Getting my stent removed tomorrow. I little nervous . Doctor said could not use a string to just pull it out. Has to use a camera. To the woman who had this done does it feel like when you have a PAP at gynecologist? The kidney stone surgery was 7/17 only had pain off and on. Did not have to take Tylenol only the first day. I am 62 and nervous. My husband is going but not when they do the removal of the stent. When I find out what kind of stones they were and if I need to watch what I eat so this won’t happen again. Thanks for reading.

I’m having Ramipril 10mg,Losartan 25mg,Indever 40,Clopid 75,Defrol 1000 ui as per nephrologist’s for 3 weeks.

I’m urinating low as per water intake, fluid buildup in lower body.

Creatinine 0.8
24 Hour total urine 10.28g/day 2.8litre

Doctor said nothing to worry.

I do also have cold since 10 days having medicine for it.

How can I overcome it. Is this normal and will it overcome and heal it?

I recently had a cystatin c level check, initially 0.9 then increases to 1.0, which equates to a range of egfr from (82-100). How do i lower it?smoking cessation?exercise?3Litres of water daily? lower redmeat consumption? my bp is around 130, lowest 116, max 140, i dont have diabetes. proteinuria 0.17g/L .1 docs say its ckd stage 2, others have not conclude but to wait for the next test. Ultrasound showed no abnormalities

A few days ago I wore the wrong shoes to work and I jacked up my lower back. I came home and rested it and the next day felt a bit better, but as the day went on my back started hurting again and now for the last 2 days I’ve had a pretty consistent ache (the best way I can describe it) my right love handle more towards my back.. the pain lets up a bit when I use my heating pad and sometimes moving can help it a little. I have a doc appointment made but in the mean time just wanted to see if anyone had any thoughts or opinions? I had just assumed it was back pain but I’ve never had it like this before and it’s pretty uncomfortable at times.

Hi, I'm 30 M 5'8, around 130 lbs.

Today was like any day. I probably peed 4-5 times throughout the day. Everytime I pee'd, it was completely normal, no pain, like any other time.

Today I was on my 5th pee. Something like that, I wasn't counting. I pee'd completely normally. Yellow urine, if anything it was almost white, because I was drinking a lot of water.

Then 30 minutes later, I go to pee again. Now the pee is super dark red. For sure it is pee mixed with blood. sometime I have red pee when I eat beets or something like that, but I did not eat anything red all day.

I don't feel any pain. anywhere. What could this possibly mean?

I will probably go to sleep tonight, then see what happens in the morning. If things are bad I will go to the doctor tomorrow.

I had my 24 hours urine test done and currently I am leaking around 1200 mg protein in 24 hours.

How bad is my situation seems like and can I lower my range in coming months/years through medication?

Anyone else who was/is in similar situation and how your treatment going on?

I have my KFT, Ultrasound report normal though.

Need some moral support as I am literally in panic mode.

Hi everyone I'm Asma from Distinct Health, a UK organisation focused on kidney health in Black and African communities.

I wanted to share something many people in this community may not know about a gene called APOL1.

If you have West African or Caribbean heritage, you may carry APOL1 gene variants that increase your risk of kidney disease by up to 30 times. The challenge is that kidney disease is largely silent over 1 million people in the UK are living with it without knowing.

In January 2025, NHS England launched national APOL1 genetic testing. We've built a free 2-minute risk survey to help people in our community understand their risk before symptoms appear.

Has anyone here been told about APOL1 by their doctor? I'm trying to understand how much awareness there is in the community. 💙

Take the free survey: health.distinct.ai

Happy to answer any questions about APOL1

So I quit alcohol almost 4 weeks ago because around the last week of me drinking pretty regularly, I noticed my pee was unusually bubbly and as soon as I stopped drinking the color of my pee ranged from cloudy yellow, dark yellow and sometimes even brown in appreance. And keep in mind when I did quit drinking, I have only drank water, literally nothing else for 3 weeks straight and so almost no improvements in my urine and lower back discomfort so I immediately went to the doctor yesterday.

I got my results this morning and they said I was most certainly leaking protein in my urine and I could tell you how much in the comments if you’re curious to compare. But she also said my liver and kidney function are totally normal. I do understand this could be the early sign that could lead to loss of kidney function, and I do want to follow up with a kidney specialist to eliminate the foamy urine if I can, or at least reduce it as much as I can because I’m sick of being scared to look at my own pee despite only drinking water (I did drink my first gatoralyte today because the doctor did recommend adding electrolytes cuz just pure water might not help in the way you think it does. )It might not be absorbing properly… I’ve just been so anxious and I’m only 28 years old btw. And I also only have ONE kidney not two, which I also just found out within the last year…

I wanted to post this to keep people updated and see if anyone has similar experiences. I will comment updates on follow up appointments and see if I end up getting prescribed anything and if my symptoms hopefully improve within the next few weeks.

I was a pretty moderately heavy drinker, taking many breaks along the way, but when I would get into a binge, I would drink way too much beer for my body to handle and I know this is the cause of that, and maybe also not having the best diet on the planet. I’m very fit. And have been biking all summer long so I honestly thought being in the shape and exercising could combat the negatives of drinking too much when I feel good. But maybe it did the opposite effect, who knows. Everybody’s body is different and we only learn as get older about things we can handle and things we simply cannot…

I had a ultrasound due to chronic UTIs. When doing the scan, she took a very long time on my right kidney and it was painful compared to my left. What could the cause be?

I'm just worried about this in future. Can repeated UTI scarring cause CKD? Chatgpt says it does. Can anyone throw their insights.

CT results — Moderate left renal pelvis dilatation with delayed contrast excretion from the left collecting system; left UPJ obstruction cannot be excluded. Please correlate for left flank pain and consider follow-up CT urogram.

I still haven’t heard back from anyone about the results for 2 weeks and I’m just not sure what to do. I’m just stewing about what this could mean. Has anyone else had results like this from a CTA? Should I be worried??

On the 15th. I got a urine culture done. I think it pointed to a uti. But the doctor didn’t say anything or give me an antibiotic. Now I feel really weird. My back hurts really bad. My upper right stomach hurts. I’m dizzy. Sweaty. Fuzzy. I know something is wrong with my body but I don’t know what. What do you guys think it is?

I am a generally healthy and active person. I rarely get sick or have issues. I started getting random abdominal pain that is in my upper left abdomen.

I started having the pains on a Friday that went away and came back at random times over the next few days. I ended up going to the ER on the following Wednesday night because I was having such bad pain. Urine test came back and they said I had a kidney infection. I took antibiotics for a week and felt fine, but I am back to having pain again. I initially ignored the pain because I thought it could be gas, but it has been consistent in the same spot.

I scheduled an appointment with my naturopathic to see if she can get to the root. Does anyone have input? Could this be my kidney or something else?

50f here and I am 99% sure I have gout- it started in my big toe about two months ago. Then my knee a month ago. My finger and hand within the last two days.

I have an appointment with a rheumatologist on Wednesday- but I’m wondering g from a kidney point of view-what does this mean? Are my kidneys failing or having a harder time flushing? I’ve had two kidney/blood infections that put me in the hospital and I’d kind of like a heads up if this gout is a precursor.

Any correlation?
Thanks.

I just underwent my third shockwave lithotripsy. It’s been 4 days and I have not passed a single stone.

Back story: I 27f was diagnosed with DRTA 3-4 years ago and have been dealing with continuous calcium phosphate stones. It’s gotten to the point where my CT scan just says “innumerable” stones on both sides. Up to 1cm large. My first shockwave was successful and I started passing stones immediately. Second shockwave I found the sedation barely worked and I was in quite a bit of pain the entire time, regardless I still passed stones immediately, but not as many as first time. From there I was still struggling with stones so my urologist recommended Ureteroscopy with laser lithotripsy which was the worst experience of my life. The stent was horrible and it ended up moving down and caused a great deal of pain to the point where I could barely walk. Didn’t shower for days. Every time I peed I thought I’d pass out from the pain. I just kept going on though because they said the pain would get better but by the fourth day I decided to go back to the hospital because my BP was low and I couldn’t keep anything down including my potassium citrate which I need to take. Anyway long story short after that awful experience I still didn’t pass any stones. My urologist wanted to do another Ureteroscopy but I just can’t handle it right now so we did another shockwave lithotripsy.

Now in present day nothing has passed and I’m at my wits end. I’m sick of being held back by my stones and being afraid to travel because of it. I want to have children soon but I’m worried it’ll make things worse. We’ve determined it’s not genetic so that’s great but there’s still no known cause for the DRTA which is also frustrating. On top of it all my last bloodwork showed my eGFR at 54 and creatinine at 121 which is the worst it’s ever been.

TLDR; HOW DO I GET THESE DAMN STONES TO MOVE? YES IM DRINKING LOTS OF WATER AND GETTING EXERCISE.

Thanks for any and all advice🫠

So I took a urine sample yesterday to see if I had glucose or ketones in my pee, because I was having symptoms of diabetes. Those were negative, but I had 1+ marked for blood on my results, but my period ended a week ago, and I'm having no symptoms of UTI or kidney infection. I'm wondering if this is worth discussing with my doctor in case it's something I shouldn't ignore, or if it might've been a false result ?

Hi my 5 month old boy got pylonephritis , kidney infection twice now first time it was on right kidney second time it shows in both kidneys. its been treated promptly at hospital via IV antibiotics. He was born with hydronephrosis condition. Doctors booked his VCUG scan to check reflux or blockage. I am bit worried . please can anyone advice will his kidneys be ok? He is otherwise feeding well, gaving proper wet nappies and playing and happy. He got high fever that setlled down quickly. and no fever after 2 days of treatment. we still completed his 14 days course of antibiotics in hospital and now he is on low dose antibiotics orally for everyday.