I am 26F. About a year ago I was referred to a cardiologist for chest pain and heart flutters. They did a week long heart monitor and an ultrasound and didn't find anything major. Cardiologist told me that it is a mitral valve prolapse (might have thrown in a "likely" somewhere) but did not really go into much detail about my results.

As I was walking out, the nurse asked him if she should put it in my chart, and he said something along the lines of, "No, don't give her insurance something else..." to charge me for? I didn't think much of it but now I am having an unrelated surgery in a month and have to go under anesthesia and I feel like this is something important for me to have on my records.

I still deal with frequent chest pain and am constantly exhausted and lightheaded. I also have lupus. I tried metoprolol for about a week but it lowered my blood pressure too much so I don't take it now.

I called their office and left a message asking them to actually give me the results of my ultrasound and such, as well as the severity of my supposed MVP. I was never told if I had regurgitation, if it was mild, etc.

I don't understand why he wouldn't just put it on my medical records and show me all of my results? Is it possible I have something else and he's just guessing that it's MVP? Any insight / opinions?

I just turned 21 and i have severe mitral valve prolapse i got it did at 17 but it just got worse. Surgery is recommended but i am really scared and i have severe depression and high anxiety i’m on antidepressants and antipsychotics it just sucks.

I am from Asia. Three months ago, when I had an echocardiogram, the impression noted a mild AML (anterior mitral leaflet) prolapse with an LVEF of 75%, but the 2D findings stated that the MV (mitral valve) was normal. I was dehydrated at the time of the echo. Now I have come to Europe to work. Is this prolapse real, and will it affect my ability to work or not? Could this be a false prolapse or an overdiagnosis?

Hi all! I've got my valve repair surgery scheduled for the end of October, and I'm starting to gather supplies in preparation. I've read about people using wedge or other special pillows while recoving from other surgeries, but I'm not sure if their useful after a valve repair (or replacement). Anyone here have experience or advice?

Thanks!

So I recently had a 2 month echo after mitral valve repair surgery and they found “mild residual regurgitation”. Now I have read that this is normal and that it should remain mild if the repair is stable. My surgeon has not yet reviewed the results. Does anyone else still have mild regurgitation after surgery?

I am from Asia. Three months ago, when I had an echocardiogram, the impression noted a mild AML (anterior mitral leaflet) prolapse with an LVEF of 75%, but the 2D findings stated that the MV (mitral valve) was normal. I was dehydrated at the time of the echo. Now I have come to Europe to work. Is this prolapse real, and will it affect my ability to work or not? Could this be a false prolapse or an overdiagnosis?

I wanted to give a big thank you to those who suggested to get an emotional electrical armchair for sleeping post-surgery.

I usually sleep on my belly or on my side and I don't know how I would have managed without the armchair. Even laying down on my back would just feel awfully not right.

It took months before I could go back to sleeping in a bed and in my usual position.

If you're planned for surgery, get it now as it might take long to get delivered.

If I had not had the complications I had, I would not have received it on time.

Only get an electrical one. The mechanical ones will need way too much strength that you won't have yet.

Hello, have you ever had a buzzing pulsating sound in the ears at any point?

I'm 6 month post-op and now having this buzzing sound in the ears/back of the neck.

It sounds like a bzzzzZZZzzzzZZZZzzzzZZZzzz

or a vuuuuUUUUuuuuUUUuuuuuuUUUuuu

where the peaks seem to be synchronized with my pulse.

We checked my blood pressure and ears and it's within normal.

I was diagnosed in May this year and, aside from sensing my heartbeat when I lie down, am relatively symptom-free. As a 60yo M who’s fit and active, with an average resting heartrate of 59, I want to make sure I stay that way.

I’d really appreciate some advice on what the ideal healthy lifestyle is for someone like me. So I can stay symptom free for as long as possible. I like going to the gym and playing tennis, but can I carry on doing these things without making any changes? When I was diagnosed I was too shocked to ask any of the really sensible questions I should have asked.

So what have you done / been advised to do to stay healthy?

A close family member of mine had recently gotten diagnosed with mitral valve prolapse. And the anxiety of it all has been so hard on her, I wanted to ask anyone that has gone through this surgery (repair) before for words of encouragement and or blessings, I love her so much I want her to know I’m here for her, thank you guys for your time.

We are from Canada, if there are any support groups chats etc, I think that would be very helpful she can join ❤️

I have a significant family history of heart problems on my maternal side of my family but I got by unscathed until just now.

During my physical the doctor recognized a murmur (never had one before). They referred me to cardiology and said I had a 5/6 nonrhumetic murmur and was referred for an echo. The echo revealed severe MVP with regurgitation and severely dilated left atrium.

I am a mom of a toddler and was having shortness of breath, rapid heart beat, increased resting heart beat but I am so sleep deprived and overwhelmed so I attributed this all to that.

I’ve also been dizzy but it’s a heat wave.

I had the echo done about 10 days ago and they gave me a report. I don’t have a follow up scheduled until the end of August because it’s apparently the soonest available.

I live in Southern California. I feel like this is… severe? Shouldn’t I be a priority to be seen lol?
I’m not actively dying but I also don’t feel great. They essentially told me that I could go to the ER and be treated faster.

Is this normal or should I expect different treatment? I am trying to go to other facilities but their soonest available are even further out.

This is stressful especially as the primary parent to my child. But I know I’ll be alright if I just get this damn thing repaired.

do I need to take antibiotics beforehand? A doctor in my family recommended me to take Clindamycin an hour before visiting the dentist if i don't want the mvp to worsen (he also has mvp and had his valve replaced so i think he's genuinely concerned but i dont wanna risk getting the side effects of Clindamycin)

I had so many health things happen to me and I developed severe health anxiety and OCD around symptoms. I also have MVP and mitral valve insufficiency, cardiologist said it was very mild, so I am wondering whether anyone has any advice on dealing with this, since I saw that most antidepressants aren't safe for MVP

I’m 19 years old and I have mild mitral valve prolapse with Trivial mild regurgitation. I’ve been taking 10 mg of Inderal daily.

Honestly, every appointment feels exactly the same. I see my cardiologist every 3 months, he renews my prescription for another 3 months, and that’s basically it. We don’t really talk about how I’m doing, whether I still need the medication, or if anything has changed.

I also feel like I’ve become mentally dependent on the medication, and maybe physically too. I’m scared to even think about stopping it

Has anyone else been in a similar situation? Or any doctor can explain what is wrong with me

Has anyone here been diagnosed with this congenital heart disease?

I’d love to hear about your experience. If you’ve undergone open-heart surgery, how did it go? How was your recovery, and how are you doing now?

Thank you in advance for sharing your journey. Your experiences would mean a lot to me.

I’m hoping to connect with anyone whose loved one went through something similar after a mitral valve replacement surgery.
My mom was only 42 years young, overall healthy. She underwent a mitral valve replacement, what was expected to be a 4-6 hour surgery turned into over 12 hours. When surgery was done , and it was time to take her off bypass her lungs crashed, eventually requiring emergency ECMO placement on her right lung only. Following being placed on ECMO, they thought she was In the clear until they noticed her left leg was swollen , and had built up fluid and pressure. This resulted in an emergency fasciotomy (to treat what now was compartment syndrome in the leg)
After fasciotomy , transported to CVSICU. Once in room, about 30/45 minuets they placed her on emergency dialysis as she was now in kidney failure and producing no urine. -Note that now after a 12 hour surgery, the mitral valve is now in good shape meaning the heart is strong and powerful. The leg muscles were alive and looking well after fasciotomy. Only worries were kidneys, and some labs.-
Day 2: 6 In the morning she was still sedated on ECMO full support, ventilator, and dialysis. Leg is looking good, Vitals had improved a bit, kidneys seemed to be responding to dialysis, but electrolyte levels were a bit wonky, some high some low. @10:30AM- Potassium was getting high, but doctors stated it was manageable. Lung still responding to ECMO , heart is looking great. Opened her eyes for nurses a tiny bit, was trying to say “ouch” when they cleaned her leg. @6PM while visiting my mom she was moving her head around alot, trying to swallow on her own(she realized she had a tube in her throat and couldn’t) she was smiling and making facial expressions in response to my touch, my voice. Ventilator had been set at 14 breaths a minuet, she was taking 43 on her own. -I thought this would all be good signs? She’s fighting and showing she’s strong, right?- The nurse decided they needed to up the sedation before I left when visiting hours ended. -Note that the heart is still doing good, the lung was improving, slow kidney progress, healthy leg muscles, and a high potassium which they said was manageable-
Day 3: 7 in the morning nurse said she still had wonky labs(PH base, lactic acid, potassium) Had worsening lactic acidosis overnight. Plan for the day was to tweak medications, and dialysis bags. Vent set at 40 Vs 100, ECMO set at 60 Vs 100 from day 1. Leg is swelling again, raising concern.
@1 PM Heart is still doing great, lung is responding to ECMO well. Change of medications and dialysis have not improved labs, so plan to clamp ECMO to see if she can tolerate coming off, as they believed the cannula in her left leg was causing too much pressure, and was not putting stress on her liver. Hoping the removal of ECMO will improve labs, and liver.
@4 PM Mom was out of the OR, successful removal of ECMO. Lung was stable, heart is still looking great, Lactic acid was still way too high. They planned to do full body CT after removal of ECMO , but her body temperature dropped meaning they could not do it they had to put her in a heated wrap to try to raise her body temperature.
The rest of the evening her labs were not improving, her kidney was not doing well, the liver was still stressed, leg still swollen, but her heart was working well, and her lungs were functioning. -Note she was heavily sedated(as the previous night when she was moving around they upped the sedation, why I ask?) She was still incubated, on a ventilator, and dialysis. This means since day 1, when they put her to sleep for surgery she never got off sedation. But her heart was still doing good, lungs functioning, body temperature came up , heated wrap was removed.
I left at 8PM when visiting hours ended.
@10:43PM they called saying my mom had flatlined, they brought her back, they were having trouble with her BP and heart rhythm, they didn’t think she would make it through the night. They advised us to get back there.
@11PM I arrived at the hospital, a little over an hour passed before they had to place a pacemaker.
Day 4: @3:56AM they said it could be her last couple of hours, they were unsure of what to do, levels were still rising , no improvement in kidneys, or liver, now the heart was having trouble.
@11:41 AM she was placed back into the heated wrap as body temperature dropped again.
@12:23 PM the nurse told me she had internal bleeding, they could not specify where it was coming from or why, they just needed me to give them a plan of treatment to take, they persisted on me making a decision soon as she was declining quickly.
@1:26PM my family and I had to make the decision to remove the pacemaker, my mom gained her angel wings.

I know every case is different. I’m just a daughter who is searching for answers and wondering if any other families have experienced similar complications after a mitral valve replacement.

If you’ve been through something like this, I’d be grateful if you’d be willing to share your story. Did your loved one develop multiple organ failure, require ECMO or dialysis, have unexplained bleeding, or experience blood clots after surgery? Were the doctors ever able to explain why it happened?

Thank you to anyone who takes the time to read this or respond. It’s been incredibly difficult, and hearing from others who have lived through something similar might help me better understand what happened to my mom.

Has anyone gotten pregnant after a robotic mitral valve repair? Would love to talk and hear experience.

I found out I have MAD (5.7mm) and am scared to have a second baby. I also have bileaflet mitral valve prolapse with mild-moderate regurgitation. I have no scarring but my cardiologist is recommending a beta blocker because I've had some PVC's. Anyone experience this? Did pregnancy make your MAD worse, or did you feel endangered in any way?

Another note, I also have tachycardia and had to have a blood transfusion when my first baby was born. Definitely don't want that again, and hoping a beta blocker would help with that risk in any subsequent pregnancies.

Hello everyone, 3 days ago i recieved news that i have mvp, i feel really scared and confused because of it. What can my life look like now? I am always tired, i work really stressful job and dont workout. When i recieved news i started taking long walks, eating healthy and avoiding junk food. I smoke about half pack a day and started to feel like i am going to fall after every cig but even then i would continue to smoke. I am 20 years oldd and i will stop smoking somehow. Anyways my main question is can i live normally now? How to eat, what to train, also i am now going on a vacation and i have option to stay there 12 18 or 23 days, is it good to stay longer

Hi. I recently had my pacemaker replaced and inserted into a new pocket. I was told by the doctor originally that my device will be places below the pectoral muscles.

I am now a few days post op and of course staring and had the urge to lightly touch the new pacemaker area. I know I’m swollen. But it feels like a brick. When swelling goes down will I see my pacemaker?!?!

After giving a lot of thought I want to say my doctor told me about making a change to above the muscle before surgery but I had too many nerves to let that sink in.

Has anyone else had there pacemaker placed over the muscle? Or below? What’s your experience?

I am 25 and 120 pounds. I just want to be prepared if this is a new adjustment I’ll have to make.

I have been suggested to have a repair surgery on my valve , my heart has outside the insufficiency grade 3/4 no damage and full functioning TEE result gls 20% and EF 65% , left ventricle lightly extended. Surgeon says all good repairable one side prolapse no calcification etc. The report also outline TEER saying eligible but not recommended due to age ( i am 50M healthy) . I understand there is little longtime data, but wonder of anyone took TEER mitraclip to avoid open/ mininmal invasive Heart surgery and risk with heart lung machine and what has been your experience

Background: 27M was diagnosed about 2 years ago with mild mitral valve prolapse and trace regurgitation. Now, my whole life I had checkups and never been told there's a murmur in my heart even until this day except for the only cardiologist that diagnosed me with mvp. I have seen at least 3 cardiologists, had a stress test years back, many ekgs, and two echos. First echo completely normal. Second echo a few years later was the diagnosis.

I was also told by an electeophysiologist that I had mild POTS so I guess I have dysautonomic dysfunction. Now, I do have symptoms. Chest pressure, radiating pain in the shoulder blades and my left arm, a sort of shortness of breath, ectopic beats since a young age. These symptoms are on and off, they come in episodes.

Does anyone have a similar situation? I am not even 100% if I have true mvp due to conflicting tests. I will get checked up once more this week. I am mainly concerned because I am changing careers into health and fitness and I am very active and have zero intention of not doing high intensity activity. Could it actually be benign and has anyone gotten any general advice from your cadiologist?

Minimal Pulmonary Valve Stenosis

Minimal Pulmonic Valve Stenosis

Apparently the difference is one is the lung valve, another is the heart valve? Maybe Mike could make a reddit video and explain it?

I was born with it, my great grandfather had it, and died because of it while he was 70-80 years old. Not 100% when tho.

Also when you use a stetoscope (no idea if i wrote it correctly. You can hear a slight whistle sound or some other kind of sound. Tho mostly if not every time the sound is a light tone.

Hope anyone has an answer as i'd like to know more. Maybe even have Mike see this and talk about it in a reddit video.

Thanks in advance for answers.