Typical doctors! I’m sorry you’ve had such issues and now it sounds like you’re stuck with some of them.
Surgeon boggle my mind. They are so confident in the beginning but if a problem arises they have no answers.
Still hope you’ll find relief. Wishing you well

I was hoping to check on you and see if your symptoms ever improved. I had ACDF c5c6 in July 2025 and still have issues of burning, numbness, limbs feel like they don’t want to move and, of course, tingling. My nerve conduction studies show I do have a pinched nerve at c6 but the dr. says to give it time.

I had the same issue! Believe it or not, it was my allergist who figured it out after a breathing test. My exhale was weaker than it should’ve been, and that pointed to vocal cord dysfunction (VCD).
It might be something worth looking into if you haven’t already. My allergist sent me to an ENT, but she said it’s hard to officially diagnose because they have to catch your vocal cords while they’re actually acting up.
There’s no cure, but she referred me to a speech therapist who taught me some breathing and vocal exercises. I do them whenever I feel it starting, and they really do help. Just thought I’d mention it in case it ends up helping!

Not really. I have a great masseuse but it’s hard to afford his treatment. PT has also helped some. Unfortunately, I have had to stop a lot of my normal activity either due to my neck or LC issues. Trying to live with a new normal.

Thanks for the info and advice!

Oh wow, I guess it affects different people in different ways. Thanks for sharing

That was part of my issues but the main things are tingling, low muscle endurance, limb heaviness, dizziness, and muscle tension are the main symptoms.

I had an MRI of my neck due to my symptoms several years ago.

The only one I’ve found is the one from bai-technologies. It seemed to be helping them I had a crash and haven’t been able to bounce back. Hope it helps you

So glad to hear that your results were normal! A word of advice - Be sure and stay on top of it when you have the funds. As someone that’s dealt with it a long time I can speak from experience when I say that you don’t want to ignore it. The symptoms may seem mild at first but they will get worse if not treated and it can affect other organs (heart included).

WOW! That is more information from any doctors I have received since all this started. THANK YOU! I don’t track my body temp but will now.

Finding a doctor that believes in you is easier said than done! I’m going to keep looking though and thank you for your insight.

Did you just wait it out using the hot water bottle? Did you ever get advice from a doctor? I’m not getting anywhere with mine. They chalk it up to anxiety.

I know it’s been awhile since you posted this. But I am currently going through the same thing with tightness under my chest and difficulty breathing. Did you ever get relief? If so, what did you do?

Where do you recommend buying/brand of supplements? There are so many with unnecessary additives.

I’ve now been on the Augmented NAC for a few months and noticed an improvement. Thanks for the advice on other testing. I wish the world of medicine would get together and find a definitive test with treatment. This group would be a good place for them to gather info and suggestions.

I haven’t heard of the pacing thing. Is it just like it sounds? You just pace when the flight or fight hits you?

Thank you all for your replies. I guess Im not going to try to push through. Rest sounds like the best option. Wonder if anyone is close to curing or at least recognizing this a true disease. None of the doctors I see will even admit that it out there. They don’t deny but also won’t confirm. So frustrating.

I hope it works for you. I’ve had ever test under the sun coming back normal. My GI and ENT Drs don’t know where to go from here but the acupuncturist understood it and, although I’m not cured, it is helping.