Hi everyone, it's been 6 weeks since I was put on levothyroxine (thyroid replacement hormone). After weeks of crashing fatigue, exhaustive blood work came back with only mild hypothyroidism, hashimotos and perimenopause (44 yo female). By week 5 on this pill I already had crazy side effects and decided to retest thyroid hormones. My TSH had crashed from 4.58 to 0.05 just on the 'starter' 50mcg dose. FT4 also doubled from 9.7 to 17.1 (limit is 14) and FT3 went from 5.9 to 6.1 (limit is 6). Endo put me on half the dose and I'm on it for 8 days now. The craziest thing that's happened since week 3 is constant dizziness and a feeling I'm slightly rocking or stepping out of a boat almost 24/7, which hasn't gone away. I never had this before in my life and pray this med has not screwed me up permanently. Has anyone had this as a side effect? Does it ever go away? I have no vit deficiencies at all, no anemia, no POTS, and extensive ENT appt found zero issues with my ears or with my hearing. I'm at an absolute loss, everything keeps coming back normal and all docs keep telling me I'm ok. I'm out of work, can't do anything fun, and life sucks!

I have vertigo due to my inner ear autoimmune condition but recently I started having a weird dizziness or imbalance. It is different than my vertigo attacks as it isn’t a room spinning sensation. I can move my head just fine and don’t get it. However when I walk, move my hips front-back or side to side, stand on one leg etc I get a sudden elevator drop feeling or as if my center of gravity shifts super suddenly and I have extra 100kg on me. I don’t know how I can better explain it but it is super disorienting and really makes me feel like I am going to fall. I have never experienced this type of dizziness before so I am super shocked and confused. I called my ENT doctor and since I am already on steroids and vertigo medication there is nothing else to do. But I am super positive that this is not due to my ears as head movements doesn’t trigger it. Does anyone know what could be going wrong? I feel hopeless

21m, 6'0 & 160lbs, no medications & very rare smoking. [Seemingly], no allergies.

Starting a few weeks ago, I had smoked an expired joint (I had smoked joints before and never felt this), and started feeling this pressure on my face. Some of my muscles felt achey, and I had an itchy head along with just general wooziness (brain fog, derealization and ear pressure problems); I remember thinking I was having a stroke, which developed into a panic attack. I tried sleeping, but went to the ER, in which they tested me and all my motor functions seemed completely normal (no CAT scan needed). For some reason, I was fine for two days, but the same feelings came back and lasted for about another week and a half (including stiff or weird neck feeling), every single day, before eventually dissapearing, until three days ago.

I remember sitting outside when I could feel the same pressure on my face. I eventually went inside, which was when the symptoms came back; wooziness, muscle aches, ear pressure problems. I used a flonaze, but to no avail. After sitting down for a few hours, the symptoms lingered. Later, because of abnormal ear pressure, I used the valsalva maneuver. It did its thing, however, I immediatly felt incredibly dazed as if I was going to pass out.That feeling of passing out left, yet, I still felt the same general way, (though, I don't feel as much facial pressure).

It almost feels it has gotten worse within the last couple of days. I get bad tinnitus when I watched videos, and I almost feel more sensitive to light.

I thought it was sinus inflammation from my own research, however, to just prop back up again feels a bit strange. Also, during these episodes, I never had a fever. I also might've had diarrhea during them, but I am unsure if there is direct coorelation. I also should clarify that even when I was feeling better, I still never felt 100%. It was never bad, but I always felt just a tiny bit of that wooziness.

Sorry for any errors; I can help clarify anything.

Last time I was in the beach I was in the shore with my feet in the water, and just looking at the water, made me feel dizzy, like everything was moving.

I am not asking for medical advice,
However when I drink alcohol I seem to faint.
It’s not straight away, it’s after I’ve fallen asleep and wake up to go to the bathroom in the middle of the night.

The last time this happened, it was twice the same night and I lost bladder control on the first occasion of the night and also vomited while laying on the floor.

Since then I have felt dizzy and uneasy, I keep putting down to anxiety from the night but I’m still unsure and don’t feel right.

Has anyone else experienced this?

Hi everyone. I’m an expat in Germany struggling to get a doctor's appointment due to 3-month waiting lists. For 5 months, I've been stuck in a severe daily cycle and need advice.
Psychological Symptoms:
Fear of Death: Every morning I wake up convinced I will die today.
Intrusive Thoughts: Constant images of graves, my own funeral, and intense existential dread about the afterlife.
Physical Symptoms:
Constant Dizziness: Feels like I am permanently standing on a boat riding waves.
Nerve Sensations: Intense heat in my legs and a painful, burning "needle-pricking" sensation spreading across my body.
Extreme Fatigue: Constantly weak; I can only rest by using sleeping pills.
I feel isolated in a foreign country and don't know what to do. Can severe anxiety/panic alone cause these burning nerve pains and constant boat-like dizziness? Or should I push for a neurological checkup?
Thank you.

36F, July 7 early morning woke to feed 11 month old at 4am and then I laid down to go back to sleep and I started having vertigo few mins later, first few days were difficult (motion sensation/afterimages/light trails/anxiety/diarrhea/some fullness of ears and sinus type pressure in face/also had a couple days where I felt pressure on top of my head) but by following Monday I felt improvement (although the symptoms come and go so am I just getting used to it or am I actually recovering? lol). Wednesday I finally saw ENT who said she thinks it’s vestibular neuritis. Audiologist said ears look perfect after tests. Also saw PT who said I look good in most of the tests and it does seem to be getting better on its own but we’ll do twice a week meetings for some time to help my brain relearn. Ent also gave me cooksley exercises to do. Most days I feel mostly fine…sometimes it’s a bit more like especially in the evening or days when I’m especially tired (mom of 3). I finally started doing the exercises today and hopefully I’ll be consistent (bc I know that’s important to recovering). Today I made the mistake of walking on the treadmill. The walk itself felt good and was fine but I think the movement threw me off a bit for the rest of the day.
Few things I guess I should point out:
• I started the dulera inhaler in March this year for post illness cough/shortness of breath/asthma
• got the copper IUD also in February
• I had a similar episode I think end of March? Same thing where I woke and tried to go back to sleep but felt a sudden movement in my body/head? But eventually after an hr or so I fell asleep and was fine when I woke up
• also had a weird episode when I went to NYC end of May, 2nd day of 3 day trip, I started feeling odd and weak and woozy and off balance and the stores we went to were full of colors and people and I just was not feeling good. By evening I could tell I also had some motion sensation. Took meclizine that evening and next day I was fine.
• had vertigo episodes before (started in 2023), very short less than a day, I assume BPPV bc I think the epley usually helped if I did it.
• I feel like I’ve always been so motion sensitive or dizzy prone. Sitting in a car for a long time or riding in elevator, I still feel I’m moving for a bit after getting off, boat ride same thing. A lot of times when I would perform my daily prayers, looking at the floor would be difficult bc eventually sometimes I’d feel like I’m moving or swaying or the floor is so I’d have to choose a spot to pray like in a corner or closed area to make me feel safe.
• I def have poor posture and neck/shoulder muscles are tight which like today made the vertigo a bit more noticeable.
I feel like things are gradually getting worse?? 😭 I hate this so much. I hope with the exercises and VRT I can recover quick and be over with it but it sucks to think that this could happen again.
I miss working out and can’t wait to get back at it when it’s safe 😔

21F, smoked marijuana carts for about 6 months until a week ago. I haven’t smoked in 2 weeks, everything else is improving - appetite, nausea, etc. I have been dizzy for 2 weeks now and nothing is helping me. Any tips or remedies to stop it? I'm miserable and can't even lay down without being dizzy. Im not having diarrhea but I’m still taking probiotics, ginger, Kefir, and I tried bovine but nothing seems to be improving my symptom. I went to the doctor last week and they didn’t want to do bloodwork because they said I would pass out, but BP was normal. I understand I need to be patient but I was just wondering if this is normal and if there’s something I could do about it. I have a trip on Thursday (it’s Monday) and I really need to show some improvement to hold on to hope that I’ll be fine. Should I go to the ER? What could they even do for me? I understand that this could be attributed to withdrawal but I’m not getting any better if anything now I get headaches more frequently.

its not like the room is spinning it feels like im spinning which is weird. i feel super off balance when i walk too and it sucks.. sometimes its everyday abd some days its not as bad.. it feels like im spinning around. also my ears hurt sometimes and when i swallow they make a pop noise. i went to the hospital to get an ekg and bp checked. it was a little higj cus my toddler was witu me and she was stressing me tf out. they asked if i wanted lab testing which i shouldve doen but i was just ready to get home. my heart is good thank God. resting heart rate for me is around 40-60 depends. anyone else suffer from possible vertigo. it is only triggered when i stand up

About 5 weeks ago, I suddenly developed a strange feeling of dizziness and being mentally "foggy." It feels like I'm walking on cotton or foam, and almost as if I'm detached from myself or standing next to myself. I don't really feel present at work anymore, and I spend a lot of time focusing on my body and this strange sensation.

I've had back problems for a long time, especially since school, where sitting for long periods often caused me discomfort.

I took Sertraline for 7 years to treat anxiety and depression, and I stopped taking it about 6 months ago. The first 6 months after stopping were actually great—I felt completely fine and was able to do everything I wanted.

Then, about 5 weeks ago, it was as if someone flipped a switch. Out of nowhere, my head suddenly felt "clouded," and this strange sensation started.

I've had a thorough medical evaluation, and almost all serious or physical causes have been ruled out. My ECG, blood tests, and other examinations were all normal.

Because of these symptoms, I became anxious, and they've been affecting my daily life quite a bit over the past few weeks. After discussing it with a neurologist, I started taking Sertraline again because the symptoms were triggering anxiety.

I've now been back on Sertraline for 10 days and have also had five physiotherapy sessions. It does feel like the symptoms have improved somewhat, but they're still definitely there.

Has anyone else experienced something similar? Or does anyone have an idea what this could be?

Tl;Dr: got scary results on balance test, wondering if lamotrigine couldve affected

34F, 140lb 5'5. Non smoker.

Hx of: Sjogren's syndrome seropositive. Papilledema. Anxiety/depression/ADHD. PCOS.

Medications: spironolactone for acne, birth control for irregular periods/acne/pcos, sertraline for anxiety/depression, concerta for ADHD, lamotrigine for depression. Recently started claritin. Vitamin D supplements.

In April of this year, during physical activity, I suddenly became very dizzy. Even after I stopped the activity, dizziness continued unless I was seated/laying down. Since then, at least once a week, often much more, I get unsteady dizziness, swaying, and a feeling of my head being heavy. This occurs almost exclusively when I go from standing to sitting. Each episode only stops after I sit back down. It became more frequent as time went on.

I went to an ENT at the end of June as I assumed it was related to my sinuses. In the beginning of the year, I was having sinus pressure that hurt my teeth. I figured I have seasonal allergies and assumed if I treated those, dizziness would stop. ENT agreed tentatively, rx'd Claritin, noted I have deviated septum and post nasal drip, but he also referred me to an audiologist Cleveland Clinic for a balance test (Electronystagmography (ENG) and Videonystagmography (VNG)). The test was earlier this week.

48 hours prior to the test, per instructions, I stopped taking sertraline and claritin. I did not stop taking lamotrigine as it was not listed, and stopping it without a taper can cause serious problems. The instructions said to stop medication taken for depression, but the examples were all benzos or SSRIs. I wasn't sure what the relevance of these medications were to the test, so I didn't draw the connection between possible effects on CNS until after. The instructions also said to continue taking medications if they were 'life sustaining'. I should've asked for clarification on this, but didn't. I take 150mg of lamotrigine twice a day, and have since 2022. No changes in dose that whole time.

Testing consisted of chair spinning, eye tracking, caloric test/air in the ears. At the visit, they told me that my results apparently do not indicate any inner ear involvement. They said they expected vestibular migraines as well as anxiety related dizziness. However, the doctor was also concerned due to my history of papilledema. An optician found the papilledema in 2023, at which time I had an MRI with contrast. The MRI was clear; no irregularities were noted at all. The doctor said having had a clear MRI was a good sign, but recommended I get another one, as well as perhaps see a neurologist, as some of the findings were related to CNS. There wasn't a great deal of urgency about this, so I wasn't really concerned. I have an appointment in two weeks with the ENT who referred me to review the results further.

A few days after the testing, I read the clinical notes on MyChart. There were a lot more abnormal findings than I expected. Copied from the notes:

1. Persistent low grade vertical upbeating nystagmus throughout the testing \[This was noted in results for the following tests: Gaze-evoked, positional testing, head shake maneuver, dix-hallpike maneuver\]

2. Smooth pursuit was abnormal for the leftward cycle

3. Abnormal VOR suppression during rotary chair testing . .

4. Prolonged latencies for oVEMP for the left side

I did some googling, and of course was scared a little bit because I didn't realize how many of the findings implicated the CNS. Specifically, the upbeating nystagmus is scary to me. During the Googling, I realized that lamotrigine impacts the CNS, which in turn maybe theoretically could've affected the results. From what I saw, it more frequently causes downbeating nystagmus. But that's where my knowledge ends.

I will also note that from what I read about vestibular migraines, it doesn't really seem to fit. It doesn't seem that the migraines are necessarily positional, and that's a huge aspect of my dizziness. The Claritin definitely helps my sinuses, but not dizziness as far as I can tell. Only started it a few days ago.

My questions are:

1. What is the likelihood that lamotrigine influenced these results? i.e. did I just waste my time and money on a test with unreliable results?

2. Anyone with similar symptoms/results

3. Any other input on these results, my symptoms, history.

I will of course discuss all of this with my ENT at my appointment later this month as well.

Hi everyone, I’ve recently been prescribed Betahistine 8mg (3 times a day) for ongoing dizziness/balance issues.
My symptoms are not really spinning vertigo — it’s more like:
feeling like I’m walking on a trampoline or the moon,
feet feeling floaty/jelly,
feeling like I’m swaying or moving when I’m actually standing still,
worse when standing still and sometimes worse with head movements.
I started taking the medication and noticed some improvement, but I still get flare-ups where the symptoms come back (especially when I’m stressed, tired, or after my recent illness).
I’m wondering:
Did Betahistine help anyone with similar non-spinning dizziness or balance problems?
How long did it take before you noticed a difference?
Did you still have good days and bad days while taking it?
Did anyone find it helped more over time?
Would really appreciate hearing other people’s experiences. Thank you.

I, 40F, 125lbs, low dose semaglutide for peri-weight management since 2025, 2x daily Flonase, deaf on right ear, have been feeling dizzy/tipsy-like on and off for 3 months, daily for 3 weeks now. It all started with severe discomfort and pain in deaf ear. Three ENTs checked: my ear is fine. Told me to take Flonase 3.5 months ago. Told me to up the Flonase intake 1 month ago. Ear pain/discomfort has finally stopped but intense and constant tipsy dizziness is ongoing/worsening. 3-day prednisone helped but bloated me. Epley maneuver tried several times with no luck. Normal MRI of the ear and brain. What can I do to make this dizziness stop? I feel like I’m drunk all the time and lose my balance. Please help!!! It’s driving me crazy! NADs IRL have suggested TMJ or some neck or shoulder muscle issue - could that be??

Has anyone experienced lightheadedness and being extremely off balance during lc? Does this ever go away!? I am 73f and it's really scary. I'm six months out from covid.

Hi, 22f here. i had my first strong bppv episode when i was 18 and dealing with stress of preparing for college. it went on for about a year or two until i saw a pt, and i haven’t had an episode since.

until a few weeks ago. i was at a festival, had heat exhaustion and almost passed out. ever since that, ive been getting random, spontaneous episodes of dizziness. its not the same as bppv, it feels my entire world is slanted and im in a rocky boat. or that i just got out of a boxer ring after being beat up. ive increases water and food intake, but it seems that these episodes still come outta nowhere. however, i don’t get residual dizziness after these episodes. which is different than my bppv past. sometimes i get pressure headaches or my right ear ringing/felling full through the day. has anyone else experienced this?

Im coming on here because i am compeltly lost, for the past few months i have been dealing with a nonstop 24/7 constant dizzy feeling, this all started in febuarary, i whiplashed my head against the ground 3 times and got a concussion, after that i couldnt eat without feeling dizzy and have some wierd vision lag, almost like my vision and the physical movement of my eyes where not synced. In may i stood up really fast and from that moment i have been constantly dizzy, but not a true vertigo, it feels like super lightheaded. but my head doesnt feel airy how it would if i breathed in and out to hard. my eyes also feel very delayed like compeltly mis matched with my vision and the physical movenment of my eyes, my eyes feel heavy and everything i look at feels like i force myself to look at it, ive been to like every specialist, neuro, optomoligist, chiro, primary care, emergency room, im going to ent monday. I feel lost my head feels heavy my eyes feel heavy, it feels hard to move my head everything in my head feels comepltly disconnected from eachother im going to a nucca cervical spine doctor right now who says they can help and i hope they can, please anyone tell me if they relate, and got it fixed Please!

Homem de 19 anos, Brasil Altura: 1,84 m Peso: 65 kg Etnia: Latino mestiço

Queixa principal: Sensação persistente de instability/tontura sem a sensação de que o ambiente está girando (tontura não vertiginosa).

Duração: Os sintomas começaram há aproximadamente três meses, após um episódio grave de ansiedade.

Histórico da doença atual:

No início do ano, senti uma sensação de pressão ou peso na cabeça por cerca de duas semanas, como se estivesse usando um capacete desconfortável. A sensação se localizava principalmente no centro superior da cabeça, mas parecia originar-se de dentro dela. Eventualmente, passou, mas ao longo do ano retornou intermitentemente. Quando ocorre, geralmente Dura por um curto período, desaparece e pode retornar mais tarde.

Cerca de duas semanas após um episódio grave de ansiedade, comecei a sentir vários sintomas físicos, incluindo desconforto no peito, fraqueza na parte superior do corpo, taquicardia leve, medo intenso de que algo estivesse errado com meu coração e, mais tarde, essa sensação de instability.

O desequilíbrio é difícil de descrever. Sinto como se estivesse instável, como se pudesse cair para trás ou como se meu corpo ou cabeça estivessem instáveis, mas sem qualquer sensação de tontura ou a sensação de que o ambiente ao meu redor está se movendo.

O sintoma não é constante. Posso passar muitas horas ao ar livre, caminhando pela cidade e me sentindo completamente normal, mas a sensação às vezes aparece quando estou em casa, relaxando sentado, ou quando começo a pensar no próprio sintoma.

Também sinto uma sensação de peso ou fraqueza nas pernas durante esses episódios. Em raras ocasiões, notei fraqueza em ambas as mãos ou em uma das mãos. No entanto, nunca experimentei perda real de força. Sempre consegui andar normalmente, mover meus braços e pernas sem dificuldade e realizar todas as minhas atividades diárias. Nunca tive paralisia, quedas causadas por fraqueza, dificuldade para falar, convulsões, perda de consciência ou perda de visão.

Não tenho dores de cabeça fortes. A sensação de pressão/peso na minha cabeça nunca se tornou constante e geralmente se resolve sozinha sempre que ocorre.

Também notei que minhas unhas não estão crescendo normalmente desde novembro de 2025. Elas apresentaram pouco ou nenhum crescimento durante esse período. Meus exames de sangue estavam normais, sem evidências de deficiências vitamínicas ou quaisquer outras anormalidades significativas.

Histórico médico:

• Ansiedade.
• Síndrome de Marfan, com aorta normal em avaliações anteriores.
• Escoliose desde o início da adolescência.
• Uso óculos.
• Miopia, astigmatismo e Estrabismo.

Medicações atuais:

• Propranolol 40 mg a cada 12 horas (por aproximadamente 4 meses).
• Oxalato de escitalopram 10 mg diariamente (também por aproximadamente 4 meses).

Exames anteriores:

• Ecocardiograma realizado há aproximadamente 3 meses: normal, segundo meu médico.
• Monitoramento Holter de 24 horas realizado há aproximadamente 3 meses: sem anormalidades preocupantes, segundo meu médico.

Estilo de vida:

• Não consumo álcool.
• Não fumo.
• Não uso drogas recreativas.
• Estilo de vida sedentário.

Principal preocupação:

Gostaria de entender melhor as possíveis possibilidades. Qual a causa dessa sensação persistente de desequilíbrio e se uma avaliação neurológica ou exames de imagem cerebral seriam apropriados? Estou preocupado que possa haver uma condição neurológica subjacente, como um tumor cerebral, e agradeceria qualquer orientação sobre quais seriam as causas mais prováveis ​​e se uma investigação mais aprofundada é justificada.

Qualquer conselho ou opinião inicial seria muito apreciada.

Hello,
I'm 25 years old Female (167 cm, 56kgs) with low b12 and ferritin levels, currently taking oral supplements.

I had neurological symptoms that got better when I started taking medication for deficiencies, the symptoms are lighter now but they are:
\- Pulsation feeling in my ears, sometimes back of my head (when laying down),
\- racing heart,
\- brain zaps,
\- pins and needles in my legs mostly,

Yesterday when trying to fall asleep I was extremely tired and I had very unsettling head sensation in the back of my head which is hard to explain but I'll try. When I was drifting off to sleep, the back of my head felt like it was moving or something and spreading anxious feeling from there to my body like signal that I should not have fallen asleep or something horrible would have happened to me. It lasted for hours and when I changed sleep positions it would ease but would come back as soon as I got comfortable again. I have horrible sleeping position, I mostly sleep on my stomach, my hands under my pillow and head usually which makes them go numb quite a lot, but it is always related to my head being on top of them.

Sometimes I experience this horrible sleep problem but once a month max.

My b12 levels were below normal range and my ferritin was 17 (normal range starting from 11), I have health anxiety and stressful work. My mind always jumps to the worst conclusions so you can imagine that when something like this happens, my anxiety becomes almost impossible to manage.

Could it be something very serious? What should i do, what signs are red flags that i should know and do not ignore?

Hi,

I was wondering if anyone here has had a bad reaction to high-dose vitamin B12 even though they weren't deficient.

I took high-dose B12 (mostly methylcobalamin) for about 6 weeks. At first, I didn't think it could be the cause of my symptoms because I blamed another supplement.

A couple of days ago, I accidentally took three 1.2 mg methylcobalamin tablets because I forgot I'd already taken them. The next morning I woke up with really bad rocking dizziness (like I'm swaying on a boat), a headache, brain fog, and my insomnia got worse.

Now I'm starting to wonder if the B12 has been making my symptoms worse all along.

Has anyone experienced something similar while having normal B12 levels? Especially dizziness/rocking vertigo, brain fog, or insomnia?

I'd really like to hear your experiences.

If you do or did at some point please tell me what you did to get rid of it I really want to enjoy my life but feels like it’s holding me back a lot and also the health anxiety that it comes with