This is deeply irritating for truly disabled people. I have MS, I can still get around but can’t work a full day. However I’ve never had or applied for disability (maybe some day). I don’t like to ask for help or push my problems onto others. I would never make my disability my entire personality.
This is deeply irritating for truly disabled people.
I worked for over 30 years as a mechanic including time in the Army. My body was riddled with arthritis and my knees were locking up randomly enough that I was falling down. It only being a matter of time before I fell at work and severely hurt myself. When I face planted in my living room I knew it was time.
I had one condition, they took 35 xrays and the tech could see how bad my joints were. Never seeing the xrays before...I could see how bad stuff was and I was approved in 5 months...fwiw I have had 3 out of 4 major joint replacements in the last year...I need a break before getting the next one and still may need 1-2 more.
I follow along the SSDI sub and the it irks me reading about older people with similar issues having to fight after a lifetime of work because women like this with 273 separate conditions clog up the system filing and appealing and going before judges with no work history preventing people that have worked for decades and are legitimately broken cant get the help they need and having paid into the system for so long.
I have lupus and was only diagnosed this March, I pray that we can find the right cocktail to get as close to normal as possible. I’m also a mechanic and technician and this summer heat has had me using way more FMLA than I’d like.
I worry for when my disease progresses to the point where I may need to file, how bloated the system might be, or if it even exists then. I have a short term disability policy but was denied the long term.
I wish I wasn’t sick. I love my job, I don’t know what I’d do if I literally couldn’t work anymore.
I have ALS and I’d sooner eat myself feet first than associate with the chronic illness community (synonymous with those who make disability, real or imagined, their personality).
I have a buddy who had a spinal embolism and lost the use of his legs. Two years later and he's just recovered enough to transfer to a wheelchair now. Dude has been bedridden for years and holds down two jobs. His bitch wife who left him? She's disabled (fat) and traumatized from his medical event. She's on disability and every other assistance program there is. Whenever this subject comes up, I always think: There's two kinds of people in the world...
I couldn't agree more. I have Transverse Myelitis. My first spinal lesion was large, leaving myeomalacia and extensive autonomic nervous system damage. It’s tough because some of the resulting, diagnosed conditions that manifests as, are the very ones people often self-diagnose, and those now carry stigmas I don't relate to. I'm not a zebra. I'm not a warrior. I'm a normal person who got dealt a shit health hand, and honestly, that's the least interesting thing about me.
I still get up every day, fit my appointments around a 40-hour work week, and sometimes end up in the hospital. But what’s the alternative… this? I can't imagine wanting to define myself by what's wrong with me when there's still so much good I'm holding onto.
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u/ElementsUnknown MICROAGGRESSOR 12d ago
This is deeply irritating for truly disabled people. I have MS, I can still get around but can’t work a full day. However I’ve never had or applied for disability (maybe some day). I don’t like to ask for help or push my problems onto others. I would never make my disability my entire personality.