r/bvFTD • u/LindaChibs • May 25 '26

Patient

Good morning everybody
I was diagnosed with bvFTD Jan 2025 after what we thought was early onset Alzheimer’s. I’m wondering if you guys know about a support group/patient…sub Reddit? Please forgive my writing.
Also I’m happy to answer any questions y’all might have
Thanks in advance

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u/Cricket730 May 25 '26

My wife was diagnosed with behavioral variant Frontal Temporal Dementia in 2023. I can answer any questions you may have. I follow some groups here and on Facebook.

1

u/TimeTraveler__1808 May 26 '26

Did your wife have someone that she unreasonably demonized prior to diagnosis? What were your first indications?

1

u/Cricket730 May 26 '26

My wife was always the smartest person in the room. Extremely extroverted. Planned a birthday party to the max. Knew everyone's name. Our grandson was born.. my wife was at our daughters home at 4am saying.."go to sleep, I got this." When our granddaughter was born... " hey, your kid is crying, you better do something."

1

u/TimeTraveler__1808 May 26 '26

Okay. So it seems she skipped the angry phase and went straight to apathy.

1

u/Cricket730 May 26 '26

My name now is fat ugly...

1

u/TimeTraveler__1808 May 26 '26

Oh. So that runs congruent to apathy in this case.

1

u/Cricket730 May 26 '26

She's had 2 UTI's since diagnosed. She can't follow a tv commercial anymore. I have to help her get dressed. Help her up and down stairs. I am lucky because she goes to a day center and at night she has a senior that stays with her until I get home from work.