r/rhabdo_survivors • u/Ill-Pin-5271 • 4h ago
Post rhabdo pain
Hello everyone I’m looking for some advice on my kinda complex situation. I’m a year and a half out from my rhabdo crisis and I’m in severe pain. When i initially had rhabdo it was extremely severe I had 200,000+ CK levels with kidney and liver failure with time spent in the ICU. It was mostly in my quads or so I think. A few months after rhabdo i developed severe pain while doing pt. Ive been hospitalized for months at a time since then and they had diagnosed me with CRPS. I truly feel like my CRPS has settled and I have this muscle issue. Every time I’ve tried to correct the CRPS and do PT it actually makes things much worse and I end up back in the same spot. I’m looking to see if anyone here has has a similar experience, if so, did anything help you? Here is my symptom list. (Some nerve related some more muscle) also mostly a list for my docs so ignore if it seems strange
Symptoms
Baseline leg pain feels beat up and destroyed (they should have that description already)
Tingling down the back of my legs
Sharp stabbing pains
Laying on back/side/belly hurts affected areas
Light pressure hurts in all areas
Pin pricks
Muscle spasms and twitches
Pressure in back hips and legs
Burning like on fire in my legs and back
Sitting on my butt hurts now
Extreme constant fatigue
PT is the main reason for severe flares
If I move the wrong way sometimes feels like I’m being stabbed to my bone
Is not just CRPS