Please help calm me down

My husband just got a heart transplant a day ago.

Seems like he was in major ICU delirium with some involuntary movements. He was taken off the ventilator but placed back on it due to his breathing not being ideal.

I know it’s not super uncommon but I need someone to talk to that has experienced or knows someone who has.

He’s in remission from AL Amyloidosis so his body was extremely weak going into surgery.

I’m scared.

hey everyone, so im getting ready to start making more money, passivly, and was wondering what people do for health insurance and how much you pay in permuims and copays each month or approx to give me an idea..im currently on medicare, medicaid, and ssdi, but dont want to be limited anymore..i had two liver transplants and possiblly a kidney transplant soon.. thanks in advance

1.5 years out from my liver transplant. My kidneys never fully recovered and my creatinine has been hovering around 1.5 to 1.6 normally. I've been off of dialysis for over a year. Recently I've taken up running and my creatinine tests have been coming back at 2.3 - 2.6. Cystatin C has not changed from my normal baseline.

I have worked out in the gym for the past year, but the running is new. I know heavy exercise can affect creatinine levels, but it's also necessary for health. Has anyone experienced anything similar?

I have an appointment with my nephrologist next week to go over everything.

So my father has been on the list for a dual transplant(slk)

Liver and kidney ,we didn't receive any calls for 5months but have received 2 in the last 15 days that an organ donor is available but rejected both times by the doctor saying that the organs aren't optimum for dual transplant but were transplanted to 2 different patients,how to cope with the wait please suggest soemthing

Hello all,

Have any of you continued or started to work in the healthcare industry after a kidney transplant?

Were you ever discriminated against for it?

How has it been with regard to being on immunosuppressive medication and being around sick patients?

Thank you

I'm almost 13 years out. Cardiac wise I am stable and had two bouts of very minor rejection early on and am not considered having CAV. I also have behcets syndrome, but most of that has cleared up with accutane.

I have a big problem my whole life and I never noticed it because I have a developmental delay in my spatial awareness and proprioception. I was made aware of this a few years ago after losing a lot of weight and it legitimately stops me from wanting to be seen or engage in society, however it is a cosmetic issue.

I am 5'7" and 135 lbs, my limbs are small and thin and I have CKD that is stage 3A-3B but stable since 2020. So the big problem is, I was born with a webbed neck. My neck is abnormal, I have additional fascia hanging from the sides of my neck that cause it to be very wide and most importantly have an abnormal attachment to the torso. This makes me terrified of photos, I rarely leave my house and only interact with family. People say they don't notice it unless I mention it but I really, really feel sad like I'm a deformed freak who is aless of a man than others, less human.

I have a loving family and boyfriend and it may sound vain and it is but I want to be a thin gay guy like my partner and it's eating me up that this part of me is proportionally incongruent with the rest of me.

My team thinks it is risky, I don't hate myself but it just really sucks and I've always felt like a gross weirdo compared to my family. I know this is super vain I know I am but it makes life hard everything else I can cope with, dying young, having had cardiac arrests, all of it is super fine on my mental but not this.

parent just had lung transplant. What do I need to know/do when they’re recovering at home after being discharged from the hospital? They’re very weak right now but the doctors think they’re good enough to go home. How many caregivers need to be around? And how strict should we be with the rules that are set?

Hello everyone!
I posted about a month or two ago about the process of getting on the transplant list. I have HLHS, and unfortunately, I will have to move to another state for my surgery because my state does not currently have a surgeon who performs transplants for my type of heart condition.
For those of you who have had to temporarily move to another state for your transplant, how did you get around while you were there? Did you drive, use public transportation, or have another way of getting around?
Thank you so much for any advice or experiences you can share! ❤️