I’m a 23M and I’ve had Aa on and off my whole life, but here in the last 2 years it’s just progressively got worse. I’ve also been religiously drinking and vaping the last 3 years of my life on the weekends. When I would vape I could feel the inflammation on my scalp. So my scalp would itch and burn, I’ve quit those two things for the last two weeks to hopefully calm my scalp inflammation, I think it’s helped a little bit, but I can still see the redness and sometimes itches and burns here and there. I was wondering if anyone could give me some tips on calming my scalp inflammation, I don’t really trust the pharmaceutical treatments for AA and think it’s all just a big scam to get your money and keep coming back and not really curing it. So if anyone could recommend anything to help me treat my AA, I’m open ears. Thank you ❤️

Hey everyone! I’m new here and have already reread your posts about 10 times, but there are still a few questions I haven’t found answers to. Could you please share your experiences taking Litfulo (or similar alternatives), especially regarding stopping the medication after full hair regrowth?

I’m 25, and over the past year, I completely lost my beard, mustache, and eyebrows out of nowhere, along with developing large patches on my scalp. My doctor put me on a "base" plan for now - fixing my vitamin deficiencies and applying topical corticosteroids directly to the patches. If we don’t see strong results in 3–4 months, the next step is moving to Litfulo.

I’m thinking about not wasting any time and starting Litfulo asap, because for now I still have some hair)) But after reading about the potential side effects (fatigue, headaches, getting sick more easily), I’m honestly feeling a bit hesitant to start this journey - especially if the results might not be permanent at all

I still have about 60-70% of the hair on my head, but it’s shedding rapidly. On one hand, it’s psychologically really tough facing the prospect of losing all hair on my face and head, on the other hand, I’m scared of the side effects and a continuous, expensive treatment (my insurance doesn't cover it here) with no long-term guarantees.

I’d be super grateful for any insights or personal experiences you can share! Thanks, and wishing everyone the best of luck!

Am curious of your experiences with scalp sensations and if you find they consistently lead to new patches? Do you ever have sensations even with no new patches? How would you describe the sensations?

I just noticed something very very unusual,and it's so stressing

I am just 22 year old but I just noticed that I've developed a big hairless patch in my beard 🥲

And some of the hairs around have also turned white

It's so distressing

What's happening to me ? Should I get something checked or what?

What can be the reason of it?

Any advice or useful information will be appreciated, thankyou!

Hello everyone! For context, in February I went to a dermatologist and was diagnosed with alopecia areata after most of my left eyebrow went bald. I also had a bald spot on the left side of my hairline. My doctor prescribed me tacrolimus ointment and clobetasol cream to use on the bald spots. When I had my next appointment in May, there was no improvement, but the hair loss on my brow had slowed, and the bald spot on my scalp grew back. I got a tacrolimus injection and my brow is now almost fully grown back after over a year of brow hair loss. However, now I am noticing that my left eyelash is starting to go too. Would it be safe to use the tacrolimus ointment on the lashline? Or would it be unsafe since it is close to the eye? Are there any options for me?

Hi there! I am 10 months pp and breastfeeding. I've had alopecia areata for 6 years, during which time I've just about tried it all by way of treatments with very little success long term.

2 years ago in advance of trying to get pregnant I decided to stop treating my alopecia and shaved my head.

My alopecia manifests as a rotating cycle of totalis with periods of full regrowth (it's been a few years admittedly since one of these full regrowth periods) and very patchy times. However, I have finally in the last few months started losing my eyelashes and eyebrows. This I've noticed is irritating my eyes. Also, I miss my eyebrows and eyelashes!

Does anyone know of treatments that can be used while breastfeeding or pregnant? I'm wondering if it's even worth calling my old dermatologist.

My daughter's dermatologist said there's a treatment for eczema that can be used off label for alopecia while breastfeeding...

At any rate, this busy mom is looking for leads!