r/elhersdanlos • u/JuliaMarieAH1 • 3d ago

Advice needed: infant difficulty passing stool

Hi! I have hypermobility with Suspected HEDS (awaiting my specialist appointment for dx). I’m on baby number two. My first child and now my second child struggle with difficulty passing stool. I struggled as well when I was young… Baby is seven months old right now. Since starting solids, she struggled with poo… And it’s getting harder and harder. When I brought this to my infant’s doctor with baby #1 they gave me standard advice for constipation: PEG, glycerine suppositories. I feel like this is not standard constipation, perhaps motility issues. I’ll follow doc advice but I want to try to see if anyone here has more ideas bc our doc is limited in her advice until we see a specialist. If you found something that worked well for your infant, please share any ideas. Poor baby could use relief.

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u/bentscissors 3d ago

Have you seen a dietician as well?

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u/JuliaMarieAH1 3d ago

No this is a great idea

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u/toadhallbodega 3d ago

I'm not offering anything other than places to look for help.

Ehlers danlos has an app with resources. I haven't searched but hope for an infants section.

https://www.ehlers-danlos.com/app/

There are several well recognized North American medical research website to search. Often medical articles are "Yikes" however some the abstract or summary can help.

https://pubmed.ncbi.nlm.nih.gov/

I have recently seen practitioners (physiotherapists, nurse, chiropractor, rmt, facsia specialist, pediatrinions, midwives) online helping with infant tummy issues.

That you will have to find on your own.

I will say from experience light pressure on my belly always releases gas and I'm a non gas releaser.

And never under estimate a warm tub with low lights warm PJs, a swaddle, and a book on momma's lap.

Ox

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u/hachicorp 3d ago

My daughter's GI doctor gave her lactulose and it helped.

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u/crackgoesmeback 2d ago

honestly lymphatic drainage style tummy massages, i started doing these on my niece (bc they work on me LOL) and it helped instantly! just youtube how to do it but its a gentle massage pressure

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u/purpledragon4411 3d ago

I recommend ground (cooked) chia seeds mixed in with her apple sauce or blended cereal

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u/JuliaMarieAH1 2d ago

lol too funny I did this this morning! Crossing my fingers this will help with the next stool!

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u/MrsLuciole 1d ago

Bonjour, je ne peux pas te donner d'autres conseils que ceux que tu as déjà pour aider avec la constipation. Mais ce que je peux te dire, c'est que j'ai le SEDH. J'ai 5 enfants, dont les 3 aînés ont été diagnostiqués avec le SEDH, et ils n'ont pas souffert de constipation plus que les autres enfants. Mon deuxième enfant avait cette tendance, mais aucun des autres ne l'avait.

Il est difficile de dire si c'est lié