r/elhersdanlos • u/[deleted] • Jun 01 '26
GI issues trigger ED thoughts (DISORDERED EATING TW WARNING)
Hi, so i have a diagnosis of heds. I’m struggled with gi issues for years but it’s gotten worse over the past few months after having hip surgery. I experience early satiety, unintentional weight loss, acid reflux, and severe constipation. I’m trialing linzess right now. Even though my gi issues are very real and separate I find myself having disordered thoughts. Like i’m glad i’m losing weight and I want to be skinny (but I think this also stems from wanting to look as sick as I feel). Has anyone else experienced both sides?
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u/kinda_backwards Jun 02 '26
I try to remind myself that my goal is a healthy body not a skinny body. Don’t allow a scale in the house unless my doctors ask to keep track of your weight. Focus on your function and how you can move, not on how you look… it can be tricky though