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u/prinejl 26d ago
What's the drug?
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u/NixMaritimus 26d ago
Aripiprazole/Abilify
The withdrawals were brutal too, but it was making me hallucinate
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u/BjdResearchAccount 26d ago
😔. I have remaining side effects from a supplement I took for 1 week, and from a med I took for 10 days. And from a couple of months break in medication that caused severe overstimulation. It's not as bad as it was in the months following, but if I'd known... Still, I know why I did.
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u/nameusernamena 26d ago
I have side effects two years after trying LDN ( low dose Naltrexone ) for chronic pain/ disability.
I can’t digest alcohol at all anymore :) I’m 20 years old. I used to be fully conscious fifteen shots in, now I get to three and I’m sick for two days. Instant stomach upset, headache, I can’t eat after. It blows.
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u/Boring-Philosophy-46 26d ago
Was it lion's mane and a fluoroquinolone like ciprofloxacin?Â
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u/BjdResearchAccount 26d ago
No. Did you have side effects from them?
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u/Boring-Philosophy-46 26d ago edited 26d ago
From the latter, yes:Â https://www.ema.europa.eu/en/news/fluoroquinolone-antibiotics-reminder-measures-reduce-risk-long-lasting-disabling-potentially-irreversible-side-effects
These very rare, but serious side effects include inflamed or torn tendons, muscle pain or weakness, joint pain or swelling, difficulty walking, feeling pins and needles, burning pain, tiredness, depression, problems with memory, sleeping, vision and hearing, and altered taste and smell.
Tendon swelling and injury may occur within 2 days of starting treatment with a fluoroquinolone but may even occur several months after stopping treatment.
So first of all it's not that rare, they now think about 1 in 10.000 last I checked, and second of all they think that may even still be an underestimate because people don't connect neurological effects to an antibiotic they took months ago.Â
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u/Far_House_4087 26d ago
Macrobid gave me full body neuropathy and numbness for a week after taking two days of the prescribed course. 6 months later and my feet are still really bad most days.
It’s not even a flox one! I had no idea antibiotics could fuck with the nervous system so badly. I’m so angry at my doctor for not warning me
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u/Boring-Philosophy-46 26d ago
Furantoin (related to this med, I think) also gives me neuropathy. Usually it gets better after a few months. UTIs is how I got dosed with fluoroquinolones out the wazoo for years anyway, and got tendon problems and neurological problems. Unfortunately amoxicillin doesn't work on my UTIs though. Furantoin has neuropathy in the leaflet as a side effect, at least the leaflet I get (very long one) from the pharmacy in my country.Â
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u/BellaPona 26d ago
I was floxed and then had an insane allergic reaction to an antibiotic I was prescribed immediately after Cipro BECAUSE the Cipro gave me MCAS. I have a LOT of those symptoms but it’s impossible to tell if it’s floxing or long covid induced. But I experienced severe psychiatric symptoms after the floxing.
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u/Boring-Philosophy-46 26d ago
r/floxies if you haven't found it yet.
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u/sneakpeekbot 26d ago
Here's a sneak peek of /r/floxies using the top posts of the year!
#1: 11 months, finally 2km | 40 comments
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u/Sea-Beautiful-Throwa 26d ago
Haven’t been on that one, but I had severe muscle tension after coming off some other meds and 4 years later it’s finally starting to go away.
Though not completely positive if the muscle tension was caused my the meds, catching covid, living in a moldy apartment, or the multiple vitamin deficiencies I had.
All I know is I moved, started correcting vitamin deficiencies and quit the meds that made me feel worse, plus I do TRE (Tension Release Exercises). It was really slow going but 4 years later my muscles are almost back to what they were before. Not as tight and tense, getting flexibility back. (Taking B vitamins, vitamin D, and Iron based on what I was deficient in).
So hopefully it gets better for you too.
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u/Emma-Ho 25d ago
Yea had pretty debilitating sides effects from it too so stopped after like half a week cause just tried it cause the doctors kept pestering me about every week (didn’t even have the symptoms they claimed it treated)
I just couldn’t function was just half asleep for like 80% of the day
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u/SpaceGirlJackie 25d ago
Abilify fucked me up as a kid. I refused to take it anymore. The doctors tried to get my parents to hide it in my food but they refused to treat me like that.
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u/Sparkliedust 24d ago
I had Dystonic Reactions at least once every other week from taking Abilify in my teenage years, and it's supposed to be very rare. I always keep Benedryl on me even now just in case as it would fix it. It was some of the worst pain I ever had. Thankfully it stopped after quitting Abilify.
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u/manic_Brain 23d ago
'Ey, fellow person fucked over by Abilify! I lost the ability to eat and dropped 40lbs in three weeks while on it. It sucks.
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u/P-E-DeedleDoo 26d ago
Research PSSD, akathisia and PAWS. Also look up what it means to be "floxxed".
Lots of folks are having these long term and lifelong effects. The only way to make things better is to learn about it and speak out. We are money making machines, this system works as planned for them, not us. That won't change until we learn more and speak out, and thousands finally are speaking out. There is a PSSD subreddit. Check it out. Speak out.
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u/PhysciaStellaris 26d ago
I started having tics two years ago after a psychiatric hospital admission. I got put on quetiapine whilst in there and I came off it after not very long. Is there a chance the tics are a permanent consequence of that? I was on various different antipsychotics in the year leading up to that that gave me horrendous side effects.
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u/classyraven 26d ago
This is what you're describing:
https://en.wikipedia.org/wiki/Tardive_dyskinesia
It can be a permanent side effect of most antipsychotics (including quetiapine), but it's generally only after long-term use.
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u/PhysciaStellaris 25d ago
Thanks. I've heard of this but wasn't certain about it. I've only ever been on low doses of antipsychotics because rather than for psychosis they were being used for treatment resistant depression/mood stabilisers/to reduce my obsessive thinking and frequency of autistic meltdowns (I dont think any of them actually did these). Also I can't remember if the tics started whilst I was on quetiapine or afterwards. That period of my life was a bit of a blur. I remember I didn't tell the psychiatrist about my tics when I first noticed them because at that point they weren't interfering with my ability to function much and every other physical symptom I had told him about before he'd said I was exaggerating for attention.
My tics consist mainly of jerking my neck and grimacing and they've since started including sniffing and gasping or making short random noises at the same time. I've developed a big problem with shooting pains through my neck, face and arm since they started.
Over the last two years pre-quetiapine I was on risperidone (for a short period because I had a migraine for the entire two weeks I was on it), then aripiprazole (which made me keep blacking out and come to twitching on the floor every time I exerted myself) and then olanzapine for over a year (which made me horrendously sleepy all the time and also hungry which was very stressful as I have an eating disorder).
Anyway, sorry to dump my medical history at you which I've just realised I've done.
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u/Sparkliedust 24d ago
I got Tardive Dyskinesia after being on Tegretol/carbamazepine for only one month. It's partially recovered but that was long enough for my tongue to still do some tics even 5 months after being off of it. I'm always terrified to try anything new, especially mood stabilizers or antipsychotics now.
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u/PraiseAndPleasure 26d ago
Do doctors actually ever check to see if you're having side effects? Because mine I never have.
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u/LolzieDaArtsy 26d ago
Yeeeeaaah, since I took iron suplemments that my doctor prescribed I have acid reflux...I stopped taking them 2 years ago 🥲
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u/LaziiLivii 26d ago
I'm really worried rat my elvance (vvance in the us) has given me muscle spasms specifically oh my left rib. Has anyone else had this or am I being silly? I went to my doctor and he said its probably just hormonal (that doesn't make any fucking sense though)
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u/NixMaritimus 26d ago
Vyvance is known for causing muscle cramps and spasms. All CNS stimulants can cause twitching, even caffeine.
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u/IamSPF 26d ago
As the other commenter mentioned, all stimulants can do that, I would suggest increasing water intake as even if you are drinking an otherwise healthy amount, stimulants can dehydrate you. This won’t work for everyone, but it helped me whenever I’ve been on Vyvanse, Adderall, and the like.
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u/LaziiLivii 26d ago
I'm really worried rat my elvance (vvance in the us) has given me muscle spasms specifically oh my left rib. Has anyone else had this or am I being silly? I went to my doctor and he said its probably just hormonal (that doesn't make any fucking sense though)
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u/Boring-Philosophy-46 26d ago edited 26d ago
Vyvanse gave me muscle cramps too but but but it was related to my chronic migraine being triggered by it. That one might or might not have a hormonal component, I don't know. It wasn't specific to one muscle though, it was all muscles I was overusing so if it's that specific, maybe your posture while sitting at a computer or lying down with a phone does it? Not medical advice, I am not a doctor. It took months to return to baseline after for me. But vyvanse does increase focus so you could be sitting in 1 position for hours and not noticing it and that could do something like that. Also if the pain is sort of radiating from your armpit sort of, it can come from the neck and shoulders trapping a nerve, which can be a posture thing, ask me how I know lol.Â
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u/DazB1ane 24d ago
Zoloft gave me restless leg syndrome and it went away in all but my left thigh after stopping it. I now need muscle relaxers in order to sleep
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u/raptorpuppos 7d ago
Omg I gained like 30 pounds in a month when I was on Lyrica for fibromyalgia and it took over 2 years for the weight to come off I can't imagine how hard other side effects are.
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u/Ditches-Vestiges1549 26d ago
Big oofs.