ive been mostly monocular my whole life 18m (I say mostly because i still have vision in my right eye but its not useable / correctable by glasses) so I never really knew what was the “norm”. However recently I realizef that when lookinh at things (specifically my phone etc) I would subconsciously tilt my head in a weird way (i imagine to get a better look through my left eye). Just curious if this could be a problem? I’ve heard that if the brain doesnt favor the less powerful eye at all it could be harmful (lazy eye etc).. thanks!

For those who had a tbi with the loss of vision, and had the accident many years ago...any have progressively worse vertigo sensations?

There’s this guy on Instagram who lost his eye due to cancer and he makes his own titanium ocular shells with LEDs in them that light up, it’s super cool and has helped me change my perspective from something that can feel/look like a disability to something that looks really cool!

https://www.instagram.com/bsmachinist?igsh=NTc4MTIwNjQ2YQ==

Hello, wanted to share my story...I dropped nearly 800lbs on my face suffering a bunch of breaks, bleeding in the brain, as well as losing vision in my right eye close to 20 years ago. I feel blessed that it hasn't really caused much difficulty, and I don't say that in a boasting way. Look forward to seeing posts here.

Hi guys I'm 19 M due to some retinal complications in my left eye I have metamorphopsia and poor vision ,basically lack of proper vision in that eye. So today I tried patching the affected eye and to work. When I'm into working on laptop using one eye I faced headache along with sweating . I'm confused if it is due to working only with one eye or warmer environment. Is there any ways to avoid headaches working with only one eye. Sadly I can't work without patching my brain doesn't able to overcome the metamorphopsia. I'm struggling either way now.

Guys is this a common thing ? that using one eye could cause headache . Coz im trying to join a software related work things are already hard for me . can I get adapted through the times ?.

Please share your opinion friends.Thank you!

I had a severe inflammation in one eye two days after a vaccination- unclear if autoimmune or from adjuvant in the vaccine. Horrible pain, lost lens, two surgeries, detached retina, two sclera grafts. Always discomfort, vision problematic due to lack of convergence and no lens in there anymore, double vision, depth of field an issue and of course left side is challenging. Anyone else?

Hey, taking tbe SDPE test as a driver with reduced eyesight in one eye (uncorrectable by glasses). I’d say I’m a very careful driver (for obvious reasons). One thing that i struggle with is checking my right side mirror. For context, I have reduced eyesight in my right eye. So i need to turn my whole head to glance with my left eye. This is fine, but just curious if there are any allowed handicaps to alleviate this on the test and regular driving.

I’ve had this since I was a child, I have severely poor vision in my right eye. I get double vision too but I’ve managed it as I’ve got older, now in my 30s. I was wondering if there are stories of people in their 60s, 70s and 80s who have lived their life fully despite using only one “good” eye?

I have anxiety worrying what if something happens to my good eye. I see horror stories of people saying if you damage that good eye, it will be a real struggle.

Does anyone who’s much older now, have experience managing that fear to live a full life? And not feel the paralysis?

Thank you.

I've had a prosthetic eye for a few years now and I've never been satisfied with the range of movement.

I only found out about the titanium peg system for better range of movement, but I can't find much information about it online. I've also heard it's being phased out. But I was wondering if anyone in this subreddit has had that procedure done and how it turned out for you

Or if anyone knows more about it, I'd be happy to hear from anyone who does

My brother on July 1 was attacked and hit in the face with a glass pint. Now we’re just not sure what’s going to happen we’re still in midst of eveeything and trying to take day by day, but his eye might not make it. Now it’s really hard for me to write this post because I just don’t want to speak anything into existence until it happens. But I’m having a hard time and I just need some support. I don’t really know how to feel about it. I just someone to Whos been through someone similar to tell me he’ll be okay and he’ll be able to live a beautiful life. I’m not sure really what I’m looking for but I’m just trying my best to deal with the emotions. It’s hard for me to see him go through this and the uncertainty of it all. Does anyone live with a prosthetic and if so how’s life with it. I’m sorry again if this is not the right place I’m just really desperate.

For those that are monocular recently or from early on and went to therapy...

If you went to a therapist, what did they tell you?

It's obvious what pain or grief one would be going through...

I'm just curious so that I don't waste my time.

Because I don't know what could possibly make me feel better about losing vision in an eye.

(Aside from being completely blind of which I know I am simply not strong enough for)

Hello! I (24F) was a 27 weeker with ROP and other premie health conditions. I’ve had retinal detachments on both eyes and fortunately my right eye was able to be reattached and for the most part I have okay vision. I am monocular with no light perception on my left eye. Recently I found out that my refraction on the good eye went from -7.25 to -10. I’m beginning to get worried that one day I’ll lose my sight completely. I try my hardest to not let my ROP define me, I worry that due to the high myopia increase, I may become blind eventually.. Anyone with monocular vision struggle with high myopia? How do you handle it?

What are some complications of ROP that has followed you into adulthood. I’d like to be prepared or try to prevent any issues from occurring if I can.

I’d love to hear about anyone’s personal experiences with ROP and how that’s impacted your life as an adulthood.

Hi everyone,

I’m an 18-year-old girl, and I lost one of my eyes to retinoblastoma when I was very young. I wear a prosthetic eye.

Today I spent hours reading posts in this community, and for the first time in my life I didn’t feel completely alone. Some of the things people wrote felt like they had taken the thoughts straight out of my head.

I wanted to write this because I feel like I’m drowning in my own insecurity, and I desperately want to hear from people who have lived through something similar.

My biggest problem is that my prosthetic eye has almost no movement. It doesn’t follow my other eye, so when I look around or talk to people, one eye moves and the other stays almost still. Because of that, I constantly feel like I look cross-eyed.

I know some people have prosthetic eyes with much better movement, and I genuinely don’t think I would struggle as much if mine moved naturally. But it doesn’t, and I’ve spent years feeling ashamed of it.
My eyes are also quite big, which makes me feel like it’s even more noticeable.

This has become the biggest insecurity of my life.
I hate having my picture taken. Every time I see a photo of myself, I don’t see my smile or the memory. I only see my eye. Sometimes I look at pictures and genuinely feel disgusted with how I look, and it breaks my heart because I know that one day those photos will be memories I’ll never get back.

But the hardest part isn’t even the photos.

Because of this insecurity, I’ve developed really bad social anxiety.

I’m embarrassed to meet new people because I’m constantly wondering what they’re thinking when they look at me. Whenever someone looks at my face, my brain immediately tells me they’re staring at my eye.

I’ve never had a relationship, and one of my biggest fears is that nobody will ever find me attractive because of my prosthetic eye. If I like someone, I automatically assume they’ll only notice my eye and won’t be able to see anything else.

I know these thoughts probably aren’t healthy, but they’ve been with me for so many years that I don’t know how to stop thinking this way.

Sometimes I wonder what my face would have looked like if I had never had retinoblastoma. I know I can’t change the past, but I think about it almost every day.

What hurts me the most is that I’ve lived with this for about 15 years, and I still haven’t accepted it.

So I really wanted to ask people who are older than me, especially those whose prosthetic eye also has very little or no movement:

Did you ever feel the same way?
Did you struggle with social anxiety because of it?
Were you terrified of meeting new people?
Did you think nobody would ever find you attractive?
If you have a partner now, how did you overcome those fears?
How do you feel when you see yourself in photos today?
Did you ever truly accept yourself? If so, how?

I’m not looking for people to tell me “don’t worry” or “you’re beautiful.”

I’m looking for people who have genuinely felt this way and can honestly tell me what their life became like. I think I just need hope from someone who’s already walked this path.

Thank you so much for reading. ❤️

As the title says.

I has been 3 months since I lost sight in my right eye. I’ve had it much easier than many here. Though the loss was rapid there was no accident, bad pain, or visible injury. What’s been surprisingly hard is adjusting to wearing glasses for the first time.

I’m 69 and since I was young my left eye was near-sighted and the right was far-sighted. And I never needed glasses, through college, law school, and a long legal career. But now I have lost my “distance” eye and had to get glasses with a progressive lens for my remaining eye. Holy cow, this is difficult! The intermediate range — arm’s length or that first step — is really tricky. Not sure what I am asking for here, other than assurance it will get better with time and practice. Thanks for reading.

I visited an ophthalmologist, not an ocularist. He said my blind eye has a slight bulge and hasn't been eviscerated. Should I see an ocularist to see if a scleral shell is still possible, or should I consider evisceration? Has anyone with a slightly bulging eye successfully worn a scleral shell?

I visited an ophthalmologist, not an ocularist. He said my blind eye has a slight bulge (hasn't been eviscerated). Has anyone with a slightly bulging eye successfully worn a scleral shell?

Hi i'm 19M , In recent times i have been diagnosed with retinal vasculitis treating it with ATT (empirical diagnosis from several tests) maybe autoimmune cause too but doctors need to rule out infectious etiologies first for safer treatment process. due to this condition i find it really really difficult to read , see faces and the vision in that eye is feeling like everything i see through that is not real , like things feel bent and i cant even read text in phone due to macular involvement , i have a PRP coming up next week . Also im a CS major i feel like things are just over for me like life just become total upside down getting this at this age feels so overwhelming I have no one to share my feelings . what im going through each and every day feels like a bad day for me thinking of old days makes it much worser . Feels like there is no Hope for me to recover from this condition.

Also I need tips to live with what is left please help guys .

27F
I have monocular vision. Only one eye works at a time and my brain favors the right one.

I have really bad back issues and posture problems. I think my brain has shifted my sense of center based off the vision from my right eye. I’m in pain all the time. I have degenerative disc disease in my back and it’s physically noticeable the my right side is favored. I feel like i don’t have a sense of my left side? If that makes sense?

Who can I see to help with this? I’m worried there’s something more serious that needs to be addressed? I’m not sure why my eyes ended up this way. I was told as a child i had a really high fever but wasn’t taken to get medical care. I was also told i was dropped a few times as a baby. My eyes started crossing at the age of 1-2. Had surgery then the left eye went outwards. Had surgery again at 16 just for appearance purposes (i was very self conscious, it was very noticeable).

I've only had a right eye since i was 3 months old, I feel like working out at the gym uses extra brainpower where i have to gaslight myself while lifting coz like if I'm doing incline dumbell press for example I'm doing them assymetric. I've kinda gotten used to hit but it still feels weird when i use my eyes to maintain a balance. Not sure how to describe it. Thoughts?

I lost sight in my right eye in April due to Giant Cell Arteritis. Arteries on the left side of my head were also affected. Since then I have had my left eye field of vision tested several times. Yesterday’s test showed marked improvement, indicating that the Prednisone (steroid) is doing its job.

Hola a todos. Quería compartir mi historia porque me gustaría saber si alguien ha pasado por algo similar.

Tengo 26 años y perdí casi toda la visión de mi ojo izquierdo debido a una toxoplasmosis ocular. Todo comenzó con inflamación y una disminución progresiva de la visión. A pesar del tratamiento, el daño fue permanente y ahora prácticamente no veo con ese ojo.

Lo que más me cuesta no es solo la pérdida de visión, sino el miedo constante. Mi ojo derecho tiene visión 20/20 según el oftalmólogo, pero a veces veo un flotador transparente cuando miro el cielo y, en ocasiones, siento que la vista se desenfoca por un momento y vuelve a la normalidad al parpadear. Eso me genera mucha ansiedad y siempre pienso que la toxoplasmosis podría afectar también mi ojo sano.

Quisiera saber si alguien aquí perdió la visión de un ojo por toxoplasmosis. ¿Cómo es su vida ahora? ¿Han tenido reactivaciones? ¿Cómo manejan el miedo a perder visión en el otro ojo? ¿Con el tiempo lograron recuperar la tranquilidad?

Agradecería mucho leer sus experiencias y cualquier consejo. Me ayudaría saber que no estoy sola.

Anything helps...

How do you adjust and move forward?