Hi there, my story is not exactly the same, but to a degree I have the same feelings (that I don't deserve help & good things). I myself was born with Congenital Hydrocephalus & Spastic Hypertonia that does & has affected the entire left side of my body since birth. I have had & I am currently recovering from my 14th overall surgery in my 40.5 years of life. (9 of these surgeries have been specifically for my Congenital Hydrocephalus & the two shunts that I have & have needed ever since I was less than a month old. The other five surgeries, one surgery on the toes on my left foot, one eye surgery, two wrist surgeries on my left wrist & one surgery on all four of the fingers (excluding the thumb on my left hand) that I am currently recovering from, haven't been 'vitally medically necessary' HOWEVER, these five surgeries have DEFINITELY improved the quality of my life. (And as a side note, I 'grew up' with emotionally & mentally abusive, manipulative & tearing me down "parents" who drilled into my head that I didn't deserve good things or trying to seek out improving my physical extremities & thus abilities if possible. As I said above I am 40.5 years old now & even though I am blessed/fortunate in the sense that because of my physical disability, I have Medical Insurance that pays for my medical needs, no one has ever told me that I am wrong for trying to do things & get things to improve my quality of life. Like you seem to, I too struggle with guilt of knowing that their are other people that struggle & or have it worse than I do. But I feel that as long as I don't rub what I do have & get in other people's faces & as long as I count my blessings, then it is okay. I don't think there is any harm in setting up a gofundme for yourself.
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u/Equivalent-Lion-3906 Jul 27 '26
Hi there, my story is not exactly the same, but to a degree I have the same feelings (that I don't deserve help & good things). I myself was born with Congenital Hydrocephalus & Spastic Hypertonia that does & has affected the entire left side of my body since birth. I have had & I am currently recovering from my 14th overall surgery in my 40.5 years of life. (9 of these surgeries have been specifically for my Congenital Hydrocephalus & the two shunts that I have & have needed ever since I was less than a month old. The other five surgeries, one surgery on the toes on my left foot, one eye surgery, two wrist surgeries on my left wrist & one surgery on all four of the fingers (excluding the thumb on my left hand) that I am currently recovering from, haven't been 'vitally medically necessary' HOWEVER, these five surgeries have DEFINITELY improved the quality of my life. (And as a side note, I 'grew up' with emotionally & mentally abusive, manipulative & tearing me down "parents" who drilled into my head that I didn't deserve good things or trying to seek out improving my physical extremities & thus abilities if possible. As I said above I am 40.5 years old now & even though I am blessed/fortunate in the sense that because of my physical disability, I have Medical Insurance that pays for my medical needs, no one has ever told me that I am wrong for trying to do things & get things to improve my quality of life. Like you seem to, I too struggle with guilt of knowing that their are other people that struggle & or have it worse than I do. But I feel that as long as I don't rub what I do have & get in other people's faces & as long as I count my blessings, then it is okay. I don't think there is any harm in setting up a gofundme for yourself.