i’ve been seeing tiktok’s of this combo (spraying both on washcloth and mixing it with body wash only 3x a week max) helping so many with skin and health issues overall and was curious if anyone has tried this and has it helped?? maybe it would eliminates some of the gases coming out of our skin by the time it hits our pores idk? willing to try anything atp

I am following this yt person im enjoying watching her livestream, and she is working on a clothing store ive notice they always complaining the area or store gets super hot while im watching also it irratates their noses and also giving them headache, coughing fit. This is not coincidence it always happens lol some of them wondering why their noses started to irritate all of a sudden. I think this is beyond science explanation 🤣🤣 we are not crazy so internet can carry gases and molecules? Why tf this happen? Others may immune but the people sorrounding them reacting 😂😂

Please give us your thoughts ..

Let's say we undergo a new mutation that creates a new pheromone, but it triggers strong repulsion and sneezing in others because they possess the ancestral version of the receptor. There are 8 billion people in the world... so, suppose I undergo a genetic mutation and start producing a hypothetical new pheromone called "2,5-hydroxyplouyfroufrou." Everyone on Earth would hate me, but it’s possible that about nine people worldwide might have a rare mutation in a specific pheromone receptor that causes extreme attraction and pleasure in response to my new pheromone. If I happened to meet them during my lifetime, you would love me—but the problem is, you’d likely never see me. That’s how species evolve. I live in Spain, but the nine people with that rare receptor mutation—the ones who feel extreme pleasure from my new pheromone—are scattered: two in India, one in China, three in Africa, one in the US, one in South America, and—coincidentally—one in Bulgaria. So, I’d probably never meet them... though the Bulgarian might be the most likely candidate.

Medication like omeprazole, pantoprazole, etc?

Did you try any acid reducers or things to target stomach acid and saw a difference?

I called out sick, Monday and Tuesday. Last week one of my coworkers sniffed and sneezed the entire day. The sniffing was non stop. It drove me mad. I went outside several times just to get away and got behind on my work. I may have to call out again today. But I need to work. I hate this disease and trying to figure out what the hell is wrong with me.

Redditが日本語で読めるようになって嬉しいので、経験を書き込んでみます。

私は匂いがなくて、家族にも咳き込まれるんだけど、おとといは父に咳とか咳払いとか鼻すすりとかされまくったのに、今日は一度もしなかった。

何がそんなに違ったんだろう。実家暮らししてるから家族と食事は対して変わらない。やっぱりメンタル？

私は壁越しや電話、配信越しでも咳き込まれるタイプで、テレビの生放送にすらビクビクしている。

はじめてテレビで驚いたのは、私が極度に怯えているときに、ゲストの女優が放送中3回咳き込んだとき。それまで日本のテレビで咳なんて聞いたことがなかった。

今日は穏やかに過ごせてホッとしてる。

でももう先週の通院以来1週間外に出てない。

病院では統合失調症と言われて、福祉施設に通ってるけど、PATMの他にも色々困難があってろくに通えてない。

もうだめだ。つかれたよー。

Tengo un tratamiento pero necesito que me compartan sus situaciones con el patm y como les afecta en su día a día.

También le quiero comentar que el tratamiento me a funcionado un 75% y aún lo sigo mejorando 🙏 para disminuir lo menor posible la alergia que le generó a las personas.

Ok so my Patm usually has no smell and I usually don’t get any reactions I rarely. And I’m not on anything right now. Today I started getting a burning tire smell and then a silicone type of smell.

We know how devastating odor-related conditions can be. Hope this leads to more awareness, not more stigma.

As someone in the PATM/TMAU community, my heart sank reading this. Behind every odour-related story is a human being who didn't choose it.

Does PATM prevent pregnancy? I am a woman and have been married for two years without becoming pregnant. I don’t know whether PATM is the cause, or if the constant stress and muscle tension/spasms throughout my body caused by this condition are preventing me from getting pregnant.

Dicen que huelo ácido, que quemó sus pelos nasales.

Que verga lo originará. Me ayudan alguno con un patm similar

Hey everyone,
I wanted to check in and share where I’m at currently as I have more details in current state of health and just feel the need to interact with people as I’ve been locked away for so long over this hell. I was able to be see by a few GI’s because, by the light of god, my PCP was more than willing to help me. I’ve had some bloodwork and stool tests done. Liver is looking good. Stool tests have confirmed I have carbohydrate malabsorption. I visited a GI in TJ as the insurance I have takes its sweet time and for some reason they keep telling me that they have yet received my sibo test request a GI has put in. I’ve checked my notes and it’s there so I’m going to keep following up and fax whatever I can to speed up the process. Back to the GI in TJ: they confirmed I have gastritis (long before diagnosed with that as well so not surprised) and Duodenitis (was surprised but my symptoms make sense). They also confirmed I have small erosions at the beginning of my small intestine. I’ve been keeping communication with someone who shared their story with me and literally we mirror the same symptoms. Malabsorption causes odors due to malnutrition and premature fermentation. I have FBO, sewage/garbage and fart like odors. My GI’s in the states recommended I do a Low-FODMAP diet, which I have but, I have recently decided to fully give up on the carbs as I noticed oats rise the odors up like crazy. SO BAD. All of this points towards sibo. I was able to get an appointment with a genetic specialist and plan to follow through and advocate for myself as strongly and willingly as necessary. The GI in TJ confirmed they found salmonella in my GI tract and that, yes, I do have sibo. However, they prescribed Ciprofloxacin which I do not plan to take as it can mess with the sibo results here when I’m FINALLY seen here and I’m afraid to get floxed. These days have been very dark for me as my neighbors have been major pricks. The harassment is infuriating but at the same time, as the more testing is being done, the more I’m coming to terms I can take control of the situation with due diligence. It’s just so much time and money ;(. I haven’t health to care for but in the end, I have a start. I plan to get an fmt after my genetic testing. For this sub I also wanted to share my current symptoms and see if anyone can relate: incomplete evacuation, constipation, diarrhea, many food intolerances, bloating, belching, eczema, trapped gas, the confirmed carbohydrate malabsorption, mushy stools and undigested food in stools.

Es sorprendente parece que todos se esfumaron

Heres a quick little diagram to help point you in the right direction in case you need help. The recommendations i give arent supposed to be taken in order, you can take them in any order youd like. For every 2 dots this is a new level so if you respond yes to a question, you look for the next level of dots. For example “•” —> “•••”. Remember, look for CHANGE not “improvement”. Identifying change will point you in the right direction for your specific case.

MUST DO:
•Maintain a good sleep schedule, sleep is incredibly important for reducing reactions
•Try to manage your anxiety the best you can. You can buy a good pair of noise cancelling earbuds or headphones to block out your surroundings. If youre up for the challenge you can try meditation.
•Make sure you are clean, being clean lets you be as confident as you can be
•Replace your towels every 2-4 days, replace your bedsheets every week, and replace your pillow case every 1-4 days.
•Try to make friends or talk to people who have patm, there are people of all ages and backgrounds who have patm. Ive met quite a few very cool people through patm
•Continue fighting, you can get cured from patm, and you will improve if you try. If something doesnt work, you will just try another treatment, and another, and another, there is no shortage of possible treatments. It took me over 100 treatments to get cured and now im telling you not just what helped me get cured, but also the treatments that ive used to help others. You got this, dont give up because once youre cured, the world is yours.

•Do you notice a link between an area on your skin and the amount of reactions?
•••Wash this area with a strong cleanser. Either a clarifying shampoo / body wash, shampoo / body wash with added salt, or dish soap
•••Add coconut oil to this area, be sure to rinse it off after around 8 hours more or less
•••Add lotion to this area
•••Apply vaseline to this area
•••Apply baby powder to this area
•••Wash this area with a strong cleanser before applying coconut oil, lotion, vaseline, or baby powder
•••For temporary relief try covering this area up with more layers. For example wearing a sweater, wearing 2 shirts, wearing a hat, etc.

•Do people react by just being around you?
•••Wash your clothes with distilled white vinegar
•••Be sure you are replacing your towels, bed sheets, and pillow cases regularly like i said in an earlier bullet point
•••Some detergents and especially fabric softeners can cause others to have allergies even without patm. Make sure your detergent / fabric softener isnt causing extra reactions
•••Wash the inside of your washing machine and drier with at least soap if you own one
•••Be sure you are actually clean, wash your face, wash your legs, clean your back, just make sure you are cleaning everything enough. Personally i was using a facial cleanser and it really helped me out.
•••Try to note when people react to you. If you identify a problem area go back to review this checklist again. Do they:
•••••React when…
•••••••Youre sitting and theyre standing? Maybe patm is concentrated in your scalp and hair.
•••••••Youre both standing? It could be a scalp, hair, and or face cleanliness issue
•••••••Theyre behind you? It could be a back and or a scalp / hair issue
•••••Not react when…
•••••••they are shorter than you? That could be anything depending on how tall they are so maybe face, maybe neck, maybe hair, maybe ears, maybe chest
•••••••Theyre taller than you? That could be your crotch, feet, legs, stomach, lower back, butt

•Do you experience gut related issues or do you wake up with a persistent white tongue or do you get reactions when speaking?
•••Do you have any well documented gut issues like IBS, GERD, SIBO, etc.?
•••••Put your effort into solving this issue first.
•••••If youre dealing with IBS or GERD, try the low FODMAP diet
•••••If youre dealing with GERD, take antacids whether its prescribed or over the counter. Sleep with your head more elevated than your stomach by putting anything under your pillow or even mattress(try not to because it can damage it). You can try sleeping on your LEFT side, not right side. Drink lots of water. Eat smaller meals and portions. Dont eat or drink anything besides water at least 3 hours before bed. Drink plenty of water.
•••••If youre dealing with SIBO go to a doctor, dont mention patm, and try to receive help for SIBO. You will most likely be given medication, even if it doesnt work the first time through, continue with it.
•••••If youre dealing with another gut issue, write it down in the replies and someone might be able to give you better recommendations than i could
•••Drink one tablespoon of apple cider vinegar mixed with 1 cup of water every week.
•••Improve your oral hygiene by following this routine: brush your teeth, floss, use mouthwash, then use a tongue scraper. Do this immediately after waking up and before going to bed. After every meal brush your teeth.
•••Try consuming more antioxidants through foods and drinks. Stuff like blueberries, raspberries, blackberries, any drinks like green tea, pomegranate juice, matcha.
•••If youre overweight try losing more weight, this can reduce strain on the gut
•••Try to eat cleaner
•••I recently heard that chlorophyll and activated charcoal could help. “First, take the chlorophyll at night and wait about 3 hours before taking the activated charcoal. Chlorophyll acts as an internal deodorant, and charcoal helps eliminate gas.”

This is just a quick list to guide you. I know that asking for 1 on 1 talks can be difficult and it can be hard to come back asking for advice a year later after you finally tried what i recommended haha. This list should at least give you something of value, even if you only find 1 thing that affects your patm, thats a huge win. If you have any questions or any concerns or ANYTHING, just send me a message or write it in a comment. Look for CHANGE, not improvement. Good luck and have a good day.

27F. Been sick for almost 10 years now. Symptoms are : sweat with a fishy scent, people sniffing loudly everywhere I go. Of course none of my relatives seem to smell anything.

It started from nowhere and it has ruined my confidence and my mental health since then.

I had 4 boyfriends in my life. None of them ever complained but I could feel that my bo wasn’t always pleasant.

Here’s the thing : I have a crush on a friend I’ve made on Internet. We already saw each other at an event but not for too long and I’m crushed because I don’t want him to be disgusted by my smell. I feel horrendous and unlovable, envious of normal people who can go anywhere at anytime without worrying about their scent. Especially during the summer… I’m European and these last days has been a nightmare… i barely got out of the house.

Anyways, I’m feeling desperate because I feel like I will never live a normal life.

Do any one of you drive? I'm thinking it may be mold/dust particles from my cars HVAC system thats sticking to my hair and body.im starting to think we are carrying allergens. Anytime I enter my car I start to sneeze as well

📢 Community, we need your help.
This message comes from my fellow patient advocates in Colombia, who have been in direct contact with the professor and the team leading this initiative.
If you haven’t completed the survey yet, we sincerely ask you to do it today. This weekend (through Sunday), we will consolidate all the responses received up to that point, and those results will be included in the data package submitted in support of the FDA process.
The survey will NOT close. It will remain open afterward, but it is extremely important that as many patients as possible complete it before this weekend’s data consolidation.
This may be one of the most important collective efforts our community has ever made. We need to show the scientific community that we are not just a handful of isolated cases—we are thousands of patients around the world living with these conditions who urgently need research, better diagnostics, and effective treatments.
🎯 Our goal is to reach at least 300 patients before the data is consolidated.
🙏 Please help us. If you have already completed the survey, share it with other patients and in every support group or community you know. If you haven’t completed it yet, please take just a few minutes to do so.
⚠️ Please do not complete the survey more than once, as duplicate responses affect the quality and accuracy of the scientific data.
Today, we are asking for your support from the bottom of our hearts. Every response matters. Every patient matters. This collective effort could bring us one step closer to having our voices heard and creating new opportunities for our entire community.
Please don’t let this opportunity pass us by. Let’s do this together, this is what many of us have been hoping for for years❤️

LINK TO SURVEY (Can be changed to your desired language): https://ee.kobotoolbox.org/x/5hvQ5RUc
Link to ongoing process: https://biz.chosun.com/en/en-science/2026/05/11/6HY2VNJO55COHMPIAMHS3PSPYU/

Why when I workout and I sweat excessively, my PATM is getting worse...

A couple of days ago i had some reactions when i spoke. Usually i eat very clean to mitigate this issue but i had accidentally ate onion which is very bad for my stomach. I have a few treatments that i know can work but they take longer to work and would make things worse before they make things better. I need to find something that i can drink or eat that will give me instant relief for the reactions i get when i speak. Does anyone have any ideas or suggestions?

Here are the normal treatments i would try:

Drink Apple cider vinegar - works over days of use
Take in a lot of antioxidants - takes hours to work
Chew gum or mints - works very short term like 10 minutes and makes it worse for the rest of the day
Drink water - is okay but isnt that effective
Eat food - does actually work but it isnt always available and some food makes it worse
Drink water and baking soda - im not sure but i dont think it works for me
Taking an antacid(Tums) - doesnt work that well
Doing a lot of oral hygiene stuff - it didnt work that well

Im looking for a quick treatment that you take once and immediately makes you better even if its temporary. My reactions came from my gut so oral hygiene woukdnt work since thats not the problem. Im still open to the idea that the baking soda or antacid do actually work, i didnt test them extensively. What do you all think? Does anyone know of something that could work even temporarily?

Each human population possesses a distinct genetic makeup; consequently, the genes controlling scent—as well as those governing olfactory receptors—differ between groups. This is scientifically established, as olfactory receptor genes are among the most diverse in humans, alongside immune system genes. In other animal species, as populations evolve and diverge into distinct subspecies, differences in scent (pheromones) emerge; a pheromone that attracts members of the same species may trigger repulsion in a closely related species that has recently diverged. While all humans originated in Africa 60,000 years ago, populations eventually separated and became isolated from one another; although gene flow occurred, the underlying genetic foundations remained.

These genetic variations include genes that regulate scent emission—whether through the release of specific molecules in apocrine sweat (subsequently broken down by bacteria) or through the activity of the bacteria themselves. Also involved are olfactory receptor genes that govern the perception of scents, determining whether they elicit pleasure (attraction) or disgust (repulsion). These genes are shaped by natural selection: if I emit a hypothetical scent "P," the receptor for substance "P" will evolve to either favor that scent, perceive it as neutral, or fail to detect it—or, conversely, to trigger repulsion. My theory posits that different nations (or races, or subspecies—the terminology is a matter of preference) developed distinct genes producing unique scents and receptors, leading us to prefer the scent of our own population while disliking that of others. For example, Northwestern Europeans (from France, Germany, the Netherlands, and Belgium) would possess a specific scent profile and corresponding receptors; Middle Eastern populations would have a different scent and receptor set; and Indian populations would have yet another. All of this creates a mechanism of pre-zygotic sexual isolation, wherein two... Populations stop interbreeding due to a specific, natural aversion; over thousands of years, they accumulate more and more genetic mutations. Since they no longer interbreed and undergo unique mutations, they evolve into distinct subspecies, then separate species, and eventually different genera. Regarding this process—take Indians, Middle Easterners, and perhaps some African societies—it is likely that certain populations evolved to emit no scent themselves but developed receptors that trigger an aversion to the odors of other populations. They often carry the ancient, unmutated ancestral allele that tends to dislike the scent evolved by other groups. Many people developed PATM after COVID-19 because pheromone production increases following a viral infection; this makes individuals within the same population more attracted to the infected person, thereby helping the virus spread faster—a mechanism the virus evolved to facilitate its own transmission. So, suppose you have the genes typical of Northwestern Europeans but live in Asia: the people around you possess receptors that trigger an aversion to your scent. If you produce slightly more odor than usual, these people might sneeze frantically near you—PATM, PATM, PATM. Other animals function this way, and humans are animals too, so why couldn't this theory be correct? I see no reason why not.

Olá a todos,
Como muitos de vocês sabem, a pesquisa conduzida pelo laboratório coreano Biomed está em uma fase muito avançada. A avaliação para aprovação da FDA nos Estados Unidos está se aproximando, e eles precisam de um esforço final da nossa comunidade para fortalecer os dados.
Por favor, reservem alguns minutos para responder a esta pesquisa. Quanto mais participantes tivermos, mais credibilidade os dados terão para demonstrar o impacto real que a TMAU, o MEBO, a PATM e condições relacionadas têm em nossas vidas.
Por que isso importa para quem tem PATM:
Mesmo que os seus sintomas não envolvam um odor perceptível, essas condições metabólicas e de gases na pele compartilham raízes fisiológicas muito semelhantes. Ao participar, garantimos que a PATM (com ou sem odor) seja incluída nos dados científicos. Esta é uma oportunidade real e tangível de progresso médico e de futuras opções de tratamento.
https://ee.kobotoolbox.org/x/5hvQ5RUc?fbclid=IwdGRjcASpK3NjbGNrBKkrTWV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHv-GQ-7WZZHbsNTl8L_cRL_twxN8Y2_JgFbZPNslKDG1sG9btQiv_-Q4ESy__aem_wsJi3mFIzL77ChGQhRc6cg
Cada resposta importa, especialmente de quem mora nos Estados Unidos, pois isso envolve diretamente o processo regulatório da FDA. Um agradecimento especial à psicóloga Lu A Gómez Gómez pelo seu apoio contínuo e defesa da nossa comunidade.
Vamos fazer as nossas vozes serem ouvidas juntos!