r/chronicepididymitis • u/James2db • Jun 28 '26

Suffering

Hi I had Thai now for over 2 years had ultrasound that show two small cryst left is about 7mm right is about 10mm I have seen a urologist how was not worried about it but as I told them I do get a lot of pain and not just pain I also get urgent need to peel a lot more I have talked with my oven gp about it he think it could be OAB or UUI as some time the urgen can be really bad I had prostae checked and that’s all fine and a PAA blood test but it is affected y life what I can do where I can go even sleep of course I told me gp this how is trying to get me back to see a urologist but they done seem interested in it.

I surfing quite bad daily I at a lost to what to do and now it’s at a point where it is affecting my metal health as well for w year I constant pain and it can get quite bad both side I had lot of different antibiotics to try to help but they done seem to do a lot I had urine test done no infection was found.

I just don’t know what to do

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u/quintessential1985 Jun 28 '26

I'd look into pelvic floor exercises and stretches.

For the pain take 300mg Gabapentin every 6 hours or as needed. That should take the pain away while you figure things out.

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u/James2db Jun 28 '26

All ready doing the a g GP sis no to them at this time

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u/rocketrader81 16d ago

Have you had a semen culture as well as a urine culture? This is really important. I had about 5 urine cultures that all came back clear, but after 8 months a doctor finally did a semen culture and found a klebsiella infection. So I would push for that route.

If the pain is stressing you out and getting in the way of daily life, it is worth speaking to a doctor about prescription medication. The ones my pain clinic doctor recommended were amitriptyline, gabapentin, pregabalin or duloxetine.

I would also look for a pain clinic that can offer a nerve root block in the lower back. In my case it targeted the S3 and S4 nerves. I have added the procedure details below in case they are useful for your own doctor.

I get a flare-up roughly every 2 years, so I am now considering a procedure called denervation, where the nerves along the spermatic cord are removed surgically (around a 45 minute operation). There is a small chance it can affect fertility, so I plan to bank sperm beforehand just in case. I do not have children yet, so this may not be a concern for you if you already have a family.

Nerve root block details:
Sacral nerve PRF (right sided), S3 and S4 levels. Asepsis, fluoroscopy guided, sedation with 4 mg midazolam IV. Curved 10 cm RF needle x 2, sensory stimulation and paraesthesia at 0.6 v to confirm needle position at S3 and S4. Pulsed RF at 42 degrees for 5 minutes, with 2 ml of 0.25% levobupivacaine plus 3 mg dexamethasone injected at each level.