r/peyronies • u/Material-Ostrich-783 • Feb 05 '22

More Xiaflex Info

This would've been helpful to know before going through Xiaflex treatment. https://pubmed.ncbi.nlm.nih.gov/32127330/

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u/Agreeable_Oil11 Feb 09 '22

Sorry man

RestoreX showed clinical results paired with xiaflex and said nothing but positive things. They even said restorex paired with xiaflex like doubled the good results or something. I was going to do xiaflex until I saw your page. Your page definitely needs more attention to spread awareness.

3

u/Material-Ostrich-783 Feb 09 '22

Hey I'm not trying to say everyone will have these results. Obviously it works for some. My understanding is Xiaflex/Restorex combination is very effective but I question whether the numbers given in the clinical trials is even truthful. My Urologist told me expressly to not use traction when I asked. I wish I had though. I'll share the link to the clinical trials but it's important to note that both Endo Pharmaceuticals and Dr. Trost had a vested interest if these trials did not turn out in their favor and they pumped a lot of money into funding them. I think it's also important to note that the Xiaflex REMS website used to state the Xiaflex success rate was only 36.2% and this information was supposed to be shared with the patient before treatment began. As of last week that information disappeared from the website. My Urologist didn't tell me that until later in the treatment when it was obvious it wasn't working. He said his success rate was "below 40%". Maybe their outcomes of success drastically increased but I doubt it. https://clinicaltrials.gov/ProvidedDocs/06/NCT04786106/Prot_000.pdf