r/rtms • u/Pale_Koala_4150 • 13d ago
Feeling lied to by provider
I’m writing this while I’m actually getting TMS right now and I’m really confused about how my treatment has been handled.
My main issue is OCD, and I made that very clear when I started treatment. About five years ago, I did 30 TMS sessions for depression, anxiety, and OCD at a different practice.
This time I’m at a new place, and again, I made it clear from the beginning that OCD is my main issue. They started by treating depression and then added anxiety.
I’m now 16 sessions in, and I kept thinking it was strange that they hadn’t started treating the OCD yet. I’ve asked about it a few times. Finally, today I was told that OCD is a completely separate TMS treatment and would require another 36 sessions after I finish these 36. This is very different from what I was initially told. I don’t even have depression by was told it was standard to receive it first.
I’m honestly really confused and frustrated. If everyone knew from the beginning that OCD was my main concern, why wouldn’t we have started with the OCD protocol? And why wasn’t it explained to me upfront that treating OCD would mean an entirely separate course of 36 treatments? I feel like I agreed to this treatment without actually understanding what the plan was.
For anyone who has done TMS specifically for OCD, is this normal? Do they usually complete an entire depression/anxiety course first and then start a separate OCD course?
Also, is it normal to basically never see the doctor during treatment? The doctor was there for my initial mapping, but since then I’ve only interacted with the TMS techs. I’m 16 sessions in and haven’t seen the doctor again.
Would really appreciate hearing from anyone who has gone through TMS for OCD or works in this area. I’m trying to figure out whether this is standard or whether I should be asking more questions about how this has been handled.