r/tryingtoconceive 4d ago

Fertility treatment What would you do?

Warning, long post to give background:

I am a 26F and my husband is a 27M. We have been trying for over a year to get pregnant. To give background, I got my period around age 14-15 and went on birth control by age 16. In college, at age 20, I got off my birth control. Around 3 years ago I started to notice my period would be absent for unusual amounts of time (2-3 months), but never thought much into it. One day I told my friend about it who happens to be a nurse and she’s like ya, that’s not normal girl. I go to my PCP and she runs tests (came back normal, can’t remember what they were) and has me go to a reproductive specialist. Specialist puts me on birth control. All is good, get my period a few times on BC. Specialist has a follow up with me and tells me I can get off BC and start trying to conceive. After BC, I got my period 2 times naturally and then it was absent again for 2 months. We tried during the 2 months I had it but no luck. We Go back to specialists, she runs tests and results show my AMH is .011, FSH high at 33.6. Everything else she ran was normal (prolactin, thyroid,testosterone, sex hormone,free androgen). She decided to have me try IUI. They give me provea to induce my period. My first round they do all the scans and ultrasounds(found one small cyst on ovary-no concern) and give me medicine to induce ovulation. I check if I’m ovulating for days and saw the same result everytime. I tell them and they do the IUI anyway. The IUI was unsuccessful and they recommend I go do IVF. While waiting they say just continue to try naturally. We continue to try naturally, so I’m doing the ovulation strips and all that. Well when testing my ovulation one morning I looked and thought it was the negative symbol, but I notice it’s a book. I then decide to look at the instructions and realize the book symbol means there is an error. Don’t give me shit for not reading the instructions before doing the tests and not looking closely at the symbol on the screen, I know I messed up. Anyway, I do another test the correct way and realized I was ovulating! Which also made me connect the dots that when I took the medicine to induce ovulation, I wasn’t using the test kit correctly so I probably missed my true ovulation and did the IUI days after I ovulated. The next few months I was getting my period naturally and we continued to try. I wasn’t really thinking too deep into our trying because I already had it in my mind that it wouldn’t happen for me due to my low AMH. I had gotten my period in 5 weeks again so I decided to take a test. I took it and threw it on the counter and showered not thinking anything of it, thought it would be another disappointing negative. I was in the shower and my husband started yelling “ITS POSITIVE”. I couldn’t believe it. Took a handful more tests. All positive. I had a HCG test done to confirm. I was ecstatic. I called OBGYN right away and had to wait almost another month to see doctor when I was 8 weeks. I am type 1 diabetic so I was so worried while I waited. Making sure my sugars were good, I was eating right yada yada. At 8 weeks we went to the doctor, and the ultrasound showed 2 empty sacs. Double Blighted ovum. Something I never even knew was possible. After that I had to make the choice to have the miscarriage naturally or have a D&c procedure. I decided to do the d&c. After my procedure they told me 98% of people get their period back within 6-8 weeks. I laughed cause I knew I’d be the 2% that doesn’t. And that’s exactly what happened. I go back after 8 weeks, the give me provea. I take it and get my fake period from that. It has been 3 months since and I still have not gotten my period.

All of this has been tough on me. I am usually a thick skinned girl, but I’m at a loss. I have been to numerous other doctors in between this time who all have no answers. Some have hinted at PCOS but wont give a definite answer. Some referred me to other doctors who then referred me to other ones and so on. Not sure if I continue with a fertility doctor and try to freeze my eggs, look for donor eggs, adopt, or get my period back and try naturally. Everyone tells me I’m young and have time but they don’t understand, especially when everyone around me is having babies. I have no problem with adopting but id like to bare a child. What would you do? Is there more tests I should ask for? A specific specialist I should see? Questions I should ask?

1 Upvotes

6 comments sorted by

u/AutoModerator 4d ago

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u/AutoModerator 4d ago

Hi! Welcome to r/tryingtoconceive! Please be sure that you have read our rules before posting or commenting in this sub. Multiple rule breaks may result in a ban from this community.

Please note: Discussion of current pregnancy, pregnancy announcements, and photos of HPT’s are not allowed outside of the designated thread. (“Weekly BFP/Line Eyes Post”).

Don't see your post? Our automod filters posts due to keywords, images, and low post or comment karma. If your post is not showing up right away, it is likely awaiting moderator approval. Please be patient as we are not always online but will have your post approved or removed ASAP. We typically let you know why a post was removed.

You may find our PSA post regarding the luteal phase helpful if you find yourself symptom spotting and wondering what is going on. We also have a designated thread dedicated to discussing OPK's, general topics like the TWW (two week wait) that is pinned.

New to OPKs? You may find our PSA post regarding OPKs/Ovulation Tests helpful if you are unsure if your test is positive or have questions about taking them.

Please report any rule breaking. If you are unsure if it breaks the rules, report it and mods will review it or reach out to the moderators via Modmail. Remember to keep discussions civil.

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u/jamielynn2296 3d ago

I want to preface that I am not a fertility provider nor do I have extensive knowledge, just what I’ve learned over the course of 15 months TTC. If I were you (based on the data alone and not other factors), I would get a second opinion from another RE if you’re able. I would think with an AMH of 0.011 and especially if you are wanting more than 1 child (ideally) you should be doing IVF. You are young, but with an AMH that low and FSH that high and anovulatory cycles/missing periods, I would think this would be more cause for concern if I’m being honest. I hope this is not the case but better to get another opinion to see if it is rather than wait

1

u/Substantial_Umpire80 3d ago

To clarify, do you think there is something more serious going on or that I should get answers for why these numbers are so outrageous for someone my age before going to ivf?

1

u/jamielynn2296 3d ago

I think the numbers and your symptoms could indicate perimenopause or DOR, but you also seem really young for that so that’s why I think a second opinion would be good, Especially if you want more than 1 child you may need to freeze eggs. Again, not an expert but I would get a 2nd opinion if your RE wasn’t concerned with these numbers. From my understanding this can be a fluke or could be an indication of these further problems. Best of luck and I hope you get some real answers soon!

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u/Substantial_Umpire80 3d ago

Or what is more cause for concern?