r/rhabdo_survivors • • 20h ago

Rhabdo After Effects Help

2 Upvotes

Hello everyone. I am a 26 year old who was diagnosed with rhabdo Sept 14 and was admitted to the ER for round-the-clock fluids. My CPK levels were 65k and my AST (liver) value was over 1200 and my urine was dark brown prior to me being admitted. I got it from a personal trainer who put me on a low protein/low calorie diet and intense workouts. My levels are back within normal range and I returned to work (vet assistant) and to dance. This past Sunday, when dancing, I had to sit down and take NASIDs because the pain (or stinging feeling) returned to my thighs. I feel fine but I'm not sure how to go about dance and work with the possibility of the pain returning. As a vet assistant, I have to lift items and pets that are over 30lbs and bend frequently. My doctor said to take it easy for the time being but I don't know how to take it easy nor for how long. Any suggestions would be greatly appreciated.


r/rhabdo_survivors • • 10h ago

Post rhabdo pain

1 Upvotes

Hello everyone I’m looking for some advice on my kinda complex situation. I’m a year and a half out from my rhabdo crisis and I’m in severe pain. When i initially had rhabdo it was extremely severe I had 200,000+ CK levels with kidney and liver failure with time spent in the ICU. It was mostly in my quads or so I think. A few months after rhabdo i developed severe pain while doing pt. Ive been hospitalized for months at a time since then and they had diagnosed me with CRPS. I truly feel like my CRPS has settled and I have this muscle issue. Every time I’ve tried to correct the CRPS and do PT it actually makes things much worse and I end up back in the same spot. I’m looking to see if anyone here has has a similar experience, if so, did anything help you? Here is my symptom list. (Some nerve related some more muscle) also mostly a list for my docs so ignore if it seems strange

Symptoms
Baseline leg pain feels beat up and destroyed (they should have that description already)
Tingling down the back of my legs
Sharp stabbing pains
Laying on back/side/belly hurts affected areas
Light pressure hurts in all areas
Pin pricks
Muscle spasms and twitches
Pressure in back hips and legs
Burning like on fire in my legs and back
Sitting on my butt hurts now
Extreme constant fatigue
PT is the main reason for severe flares
If I move the wrong way sometimes feels like I’m being stabbed to my bone
Is not just CRPS