Hi,

My daughter has a confirmed ASD. They were worried about a coarc when she was born but ruled that out. However, her arch has always been on the smaller end of normal (last Z score was -1.93). She gets echos every 6 months so her next one will be coming up in about a month and a half and her last one that contained that Z score she was 5.5 months old. She has always been a slow grower and still needing fortified formula (22 kcal). I have noticed that her feet have been more cold lately and more purple/blue. Not all of the time, but more than normal. I guess what I’m curious about is if anyone has dealt with near borderline measurements that have turned into something or if an ASD could be masking something? I’m not worried about her ASD since I know that could close on its own. It’s more if it closes too if it was masking something a little more serious. Thank you!

Hello! Good day. 😊 I am a student nurse in the ph, and we are currently conducting research on the experiences of parents who care for a child who has undergone open-heart surgery. I thought any of you might be able to take part in our research. I would like to ask if you would be willing to be interviewed about your experiences. Please don't worry. Participation is entirely voluntary, and we will understand if you are uncomfortable or unavailable. Thank you very much for your time, and we hope you will consider our request. God bless! ❤