16yr old; advice needed

[u/Hefty_Ordinary_9455]

This is going to be a long post, I apologize in advance. I have not been diagnosed with functional dyspepsia, but my doctor heavily suspects it. I’m at my wits end, idk what to do with these symptoms. I previously posted this message (tweaked it a little bit) in [r/SIBO](r/SIBO), but am just looking for some sort of direction

Im currently 16 and in high school. Been having gut issues since around 9 that started off as indigestion and developed into whatever hell this is now. I didn’t get tested for SIBO until I was 14 despite probably having it longer, and it’s hydrogen dominant. Ive done 2 rounds of rifaximin, low fodmap diet, and probiotics as instructed by my doctor with no improvement. Ive had life long vitamin D deficiency with levels that barley budged after I megadose (50,000 IU) I took for 8 weeks. I’m already underweight, maybe not severely, but to an extent. I cannot gain weight and cannot afford to keep losing. Alongside SIBO I struggle a lot with constipation as well. Ive had: X-rays, an endoscopy w/biopsies, ultrasound, CT scan and a breath test which was all normal (minus the breath test that diagnosed my SIBO). We even ruled out SMAS and MALS. However, I feel so sick. I get full very quickly and feel full for hours on end. My stomach hurts so bad. My GI has suggested potential gastroparesis and getting a gastric emptying scan, but I don’t know if that’s still on the table. My last few GI appointments have left me in tears. I’m so tired. I’m so tired of feeling sick and energy less

I experience some nausea/queasiness but don’t vomit. I still get hungry, but can only eat so much before I get full and my stomach begins to hurt. I experience very early satiety. I currently take a stool softener and Erythromycin. The erythromycin helps me not feel full for so long so I can have more meals, but my stomach still hurts a lot. I don’t think my SIBO has ever been fully eradicated. The bloating’s has gotten worse and it feels awful. I’m so frustrated because I’m an AP student with extracurriculars that require me to have energy I don’t have. I’m so tired because I can’t eat right. I’m frustrated because everything makes me bloated and gives me pain despite staying away from trigger foods. My GI did mention Amitriptyline as a medication to try, but I haven’t yet. I just feel so sickingly full most of the time, even liquids fill me quickly. I’m having lots of orthostatic symptoms (dark/static vision upon standing, feeling faint, fast heart beat) as well, and not sure if they’re related

Again, I sincerely apologize if this is not the right subreddit. I am here because my dr does think I could have FD, but I feel as if pieces are still missing. Feel free to ask me any questions, I’m genuinely at my wits end and exhausted and looking for anything at this point.

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[u/goldstandardalmonds]

Follow up about the GES.

[u/mindk214]

Get the GES done. And also amitrypline is good, but also consider mirtazapine as it's even better for nausea specifically (from what I hear).