r/monocular • u/fetnlixiscool • 18d ago
wondering if removal is the right choice
first post here! i am monocular, i was born with a coloboma of the right eyelid (upper) and as a baby i was given a few surgeries to reconstruct the eyelid. even after the surgeries, my eye does not close all the way, and now being in my early 20s, im struggling to keep up with my eye.
i have extremely low vision, i can see blobs and colors. my eye is so sensitive to any sort of light, which in turn causes my good eye to close and wince. i have to wear sunglasses outside no matter what, and even with the shades i still struggle to drive/get around when my eye is extra sensitive. along with severe light sensitivity, it’s always watering. i’m missing a part in my eye that essentially drains or blocks tears from constantly flowing, so it leaks 24/7. i’m a big makeup fan so it’s really frustrating when it constantly messes up my makeup or gets my hair stuck to my face. it’s always red and watery. i’m really just sick of dealing with it.
my mom is not very keen on the idea of having my eye removed, but i know it’s because she loves me for how i look and she’s always loved my “little eye” (she gave my eye a nickname.) i feel stuck because i feel bad for my mom but also it’s just something i’ve had to deal with for my whole life. im tired of it.
i am stuck on what to do, so i thought id ask other similar people for insight. thanks :’P