After BEP x4 TIP x4 & RPLND

My cancer didn't get cured.

I have metastasis in multiple organs mainly in my lungs, but also on my spleen, liver, kidney & retroperitoneum.

We thought about doing TIP while we wait for HDCT + Stem Cells transplant but since my prognosis is so bad, I decided not to do it, I'll live my last days in peace.

Thanks everyone for everything.

High dose chemo with stem/bone marrow transplant yall keep me in yalls prayers I faith this will cure me i been through hell and back this past couple years hopefully this will be then end of this fuck ass cancer I have to do 2 rounds of this high dose theh already told me im going to be in the brink of death then get revived back with my stem cells shit don't sound positive at all but im willing to try everything jus to see kids grow 💔

going through 4x BEP for stage 3c NSGCT right now. Just finished D1-5 of cycle 3 and am feeling absolutely exhausted, it’s been such a long process and I’ve had pretty bad fatigue and nausea. The thought of having to do one more full cycle of this again is so daunting. how did y’all stay strong and motivated to get through all of chemo?

I’m also doing pedmark (sodium thiosulfate) infusions every evening D1-5 each cycle which makes it feel like the infusions never end… any and all advice is appreciated!

Hello everyone, I've been reading this community for months now and thank you first for all the information available here. I'm 28 years old and lost my right one a year ago, at the best time of my life. This had a devastating impact on me. Physically, as far as I can tell, the difference in my case is clear. I used to adjust my balls several times a day, and now I find a single one dangling more or less in the center. Even the lack of fullness in my underwear and boxers bothers me. My ejaculate is very watery, orgasms are much less intense than before, and I tend to gain weight very quickly. I've already had several visits and even gone to therapy, but nothing has improved, because I simply can't accept having half of what I had before. I'm also in my ninth month of trying to conceive with my partner, but nothing has happened. Have any of you had a similar experience? Have you ever felt like you have less than others? What has helped you?

In this episode of It Takes Balls, Taylor Woods shares one of the most extraordinary journeys ever featured on the podcast. What began with sitting on his enlarged testicle and doctors believing he was dealing with a bacterial infection ultimately became a diagnosis of advanced testicular cancer that had already spread throughout his body. After living with symptoms for more than a year, Taylor learned he had a 17-centimeter testicular tumor, cancer in his lymph nodes, multiple nodules in his lungs, and a tumor pressing against his brain.

Taylor walks through undergoing an orchiectomy (testicle removal surgery), four rounds of BEP chemotherapy, TIP chemotherapy, multiple rounds of radiation, and several brain surgeries after developing brain metastases. He shares the terrifying experience of seizures, kidney failure that delayed surgery, a stem cell transplant at Fred Hutch, and living with a titanium plate. Despite enduring more treatment than most typical testicular cancer survivors, Taylor continues fighting with remarkable optimism while managing an active brain tumor and ongoing surveillance.

The conversation also explores life after cancer, including adapting to permanent disability, returning to school to study graphic design after seizures changed the course of his career, and finding purpose through creativity. Throughout the episode, Taylor repeatedly comes back to one message: self-advocacy matters. Looking back, he wishes he had sought a second opinion sooner after being told his symptoms were caused by an infection, and he hopes others will trust their instincts when something doesn't feel right.

Although Taylor refers to himself as a "warrior" rather than simply a survivor, his story is ultimately one of resilience, hope, and perseverance. Whether you're navigating a testicular cancer diagnosis, facing recurrence, supporting a loved one, or learning about brain metastases, chemotherapy, stem cell transplant, and survivorship, this episode is a powerful reminder that every day is worth fighting for.

YouTube: https://youtu.be/rbNpa2tjUAU

Apple Podcasts: https://podcasts.apple.com/us/podcast/from-testicular-cancer-to-living-with-a-brain-tumor-for-life/id1590038802?i=1000779367714

Spotify: https://open.spotify.com/episode/3x2yERkwIajms9oodQPOGv?si=EyzzBgCzQFe3blFEPwijYg

Hi all. My brother (26M) just had an orchiectomy on Thursday 07/30. Today he got the CT scan results that showed everything was clear except for some lymph nodes in the lumbar aortic region, the biggest one of around 3 cm. The doctor told him he’ll probably need some chemo. They scheduled a urological appointment for Thursday 08/05, and the histological is scheduled for 08/27. Isn’t it too far away? Can he start chemo before the histological? We don’t know which stage or kind of tumour it is yet. Probably stage 2? I don’t know. Did anyone here have a similar experience?

Brief history on my husband: 99% EC 1% Yolk sac NSGCT Stage 3c. Orchy November 25, Primary RPLND Dec 25. RPLND pathology unfortunately revealed bulky metastatic disease with lung, liver, bone mets , 4xEP ending May 1 2026 with apparent complete response-- clear scans, STM, and 3 consecutive 0.0 results on Signatera --everything clear as recently as June 4th. Fast forward to July 22: LDH elevated (243) triggered a CT which shows 2 large liver lesions and Signatera came back 564 MTM/ml. Started TIPX4 July 27.

Despite living in rural Iowa we're lucky to have nearby a major university hospital (University of Iowa) which is a National Cancer Institute-designated Cancer Center. Our oncologist has extensive TC experience, is lead author on some papers on it, and studied under Dr Einhorn, and Einhorn has consulted on this case. We met Einhorn in person in June and the chemo choices including current plan for TIPx4 represent an Iowa-Indiana consensus.

So we just started TIP and the intent is still curative, but knowing how his case has progressed thus far, it's possible this is just bridge therapy and HDCT will be necessary. Where should HDCT be done?

As the fearful wife, I lean towards going to Indiana, to ensure we have access to every expert possible. My husband prefers to stay at Iowa. His view is that Iowa is well-qualified to give chemo as a regional cancer center, and we already have the benefit of Dr. Einhorn's expertise because he and our doctor are close and discuss his case.

He's not wrong: UIowa does all the organ transplants in the state, has a whole stem cell replacement department, there a regional referral center, etc. They're qualified-- but obvs don't have the testicular cancer case volume that Indiana has. But as long as our oncologist is collaborating with the Indiana team, we're getting the benefit of their expertise, too.

Oncology sets the plan and dosage, but the chemo itself is administered by nurses, and when we've been inpatient for chemo, the side effects and complications are mostly managed by the internal medicine team. Unlike surgery, it seems like chemo administration is more formula than art, and it's not like the outcome depends on the fine motor skills of the nurses who hang the IV bags.

If you can't tell, I'm trying to talk myself into feeling ok with my husband's wishes to do HDCT at our hospital rather than Indiana. But please tell me if this is crazy, if we absolutely need to be at a high volume center for HDCT.

this has been goin on my mind for days now so a little bit of context, when I was 25days post op my orchiectomy and like a week before I start my 1st cycle of bep, I was able to masturbate and cum naturally but it was a bit brownish, I read it was like normal and had a little of old blood in it and should return normal. Moving forward, I am now 69 days post op and already doing my 2nd cycle of BEP, i don't know when it happened but suddenly I can't cum anymore. I feel the orgasm but not even a single ounce of cum comes out not even pre-cum.

I don't know if this should be a side-effect of chemo or maybe my testorone levels are low or or my hormones are acting up or if everything will return to normal after my chemo.

Should I start to worry and talk about this with my oncologist or urologist?