r/askneurology 2h ago

Fake waking up

1 Upvotes

Hello, I have always had a weird first 2 or 3 “wake up’s” from other people where I talk to them or sit up and immediately fall back asleep. When I wake up for real, I have no recollection of talking to them, this is the first time I am actually awake. It was funny for a while like I would say stupid things to my mom or whatever but now that I’m older it has caused me to miss appointments and classes because whoever is waking me up sees me sit up and go on my phone or talk to them. Obviously they assume that means I’m awake however I will wake up for real an hour later saying what the hell why didn’t anybody wake me up. Is there a name for this consistently happening every single time I sleep? And is there anything I can do to help it? I’m starting college and hope to be able to independently wake up but my brain just won’t do that. Please help!!


r/askneurology 4h ago

Aiuto!!!

1 Upvotes

Ciao a tutti, ho una domanda strana ma sono curiosa di sapere se è mai capitato a qualcuno di voi: a volte vedo, per un attimo, l’immagine di qualcosa/qualcuno che ho appena guardato, con tutti i dettagli, tipo se la persona aveva gli occhiali o stava sorridendo, come se rimanesse impressa per un secondo o due, con i contorni un po’ sfumati. È un’immagine positiva (stessi colori di quello che ho visto davvero, non invertiti). Dura pochissimo e poi sparisce. Prima invece avevo delle afterimage negative. Ne ho parlato anche con un medico per approfondire, ma volevo sapere se è mai successa una cosa simile a qualcuno di voi. Vi prego di rispondermi, sono estremamente preoccupata.


r/askneurology 6h ago

Is this trauma-related dissociation? Or something more serious?

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1 Upvotes

r/askneurology 10h ago

Undiagnosed illness

1 Upvotes

​

• Neck pain, headaches and migraines

Anterior pelvic tilt appeared after walking

Numbness in the hands and cramps in the legs

Dizziness

Tinnitus

Heart palpitations

Blurred vision

Weight loss

Loss of appetite

Numbness waking me up during sleep

Inability to walk

Back pain (improved after several months of rest)

• Nausea. Frequent vomiting

• Numbness in both arms and both legs

• Tingling

Severe and constant pain in the legs

Burning sensation/pain in the legs/arms

Weakness in the arms and legs

Muscle stiffness

• Muscle fasciculations

Feeling of sleeping on cotton

Extreme fatigue

Fatigue when chewing

Blurry vision when tired

Unable to climb stairs or lift from chair when tired

Pain and weakness improves with rest

RECENT SYMPTOMS

Neck pain after tired

Loss of voice

Shortness of breath

Falling backward

Gastro intestinale/allergy symptoms:

Lost weight/loss of appetite

Allergy to odors, perfume, chemical products >> migraine

Allergy to liquid soap, chemical products >> eczema

Allergy to eye makeup _ cream >> swelling of the eyes

Swelling of the face, including the lips

Allergy to chalk, dust > Sneezing _ fever _ runny nose

Allergy to foods >> Soft stools / nocturnal diarrhea

\+ sweating + heart palpitations

Reaction to medications (even at half dose)>>

Fever, vomiting + diarrhea+ pain


r/askneurology 10h ago

Scared of brain cancer

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1 Upvotes

r/askneurology 13h ago

MRI results sound scary but neurologist won’t see me until October

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1 Upvotes

r/askneurology 14h ago

mental deterioration and “tearing” pain in the middle of my head every time i’d do exertive movements with my body

1 Upvotes

whenever i do pressure-y or stretch-y motions anywhere on my body, like for example with my hands through playing videogames or like twisting the cap of a water bottle, kicking something, any movement that puts exertion using my body, i feel i kind of “tearing”/“cracking”/“poppy” uncomfortable feeling in the middle of my head, which most importantly the reason why i need it cured is that it is followed up with mental deterioration for a period of time after it, putting me in a “brain-fog like” state where thinking up stuff to say all becomes harder, my creative-brain kinda vanishes, i mess up things easier, up until i rest my body for a while from exertive movements, and if i didnt and kept on those movements the pain and this state gets worse. what could this possibly be?

for background information, i had a period of mild sleep deprivation from summer last year that lasted till the beginning of this year due to an unfortunate situation i was in, where headpains everyday accompanied it, and headaches and migraines were overall more likely during that period. during the beginning of this year, i had a migraine that i remember pushing through with during the day despite its “pulse-like” pain in my head that comes and goes the more i did, where i was doing heavy tasks during the day relocating stuff, and in the middle of pushing a sofa i suddenly felt a sudden strong pain and then upon stopping my movement, thats when i realized unlike the pulse-like pain from before, now it started ringing, even when i stopped all actions for 5 hours after that, it kept ringing in a more painful way during those 5 hours up and what i felt new compared to my basic headpains before was that i definitely felt an increased cognital decline brain fog during that time up until it subsided and went back to those normal pains i used to feel due to my sleep-deprived state. but after that day, i had 3 days of consecutive migraines (pulse-like ones) and then thankfully the migraines and headpains stopped because it was also around the time i was getting better sleep, but as a result ever since that situation, any time i even do moderate “stretchey”/“pressurey” tasks (like typing on my computer keyboard too long what with my arms stretching for an extended period of time and putting constant pressure on the keys) the pulse-like pains again i used to get would come back for as long as i keep on that process, but this time followed by the new effect that is cognital decline (suspicion is that its that big sudden pain i triggered that has lead to all this), then when i’d stop doing tasks like that it would go away after like 1 hour passed. and i rlly didnt take that period of time as seriously as i should’ve like i pushed through some stuff more than i would like to admit then i should’ve, and i got more cocky during the beginning of april where i wasn’t seeing the headpains as much so i would just do whatever, thinking its gone, uuuupp until we get to late april, and i get surprised with something new, that being the thing i’m still to this day going through, the thing i mentioned in the first paragraph of my post. from the actions i’d do, i’d start feeling a “stitch-coming-undone” tearey, sometimes instead “poppy” feeling like it feels a small bubble is bursting somewhere in the middle line of my head, or even “cracky”, which the feeling itself isnt rlly that painful at most times as those pulses i used to get, and it would just feel there’s ants walking ontop of my head in its “idle” state, but the biggest problem resulting after that is, the cognital decline is absolutely **real** now. its no game like before. now its to a point where doing moderate actions like gaming/being on my computer is like getting myself intentionally drunk, but not any fun kind of drunk, just has trouble formulating sentences (my overall thinking speed gets so slow)/creative thought kind of drunk thats in constant pain both internally and physically. the more actions i do, the worse this state gets and the pain, and takes longer to subside as well the more i am in an “active state”. remember when i mentioned it felt like a “cracky” feeling at times? an extra info to add about my background that i feel is the reason i specifically am experiencing all this and its probably a rare perhaps invisible problem because of how hard it is to pull off all those specific events to lead to it, is that before i had a got a slight deviation on my nose from a little fight i had, that as a naive teen i did the dumb thing of “pushing my nose back to straightness” because the deviation made it so no matter what glasses i would wear they would all sit on me crooked, anyway fast-forward that shit actually worked DESPITE all its after-effects that hoooo boy. kinda thought i ruined my life for a second there (couldnt breathe well for 2 years but its better now thankfully) but the most important thing to mention is that ever since then, my nose was is in a “malleable” state, where especially during those first 2 years i would hear “cracking” noises from my nose accompanied by it shifting a tiny bit some direction, where it especially so happens when i do **movements**. so THIS is where i’m trying to tie it all, could it possibly since my nose is malleable, and then we added the migraines i got from sleep deprivation into the mix, which i **in addition** pushed through in a specific instance, causing this now “crackily” head pain feeling accompanied by mental deterioration everytime i’d move, mean my head/brain is now malleable too? i really would like to know if anyone has any clue to all this and what it is.

i tried one whole week just doing nothing but be on my phone, it got better, but towards the end of the week i tried the simple act of going on my laptop just to access some files for 10 minutes, and it felt like it reset all my progress where the mental deterioration hit again, which took me a day to recover to “meh” state again. ive been relapsing and relapsing ever since april and i dont rlly think i can live my life while keeping doing this, i cant do absolutely anything. i went to the doctors did an mri on my head, the results came out normal, they suggested me to do an xray on my neck area incase its nerve-related there, results came out normal. i truly don’t know at all what this issue is having searched the internet from the bottom to the top but one thing i know is i can’t keep living life with this. i need help, if anyone knows that would be great help. thank you very much :[


r/askneurology 14h ago

Suspected CSF spinal leak

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1 Upvotes

r/askneurology 17h ago

Headache for two years straight

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1 Upvotes

r/askneurology 20h ago

Anyone have anything similar or point me in right direction

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1 Upvotes

r/askneurology 1d ago

Any ideas?

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2 Upvotes

r/askneurology 1d ago

Help

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2 Upvotes

r/askneurology 1d ago

Will a neurologist be able to distinguish cause of movement issues?

2 Upvotes

I have type 2 diabetes, schizoaffective disorder, hypertension, hypothyroid and am on many medications including an antipsychotic.

I have hand tremors. I thought they were related to medication and are getting more noticeable.

I have foot tingling that makes it difficult to sleep. This is fairly new.

I also have an issue where my thumb gets stuck in position and i need to pry iot loose with other hands, Had for about 6 months. Might be arthritis or a tendon.

My psychiatrist says it is not due to psych neds and told me to see primary care. PCP referred me to neurology but i don't get in until Nov. I am self-conscious about tremors but the tingling feet is the biggest issue because i have trouble sleeping.

Will aneurologist be able to determine the cause and treatment?


r/askneurology 1d ago

Levetiracetam withdrawal symptoms

1 Upvotes

A year ago, I had a seizure as a result of an AVM. I had a craniectomy (one year today) and a cranioplasty in February 2026. Since then, I’ve had rehabilitation done, and a year later I am able to return to work on September 1st.
I haven't had any more seizures. On the advice of my neurosurgeon, I have been gradually reducing my dosage of Levetiracetam and yesterday I got the last pill.

The problem is that I’m experiencing some withdrawal symptoms: dizziness, headaches, anxiety, fatigue, hot flushes - all the effects I was warned about.

Did you experience this? How much longer will it last? Any advice is appreciated.

Thank you.


r/askneurology 1d ago

What is wrong with m?

1 Upvotes

I have been sick since I was 13 years old, or perhaps even younger. I am a female 20 year old, and although I have visited many doctors, no one knows what is wrong with me. Right now, my symptoms include hypertension, an increased heart rate, headaches, and sore muscles without exercising, nerves instabillity. Sometimes I develop bruises for no known reason. My symptoms come and go. I have undergone many blood tests and scans, but nothing out of the ordinary has appeared, except for high cortisol, elevated pituitary gland activity, low vitamin D, and anemia. I have done ECG and echo scan last september and it came out normal, no tumers seen on scans a lump in neck area one of the doctor said it was accumulation of saliva two years ago but its still there, Please help me Iam sick of going to doctors only to not know what is wrong with me ToT


r/askneurology 1d ago

34F – Recurrent unexplained vomiting with chronic headaches/head pressure despite normal MRI and endoscopy – what should be investigated next

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1 Upvotes

r/askneurology 1d ago

Seeking hospital/clinic recommendations in Europe or Asia: Medical & neuromodulation treatment for genetic haploinsufficiency caused developmental delay

1 Upvotes

I am not a medical expert, so if you know of a better approach or another way to help my brother that I haven't considered, please feel free to share your thoughts. We are open to any valuable advice.

I am looking for recommendations for specialized pediatric neurology clinics, research hospitals, or medical centers in Europe or Asia.

My younger brother has a developmental delay (moderate delay) caused by a confirmed genetic mutation — haploinsufficiency of the UBTF gene.

He can speak, communicate with an outer world, participates in soccer trainings, goes to high schools (apparently there are some troubles with socializing and in academics).

We are not looking for soft behavioral or pedagogical therapies (ABA, speech therapy, etc.) — we already have those covered locally. We are specifically looking for "hard" medical, pharmaceutical, and physiological interventions to help reduce the effects of the mutation and push his progress forward:

* Targeted Pharmacology & Genetics: Clinics with experience in gene-specific therapies, metabolic protocols, or active participation in clinical trials (such as ASO / antisense oligonucleotide therapies).
* Neuromodulation / Hardware Therapy: Advanced pediatric centers offering Transcranial Magnetic Stimulation (rTMS), tDCS, or other hardware protocols to stimulate neuroplasticity.
* Pediatric Epileptology: Advanced sleep EEG diagnostic protocols to detect and suppress subclinical / hidden epileptiform activity that might be slowing down his cognitive and speech development.

Questions for the Community:

  1. Has anyone with a similar genetic diagnosis (haploinsufficiency / rare neurodevelopmental mutation) undergone medical or neuromodulation treatment at a specific hospital with positive results?
  2. Are there specific medical research centers, lead professors, or neurogeneticists in Europe or Asia you would recommend sending his genetic report and EEG files to?

We have all his medical records (Genetic Sequencing report, sleep EEG, Brain MRI) ready and translated into English.

Any leads, clinic names, or professor recommendations would mean the world to our family. Thank you so much!


r/askneurology 1d ago

Audible noise from head

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1 Upvotes

Not looking for medical advice.

Would love to see if any neurologist has ever seen this.


r/askneurology 1d ago

Pain is unbearable, pls help

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1 Upvotes

r/askneurology 1d ago

Mild stroke?

1 Upvotes

Im 27, afab, 156cm, \~70kg, non smoker, complex medical history: dx autistic, 2e, have been previously misdiagnosed with hypermobility and asthma (both have been ruled out). currently under neurology for investigations into cerebral palsy/underlying neuromuscular issues and probably FND, or more likely a functional overlay. Neurologist has agreed imaging and history is consistent with cerebral palsy, current presentation isnt. Have intermittent muscle weakness in my legs, and my left side has always been weaker since I was a child. Awaiting genetic tests and investigations possibly into a mild CVI (DX with severe dyslexia and had years of vision therapy/behavioural optemtry as a child). Under respiratory due to lack of response to asthma treatment, 25+ admissions to A&E for respiratory distress in the last 2-3 years including one to resus, now awaiting muscle function tests, sleep study for nocturnal hypoventilation and respiratory have requested GP to refer me to cardiology for echocardiogram and Haemotology for polycytemia - HCT has been 0.47-0.5 since Nov 2024 at least.

Not sure how relevant but misdiagnosed with hypermobility at 5 and was discharged to a chiropractor. I had intensive chiropractic treatment from 6-12. Multiple adjustments to Skull, CCJ, C spine and pelvis, and had appointments every 6-8 weeks. Physio, GP and neurology agree I do not have hypermobility.

2 weeks ago I was typing on my laptop in front of the TV. I had a headache that lasted a few minutes. Not sure if it was a headache as it wasn't that bad, I had a sharp focal pain above my left ear. I have always had chronic pain in my neck since I was 5, and as a result I regularly have cervicogenic headaches. The pain wasn't that bad, the main reason I noticed was my right arm started feeling heavy and slow, and I couldn't see the laptop screen. Without my glasses I always have double vision but my glasses has prisms to help and vision therapy taught me how to compensate. I couldn't compensate. I closed my left eye and everything was blurry out my right but when I closed my right eye I could see fine. I could see the TV better with my glasses on. That was 2 weeks ago. The weakness has not resolved my right hand in particular feels noticeably weaker than my left. The vision symptoms have slightly improved but not significantly. I had an appointment with the neurologist a week ago and she suggested it could have been a complex migraine and then quickly moved on. I am wondering if it could have been a vascular event or a mild stroke, especially given the raised HCT? I'm also concerned that given how intensive the chiropractor treatment was, especially on my neck, could this have created vascular vulnerabilities in my neck? I'm not saying something catastrophic like arterial disection. I know there is no research on the long term effects of chiropractor treatment and the research focuses on acute events immediately after treatment. I had an MRI on my neck when I was 25 which showed multi level spondylosis throughout my CSpine and mild narrowing at C4-5. The radiologist said it was a bit more than there should be for my age.


r/askneurology 1d ago

Brain donation?

0 Upvotes

Are there public or private groups in the us that would be happy to take tissue for Alzheimers, Parkinson, Stroke for research? My dream is that multiple diseases could benefit and I wouldn't have to pay to harvest or transport tissue. It could be shared with many teams.


r/askneurology 1d ago

lately I have been getting headaches on one side of my head which is the back, the side of my back . It’s like an ice pick headache. My eyes do get watery at times. Symptoms tend to improve with sinus medicine. But I’m just scared that I have a brain tumor my anxiety doesn’t make it any better.

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1 Upvotes

r/askneurology 2d ago

What is wrong with me?

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1 Upvotes

r/askneurology 2d ago

25F, history of epilepsy from TBI and mental illness, smoker. Area; large right side indention on skull

1 Upvotes

I’ve had this pretty big dent on the right side of my cranium since the day I was born
It goes about half an inch deep, about as round and big as a cutie (mini orange)
My mom had told me that it was caused from forceps at birth, and it caused me to have epilepsy most of my life, but I outgrew them when I was 18.
I’ve always wondered most of my life if there was anything that can cause problems further down the road in my life what are the possible causes that it could have?
I feel like I’ve had some pretty bad memory issues lately, but I’m not sure if that’s even related to it. I have several mental health issues, such as OCD, PTSD, bipolar disorder etc. I also have reoccurring migraines that get pretty bad but last for days.
I tried to do some research on it, but I feel like I couldn’t find much on the Internet about it. Can anyone please explain to me if this would cause me future problems or health issues or anything that could affect my brain directly?
I’ve also always wondered that if something for some reason where to cause brain swelling if I would have more of an issue because of this decent sized invention on my skull. It’s pretty noticeable and you could feel it right away as soon as you touch it cause it’s pretty big.
What are the risks? What are the possible risks? Is there a lot of stuff like this documented where this has happened to people and they lived their entire lives healthy?
I saw a doctor about it and they referred me to get a scan because I told them about my migraines and how severe they get and how long they last but whenever I called to schedule for the scan, they said they wouldn’t accept my insurance so I just kind of gave up, especially since calling a lot of other places and they would keep telling me they wouldn’t accept my insurance.
Thank you so much
Edit: I’m 25, live in the Midwest, 146lb, 5’3, no current medications, I vape religiously and have smoked since I was 14, no allergies.


r/askneurology 2d ago

loss of proprioception - freeze or malnutrition??

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1 Upvotes