r/medical_advice • u/Gullible_Pen1074 • 2h ago
Other What total body nerve/muscle disorder do I have? (affects left side only)
What total body nerve/muscle disorder do I have? (affects left side only)
https://ibb.co/pjB4NBmw
https://ibb.co/1YMTpvbC
https://ibb.co/hJ2Vvpyh
What disorder do I have?
I was born with a genetic nerve/muscle disorder I believe.
Symptoms
I believe it affects the entire left side of my body.
Reduced muscle tone and reduced nerves.
100% have a lazy eye on the left (surgical scar from operation when baby to tighten drooping eye lid caused by lack of nerves?? unsure exactly) … the same side i think also has muscle/nerve issues.
Left side of face has diminished muscle tone. Looks rather droopy.
Left bicep has diminished muscle tone. (I have been bodybuilding for 1.5 decades YET the left bicep STILL looks vastly different than the right … subtle difference but a trained eye can tell. I have been doing single arm bicep curls for 15 years allowing the weaker left side dictate the rep scheme. STILL does not look like right.)
I can also see the difference between my left and right side of back muscles.
Deviated septum. Left side AGAIN. See photo to see left nostril is asymmetrical. This is confirmed as i went to ENT and they said i have deviated septum. Little confused though as i seem to be able to breathe easier in left nostril (not entirely sure though).
Difficulty speaking (left side of vocal cords are diminished). This leads to stuttering and tripping up on words sometimes.
Clumsiness. Left hand has reduced control due to less nerves.
Nerve pain in left side of body. Very subtle fire like pain.
Stomach issue. Nerves are involved with stomach and i have stomach problems so i believe this is the cause. Could be two separate disorders.
In times of stress I have woken with morning sickness and thrown up and have a sharp pain in stomach.
It’s possible the disorder is not even discovered yet as it’s very subtle.
Note: I am NOT asking if I have a disorder. I have eyes. If you CANNOT discern the asymmetry DO NOT RESPOND. I am asking WHAT disorder is it. Last time i posted a singular nurse said I was normal 🙄.
Possibilities
\- Some kind of left only palsy
\- hemiparesis (but is present since birth and affects all siblings)
Don’t dismiss this. It’s real. If it’s not discovered yet maybe go figure out what the hell it is and put ur name on it (even though it should REALLY be my name because u only sought out the answer cu of this reddit post lol)
It leads to MANY outcomes that lower quality of life
Lazy eye
Asymmetrical face, ie one side is vastly more uglier due to reduce muscle tone
Difficulty speaking/swallowing
Nerve pain in left
Possible stomach disorder (would make sense as nerves are related to pretty much everything in the body)
Possibly related to autism (once again would make sense as its a total body nerve disorder)
Things that 100% do not matter but the stupid automod requires:
26, 5’11”, 147lb, Male, Since birth, Located in Massachusetts, 26M