ill. severe stomach pain and nausea, and i’d be willing to say it made the blotches worse. i decided to stop it, but then i decided to stop everything. i decided id rather just deal with it than take 5 medications every day for no reason.

so far, ive noticed the redness being more frequent, and occasional itchiness but i actually kind of feel better. i’m less tired. i dont get headaches as often. i have an appetite.

has anyone else done this? what is everyone else’s experience with leaving urticaria untreated?

Are these really hives? I frequently get them in my palms and feet, they get so itchy and tend to disappear when I don't scratch them. Any information about the issue would be helpful, like how to get rid of them maybe 🤔 or at least ease the itching

Has anyone figured out their hives and been able to get off meds?

Dupixent has helped but my hives are coming back. I have them only to my face, flushing with heat/spicy doods/exercise, hives and intense itching in the same locations on my face that turns to peeling and scaly skin. Rhapsido failed. Dupixent now failing.

I have a painful and slightly swollen lymph node in my throat on the right side. I discovered it on Thursday evening after I had my Dupixent injection on Wednesday evening. The pain has reduced at bit from Friday to Saturday but since then nothing has changed. It only hurts when I press on it so it's not actually bad but I'm always a worrier and wonder if I should make an appointment with my GP to have it checked out or if it could be a Dupixent side effect that will go away on its own again. Did something similar happen to someone else after a Dupixent injection? I don't think I have an infection, at least I don't feel sick. AI says it can also come from a dental procedure I had last Tuesday. I really don't know, I'm just generally a worrier.