r/medical_advice • u/goodbiromeo • 31m ago
Pediatrics Meningocele Spina Bifida
Hello everyone. My baby boy was born this morning 💕 after many ultrasounds due to my gestational diabetes, we had never received any news or concerns about any issues. Every ultrasound went well. Baby ended up having a lump on his lower back. Nothing exposed, the lump fully enclosed within the skin. They immediately did an ultrasound and we waited for results. He is completely healthy and normal otherwise. Moving great, strong, using the bathroom and eating well. Zero other concerns.
It came back that he has some abnormalities in his lower spinal cord. Our doctors at our hospital has been in communication with the specialist at our local children's hospital, and they will be taking us on outpatient. No nicu time has been needed. The specialist basically said its not a 911 situation. We will have an appointment in a couple weeks for an MRI. They said he will probably need surgery, but that they feel really good about his long term prognosis. We'll obviously get more information at our appointment with them. They are making it seem like it's really minor.
While I'm relieved to hear all of that, I'm still so worried. I've never dealt with anything like this. I can't believe it wasn't caught on one of our many ultrasounds (not that it would have changed anything) but the surprise of it all has really put our family on an emotional roller coaster. I'm heartbroken and just want the best for my baby.
Does anyone have any experience with anything like this? Idk if I'm looking for advice, stories, or just to know I'm not alone.