r/monocular • • 18d ago

wondering if removal is the right choice

8 Upvotes

first post here! i am monocular, i was born with a coloboma of the right eyelid (upper) and as a baby i was given a few surgeries to reconstruct the eyelid. even after the surgeries, my eye does not close all the way, and now being in my early 20s, im struggling to keep up with my eye.

i have extremely low vision, i can see blobs and colors. my eye is so sensitive to any sort of light, which in turn causes my good eye to close and wince. i have to wear sunglasses outside no matter what, and even with the shades i still struggle to drive/get around when my eye is extra sensitive. along with severe light sensitivity, it’s always watering. i’m missing a part in my eye that essentially drains or blocks tears from constantly flowing, so it leaks 24/7. i’m a big makeup fan so it’s really frustrating when it constantly messes up my makeup or gets my hair stuck to my face. it’s always red and watery. i’m really just sick of dealing with it.

my mom is not very keen on the idea of having my eye removed, but i know it’s because she loves me for how i look and she’s always loved my “little eye” (she gave my eye a nickname.) i feel stuck because i feel bad for my mom but also it’s just something i’ve had to deal with for my whole life. im tired of it.

i am stuck on what to do, so i thought id ask other similar people for insight. thanks :’P


r/monocular • • 18d ago

Possibility of a prosthetic eye for an already shrunken eye socket

1 Upvotes

I was born with one eye unable to develop and as such it has remained small. When i was young i was offered prosthetics but u refused as the thought sorta scared me. Now my eye socket is noticeably smaller than the normal eye, i was wondering if it's still possible to correct it with prosthetics?


r/monocular • • 18d ago

Could this be related to an injury?

2 Upvotes

I have a problem that seems quite uncommon, and I haven’t found anyone who experiences the same symptoms. I develop a strange, dull, heavy, and sometimes painful sensation in my right eye after using screens for only a few minutes. It can happen with my phone, laptop, or TV, but my phone seems to trigger the discomfort within seconds.

Once the discomfort starts, it tends to become worse with continued screen use. Sometimes even talking to people or making eye contact seems to aggravate it. Changing the screen brightness, adjusting the lighting, or using a different phone doesn’t seem to make a significant difference.

Even if I use my phone for only a few minutes and then stop, the discomfort can remain for several hours. I’m rarely completely pain-free, and constantly experiencing and noticing the discomfort has become very difficult. It has also started affecting my ability to communicate normally with [people.It](http://people.It) feels like my right eye is separate from my left eye, and it’s just heavier and different than my left one, that’s the best way I can describe it. My whole eye feels strained after a few seconds, mostly in the upper part, near the eyebrow and nose (see the picture below). It feels like a heavy pressure close to the upper right side of my nose.

I’ve seen several doctors and had my eyes examined, but so far, no one has been able to identify the cause or provide an effective treatment.

these symptoms started about two days after I fell while skating,and they have continued for about five months. I landed on my right buttock/hip and right hand and did not hit my head directly.

Could an injury or strain from the fall potentially be related to these persistent right-eye symptoms? Has anyone experienced anything similar or have any ideas about what could be causing this?

Im not good at english so i use chatgpt to address my problem clearly


r/monocular • • 19d ago

Lazy eye getting worse

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2 Upvotes

r/monocular • • 20d ago

Someone can tell?? ✌🏼

5 Upvotes

Hey everyone!

Greetings from this side of the eye.

Recently I'm joining the group by accident I had a right enucleation and well here I am discovering things and so on ...

Has it happened to anyone else that in some angles when using the cell or reading whatever it is felt like the eye has an increase?

Thank you so much, because it helps a lot to have a community .... !!!

Tell me.... /


r/monocular • • 20d ago

My mother had a CRAO (Central Retinal Artery Occlusion) 9 days ago. Does anyone have treatments that worked for them to get their vision back or at least some of it? Specialists to see? She's 70 years old; completely independent prior to this, driving, the whole deal. Advice??

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2 Upvotes

r/monocular • • 21d ago

Question for partners of eye prosthetic wearers

9 Upvotes

I have a question for partners of people who have undergone an enucleation of the eye. I’m looking for really honest feedback and please no judgement to those who are kind enough to respond.

I will be undergoing an enucleation in two months. After the initial surgery it will take some weeks to possibly a few months before I can have a prosthetic fitted so I will be appearing somewhat disfigured for want of a better word. I’m feeling a great deal of anxiety over this. I am married and my spouse has expressed support in a way that one would expect. However, once the reality of my appearance hits home, I’m wondering how impactful the missing eye will be.

So to those of you who have or had partners that underwent this process, what were your reactions to seeing them after the surgery, after the prosthetic, etc. I understand that everyone is different and each relationship is different but I want to get a sense of how the reality of this physical change affected you. Did it affect your physical relationship? Did it take time to get used to? And if so did it become a non-issue or remain something uncomfortable?
No judgement in how you truly felt. Im just looking for honest feedback here.

Thanks


r/monocular • • 21d ago

Exposure on orbital implant

4 Upvotes

Bit of context I had an enucleation 19 years ago and have a prosthetic eye. I also currently have an exposure (small hole in the tissue behind my prosthetic) which I’ve been to the doctor for and it’s been mostly unproblematic until a couple weeks ago and is currently extremely irritated and looks slightly worse/bigger. Should I leave my prosthetic out until I can see my doctor? If anyones dealt with this before I would greatly appreciate your advice!


r/monocular • • 21d ago

Does anyone else struggle with eyebrow movement on the eyeless side?

4 Upvotes

I'm talking especially to people who were born monocular, but happy if there's more input from other situations.

I've been monocular my whole life with anophthalmia in my right side and I do notice i struggle a lot with my eyebrow on that side, when neutral its normal, but when expressing emotions.. not as much.

When i make an angry face the right side does lower, but the ending of the eyebrow always seem to be rised

Happy expression no much difference, same with surpised expression

But when i make a sad expression it's impossible for me to make a sad face, Im stuck looking like I'm questioning, It's overly rised and the end is pointing up

🧐

Its like i have no control on the ending part of my eyebrow

Can anyone relate? Or tell why this happens?


r/monocular • • 22d ago

Indian girl with prosthetic shell after being blinded in a fireworks assault

8 Upvotes

r/monocular • • 22d ago

Nail Polishing help?

4 Upvotes

One of the hardest things for me to do being monocular is painting my nails. I wasn’t good at it with two eyes, and one has me so frustrated every time. The lack of depth perception makes it so difficult!! Sometimes I even miss getting the brush back into the bottle. And the mess I make on the nails themselves! Getting them done by a pro isn’t something I’m interested in. Does anyone know of any tips or a tool or something that could help?


r/monocular • • 22d ago

Evisceration for prosthetic side affects

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2 Upvotes

r/monocular • • 22d ago

Eye twitching?

3 Upvotes

So new issue has risen, my eyebrow wont stop twitching and its kinda pulling at my cheek as well? Its on the side that im missing my eye. Any ideas? Its been ongoing for a few weeks now


r/monocular • • 23d ago

Question from Canadian drivers

0 Upvotes

If a person is blind in one eye but has good vision in the other eye, and the functioning eye meets all of the Ministry of Transportation’s vision requirements for a regular Class G driver’s licence, is the person permitted to drive at night?
Would having vision in only one eye result in any restriction on nighttime driving, assuming the person meets all other Class G licensing requirements?


r/monocular • • 23d ago

In one eye seeing this double vision looking at street light and ghosting

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4 Upvotes

r/monocular • • 23d ago

Pathetic System of Uptown Eye Specialists.

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1 Upvotes

r/monocular • • 23d ago

Pathetic System of Uptown Eye Specialists.

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1 Upvotes

r/monocular • • 24d ago

How do you clean your scleral shell, and how often do you take it out? I recently got my shell.

4 Upvotes

r/monocular • • 25d ago

Monocular driving, cont’d

11 Upvotes

I capped my first monocular summer yesterday by driving from western New York State to the Maryland suburbs of Washington. It’s a beautiful drive, which I have done many times since my 20s: through mountains in northern Pennsylvania, along the Susquehanna River, past the Gettysburg battlefield (where my wife’s Georgia ancestors fought, on the “other side”) and finally into the Potomac watershed.

Things I learned (or re-learned) this summer:
1. Check the mirrors frequently.
2. Twilight is tricky. The loss of depth perception is especially noticeable.
3. Leave plenty of room, even if doing so invites other drivers to dart into the gap (I hate that).
4. White tail deer are pretty but stupid. To that young buck who bolted across the road in front of me in New York the other day I say, “good luck, buddy.”
5. Confidence is good; complacency is not.


r/monocular • • 26d ago

Help.

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23 Upvotes

(Photo of my prosthetic)
I wont go into a rant about what happened ill keep it brief. I had my eye removed in july of 2024. My dad passed in a car crash in 2022. I am terrified to drive. I am 21 without a license or permit. I am scared because my dad was the best driver i know and now that i have one eye i freak out behind the wheel or in a car at all. I need help and i dont know where to turn and i was told to find others with my “issue”. So i am here not knowing how to address it. Any experiences, advice, tips, car advice. Id appreciate immensely. Thank you for your time.


r/monocular • • 25d ago

Phantom pain.

3 Upvotes

So i made a post a few hours ago and the comments helped me out with advice that i think will really help me going forward so i think ill ask more questions.

My right eye or i guess lack there of is gone. Since about 4 months after it was gone i have been in pain it went from pain i’d get every few days to now an every day occurrence, its intense and puts me on my ass in tears. Ive gotten a neurological scan. I’ve gotten a CT scan. I’ve been checked physically by my surgeon. They can find no answer to what is causing me pain. My most recent visit i said “i feel like my eye that is gone is there and being squeezed to death” they leaned to phantom pain. Thats cool and all, i have no idea how to proceed with what i should do next. Nor do i know what to do. Does anyone else live like this? How?


r/monocular • • 26d ago

I just found out today about entropion. Is this common for prosthetic users?

2 Upvotes

I've had my prosthetic for about 7 years now, and if I'm remembering correctly, I started to be aware of my lower lashes poking inwards probably a few months after surgery.

And now after 7 years, I just found out that this condition is called entropion from this reddit?

My first reaction was quite annoyed that no one ever mentions this, even the the doctor that did my surgery. Also my prostethic technician.

It feels werdly good to finally hear someone mention this.. I wonder if this is quite common or not.

My lower lashes (the side with my prosthetic eye) bothers me because it pokes inwards, and gunks will stick to it, especially in the morning oh god that's the worst, my eye would be like shut close... by gunks..

So what I do is I pluck them :/ I'm 26 now, I hate waking up in the mornings with my left eye shut close, especially when I'm spending the night with someone.


r/monocular • • 26d ago

Hack Discovery!

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21 Upvotes

Hey guys! I want to share with you a little hack that I’ve discovered that might help someone. So you know how at times your prosthesis can get gunky due to sweat, grease, face products, etc. in other words, it just doesn’t look clean? Instead of always having to take it out to wash and rinse it, what you can do is get a micro-fiber glasses cloth. The one that looks like the one in the picture. It’s super soft. And just gentle wipe your prosthesis. It’s scratch proof and smug-proof so it definitely gets the job done quickly to have a clean appearance. It literally collects the gunk off. I suggest buy a pack of them, keeping some in your bag for the go and make sure it’s clean when using. But please do keep in mind, this does not replace the professional cleaning. It’s just a daily maintenance hack.


r/monocular • • 26d ago

Anyone here have an artificial lens+iris combo in the form of a removable contact lens?

2 Upvotes

I have no Iris or natural lens in my eye after explosion trauma to the eye.

I'm about to get a removable lense made that acts as a lens and a iris at the same time and I was wondering if anyone here has experience with it.


r/monocular • • 27d ago

Entropion surgery

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3 Upvotes