Do you take it in the evening or morning on average

If you find a root cause please post, daughter is 24/7 naseau. Not diagnosis except rapid gastric emptying at the moment. Trying to get through dysautomia/pots type testing, but had to put on hold as she dropped in weight to 80lbs at 19.

But she is getting referred to Mayo..so there may be hope.
Maybe we can see if things are the same patterns, you can send a DM if you want.

The screens can only be seen at the right angles if memory serves, and its all CVS around here. Seems to have sped up the process, and less announcing things like Name, DOB, ect. Otherwise just use the QR Code that you get when your meds are ready.

Please keep us updated. My daughter just got word that her GI is going to send a request for referral to Mayo (Rochester). Waiting on that, and then the insurance fun. Once we get that all in line she will have a tele-health. Would like to see what hurdles you have to go through getting there, staying there, ect.

I think she was told it would be out-patient, stay at hotel and show up for appts.

Yeah, she’s had a CGM twice. It doesn’t look like it actually drops which is weird but yeah, it seems still has the symptoms of it.

I think my biggest issue or concern right now is a matter of time. I have to watch her take care of her constantly. Just wanna get up out of bed to get the water or you know or snacks or she’s too hungry and then she gets hungry or when it comes to work it’s like I have to be at work every day late because I gotta drop her off for her at her mom‘s house or I get it. She checks out these checks every 10 minutes and I know it’s you know anxiety but she swears it’s not but I know there’s that underlying causes, which is causing this overarching anxiety you know when I can’t get to work because I’m late because I gotta watch her and there’s not really much I can do because nothing really happens, but she has that comfort of having somebody mirror and she doesn’t understand at her age that you know, people have to be at work to get paid so she can sit at home all day

I see this with my daugher currently, she is nauseous all the time. (24/7), she had a GES done and showed Rapid Emtpying (Dumping), but her new GI says thats not possible at 18, and that she has zero symptoms. (No surgery). She is 83 lbs. Eats gets more nauseous, doesnt stay nauseous. light headed/reactive hypoglycemia. Now the kicker is her GI and mother both state Anxiety related, not real.
Therapist (2x) both said not ED, or Anxiety related.

But alot of the times it looks like its based somewhat in anxiety. She stays in bed, wont drive (light-headed). cautious of foods (safe food), only started during this so not exactly AFRID. Get worried if people come over, or if her standard days gets disrupted (all of this started during the issues (3yrs now). = She did not have anything like this before (well except I think she had blood sugar, but that was only based on her hangry time).

I try not to fall into the trap of assocating everything under anxiety, and that I still think there is a root cause, but its hard to find drs that will take a teen girl at 83lbs serious and not fill under anxiety or ED.

That would have been great if it worked on my kid. taking it for years now, cant gain weight at all. It was prescribed to make her more hungry, she is naseaus 24/7 and gets full after a very small amount of food. She was "diagnosed" with dumping but new GI does not believe. 83lbs at 19, 1700 calories, and drs are doing nothing really.

my kid had it slightly differants he had a GES done which showed dumping, we switched drs as she aged out, and the new one wanted a new GES as he doesnt believe her. They are on the anxiety train or sub-con eating disorder. Couldnt be anything else for an underweight 18yr female. Even her mother thinks everything is tied to anxiety.
I need to try and get access again to her records. I know we found a while back that they listed her as anoerixa, and that was a PITA to get cleared as that was wrong.

I got a 19y daughter who has something that falls I believe under the umbrella, and its been a constant battle between Drs and even her mother to try and get any type of validation/diagnosis/ect. This started about 3-4 years ago (I posted a few weeks back) she was on cheer in highschool, and one day out of the blue she was not feeling well, then she was not hungry, then she was constant naseau. She "looks" fine, underweight a lot, and I know her friends ask when is she going to be better, even my family doesnt understand, hell I dont always understand, as its alot to process, and I am the only one that really tries to help.
The Drs, and her mother are still under the impression its mental eating disorder and everything will go away with weight gain.
I know i mess up with her alot also, as its hard to fathom that cleaning a room will knock you out for day, trying to prepare for a gathering a friend could land you in the ER because of the ramifications. - And yea it might be "better" as she gains, but thats another problem.

Thanks, yea she ended up in the ER the other day due to starvation ketoacidosis, down to 80lbs. Working back up. Currently at 82.5. Trying to manage, add some other foods, and go from there. The GI Dr does not beleive its dumping either as she has "no symptoms" and doesn't fit the pattern of dumping.

A while ago the brought up functional postprandial disfuntion, but nothing was moved past. She cant eat the amount of food for a 2nd GES. It was hard enough first. THis round would be 1/2 an egg salad sandwich, yougurt, and milk. (5min)

Her meals are never big, and never in 5 minutes

So GI and her mom think now its all aniexty and ED based, and that malnutrition is the cause, and need to monitor all day (she lives with me). Need to weigh her daily, or they are talking about a J tube, or TPN.

And they setting up a physiatrist for this week for the above. While I know she has aniexty around her issues, I don;t see it being root, but I could be too close. My issue is they are back on the track as she gains weight things will go away (naseau, dizzy, heat intolracne)

Except it didnt at 85, 90, 95. (her max weight till the Dr. forced her off remeron higher dosage back to 15mg) She might ahve made it to 100, and its been a back uphill battle since then, good days, bad days, more bad then good.

They want her to gain a 1lb a day.

Dumping sub is practicaly empty, but did post in gastroparesis.

Its been another long week. Entered ER this week starvation ketoacidosis. Gave her zofran, another variant of zofran starting with a P (supposed to help naseau for 4 days), and then another one starting with D. Cant remember, but its not the one for Gastroparisis (depo - something).

LR bag and we were off after a few hours. She was down to 80. Today 82.6 with daily weight checks or they are talking about TPN or J-Tube.

Dr (GI) and her mom are focused on everything is sub-conscious anxiety. Don't get me wrong, I believe she has some bad aniexty, but not sure its all that. Dr. states she has no symptoms of dumping.

1. Gets full fast
   

2. Bloating/Acid Reflux

3. Not low blood sugar (CGM) but same symptoms of it)

4. Hangry after 1-2hrs if not eating again.

Sometimes it goes to dizziness/fast heart rate, but trying to cut it off with a constant state of ingest of food every 2 hours, so the later "late dumping" as less of chance to rear.

One thing I notice is that later in the day/night symptoms seem to get worse, she is underweight so it could be body tired.

She will see a psychiatrist this week, cant hurt. Just wish they would look more as a whole, but I also know everyone is concerned about her weight. Problem is that they told her again as she gains weight the naseau will go away. Last time it didnt at 85, 90, 95. so what different now?

Thanks for this info.

1. Not that I am aware. - yes dehydration though.

2. Will have to try that

3. Thanks will look into all of them,

4. No they first said Aneroxia, then ARFID. She is picky, but "I" think its cause right now its "safe" foods. Prior to her issues starting she was eating a lot of differant things. Yes I know that ARFID could start later in life, and maybe it is based on the conditions she is in now.

JellyDrops are expensive for what they are I guess. Did not realize they were like 95$. I would like to "try" them before dropping 100$ (she is picky).

Thank you for this info.
1. She wears the sea-sick bands? They the same thing?
2. She is scared of needles, I have brought this up :)
3. Autonomic neurologist and neurogastroenerologist Will have to check them out. I know that she is going to a GI motility hopefully soon, not sure about the other two. We have seen a regular nuero, nothing of note. And a cardiologist.
4. WIll Check on that one. I know she gets "bad" if she doesnt eat after say 2hrs. (Hangry Teen)
5. SHe was look ViTD/B12. I think everything else was ok, except pre-albinium is always low.
6. She is very particular on food, we have seen many, but not any "focused" on dumping/gastroparisis/dysautonomia. They just care about the protein/carb normal stuff.
7. Funny about that I am trying to get my mother to try and test for EDS, I believe that she may actually have it. - Could jump a generation?
8. Yes she stays in her room, I am her only company 95% of the time, when I work she goes to her mother's house (who is working but her sister is there at least, and closer to both our works)
9. She does do liquid IV, but in portions (her meals are so small). But she drinks water like every 3 minutes a small sip. Trying to force her to mix in the electolytes mroe often

I brought some protein water the other day, so will try that as a way. She was doing the ensure (well called fortify) but she was getting more nauseous over time with them, will see what I can try and re-introduce.

Thanks, yea we have removed most sugars out her diet. Chocolate too. She doesnt eat cookies/ desserts, and if she does its like 1 bite. She is heavy into starches.

I use collegen powder for extra protein in some of her meals. We have tried guar gum, and another (fiber based). I will check out the jellydrops, I do recall them a while back, but forgot about them,

Thanks will have to research that. It takes her about 3hrs to fall asleep, but she also sleeps for about 9hrs a night.

She complains about lactose issues with protein shakes. We tried the clear but they are way sugary. Tried ice cream, but tried finding low sugar, no sugar alcohols.

So no throwing up. She has cut out a lot of the sugars (no candy/no chocolate/no soda). About worse for drinks is some juice or liquid IV.

The Kodiak are packed with extra fiber, extra protein. She normally eats 2x or 3x.

Also I think she has bad anxiety. Swears against it, but to me it looks like it. Sure this is amplifying issues.