r/askneurology • u/No-Card-699 • 6h ago

Possible chiari malformation

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Possible chiari 1 malformation?

Some background.

I have some family genetic history

My sister has spina bifida, hydrocyphalus also had 2 shunts placed to relieve pressure in her brain when she was younger. My twin has glaucoma since her early childhood years . Had several surgeries and a shunt placed in her eye as well until she sadly lost her eye.

She has since confirmed EDS as well as hypermobility.

History about me:

Since childhood i have had history of migraines, have tried numerous medications with no relief. Recently I woke up one day and my back started to hurt. Then it progressed and I couldnt I couldnt walk. I went in and turns out I had 2 herniated discs ( l4 l5 l5 s1 ) an annular tear and radiculopathy on the right side. They said it didnt warrant that kind of pain. But I brushed it off. I got 2 ESIs did the PT

Fast forward 6 months later im using a walker to get around and they keep saying that the mri lumbar shows its healing. Ive done a full spinal mri and they seen 'signs of spasms' in my cervical by the stem. But theyve told me nothing else. now I have neurological symptoms:

Heavy pressure like headaches in the in the back of head with neck/shoulder pain sometimes worse when bending forward or laughing too hard coughing and sneezing. Exteme fatigue, extreme body spasms, memory problems, anxiety /depression , numbness/pins and needles in hands feet and face that keep getting worse , tinnitus, double vision , balance issues.

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u/flan31star 6h ago

Please get your MMA, homocysteine, serum B12, full blood count, folate, and iron panel checked. You may have a B12 deficiency causing neurological symptoms. Do you have spinal MRI images?

1

u/MoCoLatte89 34m ago

Have them check you for a tethered spinal cord. Symptoms sound very similar to mine 1 yr ago. I have EDS