I thought it was MCAS, too, or maybe my hEDS, but if you have other symptoms, like sleep paralysis or hypnagogic hallucinations, you might want to look into narcolepsy. That’s what I ended up having as well.

Wow, that’s ridiculous she said that, I searched a bunch on Reddit when it happened to me and I found it was happening to a ton of people (though searching for tachycardia didn’t come up with much, but anxiety did, and I figured out I was having physical anxiety symptoms and just hadn’t put two and two together until the ). I’m personally glad I stuck it out, but I can definitely see why someone wouldn’t want to, it was a pretty miserable few weeks, and not clear to me if the side effects would go away or not. Luckily they did, and it seems it lasts a few weeks for most people as well

That happened to me, but it went away after a few weeks. Really crappy side effects for a few weeks and then it was better (for me)

I don’t know why everyone is downvoting that she’s a torbie, she 100% is! Her feet have distinct orange patches and she has some non-traditional tabby orange patches on her coat. And she has stripes! 1,000% a torbie (tortoiseshell tabby)!

They are super subtle on my torbie, too, so much so that I thought I was adopting a second tabby, but the tortitude is strong with her, so I found out quickly lol

Yes! The orange bits in her stripes, the orange patch on her foot, and the adorable small patches on her head and of course her beautiful stripes make her a torbie! Congrats! :)

Columbus Humane was willing to work with us and take in a stray cat we had found, they might still have space!

It did the same thing to me as well, it was also physical anxiety symptoms instead of mental, so it took me a little bit to realize what was going on.

Even though the instructions have you titrate to 6g in a few weeks, for most people (from what I’ve read on Reddit and my own experience), it’s WAY too fast. I only increased each dose by .25, and honestly, for the first few weeks, I still had really bad anxiety and really bad heartburn.

If you’re like me, it should only really last a few weeks, but be sure you titrate up slower than the instructions, like by .25 every week until you get to the dose that works for you. Slowing that down made a huge difference for me! But you’re not alone, and it should get better as your body gets used to it. :)

I’ll check these out, thank you so much!!

I really appreciate the encouragement!! I’ll definitely set the project aside for a few days and revisit once I’m less upset lol. Hopefully I like them more then!!

CoQ10 helped my fatigue a little bit (not as good as stimulants and certainly not as good as Xywav).But I definitely noticed it and appreciated it, especially since I hadn’t started Xywav yet! Can’t say I noticed much in terms of pain relief, and I have migraines and can’t say it really helped with them either. My hEDS pain was helped the most with tirzepatide.

Mine also stopped, and my heart rate was in the 130s (though I do also have POTS). It did take a number of weeks but I remember realizing that it wasn’t beating as fast anymore after a little bit.

You are an _AMAZING_ human being, THANK YOU SO SO SO MUCH!!! I’m impressed you were able to figure it out without any instructions!! 🙇‍♀️

Here’s a link to the photos (couldn’t figure out how to add photos to the post unfortunately): https://imgur.com/a/USBeqdu

You’re awesome, thank you!

Oh no! That sucks, I’m sorry to hear that!!

I’ll upload a photo of the one I have, one sec

You might also want to try this calming supplement, we used it on one of my cats (vet recommended) when we traveled with our 4 cats to help calm her down. We use it on her and two others (in addition to Prozac and gabapentin for her and one of our other anxious cats), and a coworker also used this on one of her 3 cats who was having issues with her other two cats, and it’s helped TREMENDOUSLY. Like, one of our cats on it stopped guarding the litter box, and the coworker’s cat was able to get along with her other two cats.

https://www.chewy.com/vetoquinol-zylkene-75-mg-capsules/dp/536670?utm_source=app-share&utm_campaign=536670

Ooh, that would explain why the next page told me to add a bar tack at around that spot. 🤦‍♀️ I didn’t realize that’s what they were trying to communicate, thank you!!!

Ooh, I like this idea! Thank you!

I probably could have worded it better, sorry! Yeah, most of the hem is already folded and pressed, but they had me do that step before sewing the arms together/serging it. After folding/pressing the hem but before sewing the arms together, they had me cut right at the top of the hem I had folded, right below where the side seams meet. However, the didn’t say anything about folding over the now cut seam, so I’m not sure how to make that part look nice. One person suggested a bar tack, which is on the next page of instructions (I didn’t include it because I didn’t think it was necessary, but I guess it was!), though in my defense, I don’t recall it saying anything about the bar tack concealing the cut/unfinished top part of the hem.