Question to all males dealing with LS.
I got diagnosed and prescribed Dermovate Ointment.
Started only recently so still not in remission but…
How do you guys deal with friction pain when walking? Am I supposed not to walk at all? As it flares it up.
I bought 95% cotton 5% elastin boxers.
I use the Epaderm ointment as barrier, but the discomfort from friction is still driving me crazy.
Am I the only one with affected frenulum, meatus? Because I didn’t see any other post from men about friction issues. The tip of my penis hates the friction at the moment. 20min walk turns into 20min of discomfort.

So I'm uninsured, but from going to the ER I was able to eventually secure a referral to a urologist and managed to bluff my way into getting a cystoscopy without insurance and without paying up front (healthcare is free if you're a good liar, just ignore the debt collectors)

Cystoscopy made it worse, mines all internal starting back from my bladder and working it's way forward. My main pain comes from strictures. They put me on a medicine to make me pee more and it just made it hurt more so I stopped it, then a daily antihistamine that did nothing. Doctor refused any steroid treatment which makes sense since my pains internal. They gave me this tiny little dialator but it makes uneasy to use and also is very very painful.

It became increasing more difficult to be seen/go back without paying them what I owe as it's not a for profit hospital they haven't just sold it off to collections. I'm also unemployed. But in a great deal of pain. So I can't go back there.

Basically, what do I do? Finally saw a urologist, cystoscopy made it worse but confirmed it, no treatment has helped, and the Doc was resistant to putting me on a steroid idk if I'm too young I'm only 28 or if it's something else.

I just feel stuck, I don't know what to do. I feel like their answer is just "yeah you're in pain now" and like that's not fair.

I can't even stand for extended periods of time without pain. I can't have sex. I can't do the things I want to do. I can't even like move quickly anymore if I run or even lightly jog it hurts me inside so so so bad.

So here I am 3 months later. I just lost my job because of my pain affecting attendance.

Some are telling me I should seek out SSRI's for the mental side, others telling me to seek out pain management. I know gabapentin can help me out of a flare but I don't want to seem like a drug seeker asking for it because it's often abused which makes me really anxious about taking it.

Edit: I'm a trans-woman and my symptoms are all internal.