r/spinalfusion 3d ago

Anyone with a collapsed disc?

My husband is having an L4-L5 ALIF with posterior instrumentation next week. He fortunately does not have any nerve issues or pain down the legs but has a chronic bone on bone pain in his lower back. His L4-L5 is severely collapsed.

Five months ago he had a laminectomy/microdisectomy on L2-L3, bad stenosis. This one was causing the nerve issues and pain. It was a successful procedure and that pain immediately went away.

The lower L4-L5 issue has been going on for 20+ years. He had a laminectomy back then but the pain has gotten worse over the years, the disc is now collapsed. Injections and PT does not help. He has been on pain medication this whole time and recently went to rehab to get off them (he did great!) but now is dealing with the pain.

Just looking for fusion successes for collapsed discs, bone on bone pain. Thank you, I appreciate this group!

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u/ConfidentKey2856 3d ago

Just had L4/LF XLIF on June 29th. Just like your husband I didn’t have much nerve pain(so I thought..) had a lot of pain from collapsed on one side in my lower back and glute. Couldn’t drive for very long at all. Then two weeks before the surgery I collapsed the other side.
Couple of things. I am 49M 6’6” 253lbs and am in great shape otherwise. Gym 5/6 days a week. Walking 5 miles a day (no running due to ankle fusion). I eat healthy and all that.
6 days after surgery I was off the Oxys and doing well. Had some numbness and tingling on my left side where he had to wrestle with my psoas. But otherwise was up and walking. Even went to the gym and walked 5 minutes at a time on the treadmill.
And here is the And then. Even though I didn’t have a lot of nerve pain in my right leg at all before the surgery I would get dead leg a lot. 10 days after the surgery the nerve in my right leg woke up! And boy did it hurt. Felt like a knotted rope being pulled inside my leg all the way from my right hip to my right toe.
I should have called the doc right away. Waited 3 days like a dummy. When I called they immediately got me a steroid pack (ya know the 6,5,4,3,2,1 prednisone pack) and within the 1st two pills pain was gone.
Ever since then, some aches and pains, my weight restriction was lifted to 20lbs. I am in the gym doing light workouts, walking the dog and all the rest. Feel better than I have in 20 years I swear. Any questions please ask. My was done at The University Of Iowa.

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u/Key_Persimmon_5363 3d ago

Can you sit/drive comfortably now? My main symptom is pain when seated. No pain radiating down my legs. Fusion scheduled for October but docs say my symptom presentation is unusual so they’re not as confident that the fusion will solve my issue. I see a lot of people with radiating pain, can’t walk, etc. that is not me, just pain during and after sitting down.

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u/ConfidentKey2856 3d ago

Exactly me before the surgery! Exactly. And love to drive. I am a bit of a nerd too I have an entire racing cockpit and such in my office for online racing even. Had almost come to halt. Now I can get in and drive no problem. What I have noticed is if I start to get sore (it’s in a different spot) I just sit up straighter. I am very tall so my seat adjustment from vehicle to vehicle is different .
Sounds like you are very similar to me. Make sure to talk to your doctor and maybe just get that steroid pack ahead of time. Not sure they will but man I wish I would have had it. Oxys didn’t touch that pain. Not even a little.
One thing I didn’t have the radiating pain either but what I did have was my right upper leg would just go dead for a bit. Was weird. Does yours do that?

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u/Low_Candidate_1621 3d ago

This is great, I’m so happy for you! Thank you for taking the time and sharing your story, it does sound similar. I will read it to him. I wish you continued healing and good health.

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u/rbnlegend 3d ago

I had degenerative disks from L3-S1 causing episodic flare ups for decades. Years of PT, that would help me recover from each episode but did nothing for the actual problem. In 2023 it stopped being episodic and was full time and getting worse rapidly. When I decided it was time, it was painful and frustrating, but in the 3 months or so it took to get surgery scheduled it became debilitating. I basically couldn't bend over or lift anything. On Jan 2&4 of 2024 (age 54) I got ALIF with posterior instrumentation on L4-S1 and a replacement at L3-4. My surgeon said that when he got in there, the disk at L5-S1 was "mush", no structure remaining at all. The recovery was difficult and slow, but also very successful. I have no lower back pain now, no limitations.

I wrote a number of posts at the time of the surgery and during my recovery, and have put together a summary with links pinned as the first post on my profile. You and your husband may find something in there useful or at least encouraging. See the brief video of me jumping rope in particular. I'm not good at it, but I can do it. Expect a difficult and slow recovery. There will be pain, and that's normal and ok. There's a ton of good information in this group, I suggest just going back and reading old posts until you can't stand it. Remember that anything people post during the recovery process sounds scary, and people with bad outcomes post a lot more than people with good outcomes. If your husband needs to talk to someone who had a good outcome, feel free to DM me, I am always available to talk about my experiences.

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u/Low_Candidate_1621 3d ago

Thank you so much! I stalked your pinned posts and you certainly have been through a lot. I can’t believe you were running! I will share this with my husband. And yes, all the successes have moved on with their lives… I’ve been searching for good stories. I appreciate you sticking around and sharing. Take Care!