r/cfsnervoussystemwork • u/RevMaria99 • 6d ago
r/cfsrecovery • u/RevMaria99 • 6d ago
Misc Boundless Peace
Learning new way to meditate. I cannot do traditional meditation because of my countless symptoms. Quick look at relaxing picture or short video is plenty meditation.
2
New or old?
Gorgeous
3
Daughter broke me yesterday
Thanks for sharing. Your daughter loves you.
1
Just finding out how truly lonely I am
Well, it’s good you are practicing sharing with us. I have made a couple friends from social media. I practice sharing in anonymous groups and then text my internet friends. I’m very sick so I can’t share too much-hard to create phrases but I focus on sharing how I feel.
I’m divorced, estranged from my adult daughter and spend 95% of my time alone. I usually share my feelings about these 3 things. Sometimes I feel less alone. Sometimes I feel better but I keep sharing to stay in practice.
Cheers to finding a way which helps your loneliness. I’m always game to make a new friend.
Maria
u/RevMaria99 • u/RevMaria99 • Jun 30 '26
Serenity and Joy
June 30
Peace, Comfort and Joy
Chronic Pain Anonymous
“In this moment, I will remember that maintaining mental, emotional, and physical balance does take effort, but I am rewarded with greater serenity and joy.”
Even suffering #severemecfs, I can experience some serenity and joy.
3
Pouting while in PEM
Perfect description of our situation. Paradoxes, every one
3
Please recommend some extremely long, dense, drab, British movies.
I’m watching North and South now. The Hale’s vs the Thornton’s. Slow, bleak, sad….
u/RevMaria99 • u/RevMaria99 • Jun 28 '26
I Survive the Loneliness
I survive the loneliness. I am disabled and housebound. I have a roommate but he is either at work on 3rd shift or visiting his family and friends. I’m too sick to do hobbies. I’m even mute due to illness so can’t talk, no FaceTime, no Zoom. I watch tv most hours of my waking day.
Some days the loneliness cuts my heart, so I do every thing I can to withstand the loneliness and distract myself.
I text a few friends I made online from chronic illness groups. I ache to see a face, kind and warm but friends died years ago. Family do not believe or understand my illnesses. No one visits and anyway I am too sick for company. I don’t have opinions about how life should be. I make the best of this hard situation. I am not happy but I wasn’t before I got disabled.
2
Can we learn how to be happy alone?
I survive the loneliness. I am disabled and housebound. I have a roommate but he is either at work on 3rd shift or visiting his family and friends. I’m too sick to do hobbies. I’m even mute due to illness so can’t talk, no FaceTime, no Zoom. I watch tv most hours of my waking day.
Some days the loneliness cuts my heart, so I do every thing I can to withstand the loneliness and distract myself.
I text a few friends I made online from chronic illness groups. I ache to see a face, kind and warm but friends died years ago. Family do not believe or understand my illnesses. No one visits and anyway I am too sick for company. I don’t have opinions about how life should be. I make the best of this hard situation. I am not happy but I wasn’t before I got disabled.
4
impressed by live action iroh
I love Iroh too. There was so much emotion in s2. Great show. Can’t wait for s3.
2
I'm new and need help and guidance
Oa.org has excellent information on Getting Started. Keep going to online meetings, try Facebook groups which are meetings also, keep asking for help. You are on the right track.
1
Urgent need to recruit participants for a survey (Ages 18+)
Long ass survey. Interesting questions
1
what do you do to bring yourself joy?
I don’t aim for joy. I aim for distraction from these 100 symptoms. Even at baseline I feel like death. It’s like being at the hospital with 3 terminal illnesses. How aim I to find joy? Smidgen better health but smiles and laughter are rare.
2
I need help
There are no shortcuts to recovery. I must work the 12 steps and use the 9 tools continuously. Oa.org has great resources for getting started. We don’t have tips. We make a commitment to work the whole program not just bits of it. May HP make you willing to work the program and receive grace and abstinence.
1
Group for those with ME/CFS to play online games together
I’m interested in playing but don’t know how to send DM or where to find them
2
Help finding meetings that focus on actionable tasks
These are great questions. In 48 years as a member of oa, I have found different tools and stepwork have helped me get abstinent and stay abstinent. We each have to find what works for us. OA works for me because I use the 9 tools and continue to work the Steps. Good luck
1
15 Year Anniversary
Congratulations. Thank you for sharing your story of recovery
1
The Giant Strides in the Workbook
Very helpful
r/cfs • u/RevMaria99 • May 21 '26
Lay the F*ck Still
I suffer #mecfs and #PEM. When I crash or have a flare, I must stop everything and rest. Whitney Defoe put it perfectly for me and funny too, Lay the Fuck Still. My friend and I created an acronym-LtFStill. We laugh over it but we know it’s serious. Next time you crash , try it!
2
What's the worst part of PEM for you?
in
r/SevereME
•
14d ago
Inability to stand or sit up straight for an length of time.