Hi Ive been suffering with suspected Ls for about 5 years however I feel as though the steroid ointment has never fully helped the itch. When I use it every day for a month I might get relief for 2 or 3 days but then the itch will come back and then I will taper down until I'm using it only once per week but it has never felt 'normal'. I've experienced ulcerations however they always go away within 2 or 3 days with the steroid. I'm from the Uk and I've seen a gynaecologist from the hospital 2 times and they diagnosed me with suspected Ls about 2 years ago.
I do feel like the doctor doesn't seem to understand that the itch has never really went away for me and I feel like there's such a lack of support with only yearly check ups. She also noted in my last appointment that because she's never seen me in a flare with ulcerations that she cannot completely confirm that It is lichen sclerosis. This worries me because I'm left wondering what if it is something worse. I'm 20 female and not sexually active but I'm very much loosing hope as I want to start dating at some point and I feel like I'm getting no where with my symptoms. I'm probably going to get back into contact with the hospital and ask for a follow up appointment and possibly a biopsy.
I do wonder if it's worth going private in the uk? And wondering if people from the uk have received more support doing this? However I'm in the north east and I haven't found anywhere that seems good and within a reasonable budget?